New here, new dx of MC as of yesterday.

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Joefnh
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Post by Joefnh »

Teri initially it's a daunting task, but after just a bit, like a new habit it becomes second nature.

Here is a link on this site to Dee's Kithchen...Dee is a member here and a professional chef. There are hundreds of great gluten, soy and dairy free recipes here by Dee and other members that all in your family can enjoy.


http://www.perskyfarms.com/phpBB2/viewforum.php?f=7
Joe
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Fish2575
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Post by Fish2575 »

Zantac might be a good alternative to Prilosec. PPIs made me very sick. Zantac actually helps sometimes! Info overload, but it reduces histamine in your digestive system that is a byproduct of inflammation and causes more inflammation.

Tex, correct me if I am wrong!
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Post by tlras »

Teri...I can now tolerate more sugar but I will never be able to eat it the way I did before. I am now just able to leave the house without worries. You will get there! And it's totally worth it! All your hard work will pay off. If I can do it, anyone can as I'm a junk food junkie. lol!

BTW...my doctor found some gastritis in me as well but did not put me on a PPI. He told me to do a low-acid diet. I have an issue with heartburn and giving up gluten has definitely helped in that area but I still get it from time to time. I now take Tums for that occasionally. And stay away from NSAIDS!

Now where's that spa?! LOL! Yes, lots of cabana boys!

Terri
Diagnosed with Lymphocytic Colitis in July, 2012 then with Celiac in November, 2012.
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humbird753
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Post by humbird753 »

Hi Teri - I just wanted to welcome you to our internet family. You're getting a lot of great information from everyone. We all understand how it can appear overwhelming in the beginning, but as others have mentioned, and I found out myself, it does become second nature. AND, the improvements on your health and the elimination of many of the symptoms you're experiencing will be well worth it!

Again - welcome!

Paula
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"You'll never know how strong you are until being strong is the only choice you have."

"Life is not about waiting for the storm to pass... It's learning to dance in the rain."
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wmonique2
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Post by wmonique2 »

Teri,

Welcome aboard! It's the cuckoo's nest you've joined :lol:

Here's my .02 cents:

Listen to what this bunch tells you. They saved me a few months ago when I was deadly sick BECAUSE I WAS EATING THE WRONG DIET.

Try Vitamin D3, 8000 U for your gastritis. It stopped mine instantly. No PPI's, nothing else.

I was willing to do ANYTHING to feel better and you should too. The price we pay is too high.

Keep your wonderful humor, it makes it all so much easier to tolerate.

And between us girls, Tex is our angel. He needs wings or something or maybe we'll canonize him one day and make him a saint. (You catholic, you said? Maybe you can petition the Pope.)

Light and Love,

Monique
Diagnosed 2011 with LC. Currently on Low Dose Naltrexone (LDN)
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Post by Leni »

I was just diagnosed this Monday with lymphocytic colitis. I'm realizing while exploring this site that I'm very lucky to have decided to try a gluten free diet as soon as I had my bloodwork done. I have not had any diarrhea since I cut out gluten. The celiac panel came back negative, but my GI thinks that I might not have been eating enough gluten for long enough time to get an accurate reading. Anyway, I'm relieved to have found you all (thanks to a couple of people over at glutenfreeandbeyond.com) I'm wondering if the slight lymphocytopenia that my hematologist has been tracking for the last few years could be caused by this disease? I'll be asking him about this when I see him in March and will be arranging for my GI doctor to share my records.

Again, I'm delighted to have found this group. I'm also a big fan of humor, so once I get warmed up, watch out!!! :smile:

Oh, I have a question- Could crouton crumbs cause belly pain? I picked out all the croutons today during a business lunch, but I know that I ate some crumbs and now I have a little bit of cramping. Thanks.
Leni

Diagnosed with lymphocytic colitis and IgA deficiency on 1/21/13.

Anything is possible one day at a time!
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Fish2575
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Post by Fish2575 »

Leni, Absolutely! Depends on your sensitivity, but even the smallest amount can be a big trigger :sad:

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Post by Leah »

The answer is absolutely yes if you are very sensitive.
By the way, most of us would test negative for Celiac. The test is just not sensitive enough. It will only give a positive result if there is A LOT of damage already.

Leah
Leni
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Post by Leni »

Thanks Leah and Fish2575. So much to learn.

Leah, I noticed that you are IgA deficient. I found out on Monday that I am also IgA deficient. What did you mean "so I can't be tested?"
Leni

Diagnosed with lymphocytic colitis and IgA deficiency on 1/21/13.

Anything is possible one day at a time!
Leah
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Post by Leah »

I have no idea as to what I meant by that ( sorry). If you are IgA deficient, then a celiac test won't work and neither will the Enterolab IgA tests. Do you where a medic bracelet? I was told to get one because if you need a blood transfusion and are not conscious to tell them of your IgA deficiency, you could go into anflactic ( spelling?) shock if they give you blood with IgA in it.

Because of this, you will have to figure out your food sensitivities on your own as I did. Let me know if you need help

Leah
Leni
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Post by Leni »

Thanks Leah. I will ask about the bracelet when I see my doctor.
Leni

Diagnosed with lymphocytic colitis and IgA deficiency on 1/21/13.

Anything is possible one day at a time!
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Zizzle
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Post by Zizzle »

I'm wondering if the slight lymphocytopenia that my hematologist has been tracking for the last few years could be caused by this disease?
I also have Lymphocytopenia and LC. But I also have another autoimmune disease where lymphocytes are attacking my skin (Dermatomyositis). I only got lymphocytopenia this year, and I've been tested at least once a year for 8 years. I was dxed with LC 3 years ago.
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