), spicy food, tomatoes, dairy, coffee and a lot of condiments. I'm trying to be happy that this can be treated through diet but it's really hard to cut even more food out at this point, which I know a lot of you understand!Interstitial Cystitis
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amberlink09
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Interstitial Cystitis
Hey guys, I just wanted to give you a quick update. So, after I had surgery and my doctor didn't find endometriosis like he 100% expected to he wanted to try a few more things to make sure all of our bases were covered, one of them being a test for interstitial cystitis. Neither of us thought there was too high of a chance of finding it, but lo and behold I had the test today and came back with a positive. I'm still trying to learn about it because I didn't do much research on it beforehand, but he told me some of the treatments for it include low dose anti-depressants (I went on amitriptyline last August and definitely found improvement, but thought this was stomach-related pain) and modifying my diet. There are other drugs too but he wants me to try the diet first, which means I get to cut out more foods including all fruit except for blueberries and cantaloupe, chocolate, all nuts except for almonds and cashews, onions ( ), spicy food, tomatoes, dairy, coffee and a lot of condiments. I'm trying to be happy that this can be treated through diet but it's really hard to cut even more food out at this point, which I know a lot of you understand!
), spicy food, tomatoes, dairy, coffee and a lot of condiments. I'm trying to be happy that this can be treated through diet but it's really hard to cut even more food out at this point, which I know a lot of you understand!
Hi Amber,
I don't get on the forum as much as I used to, but I also had IC symptoms at the height of my illness. We talk a lot about mast cells on this forum and IC is just another manifestation of mast cell problems. Here is an article describing the role of mast cells in IC. A low histamine diet might be of some benefit.
http://mastcellmaster.com/documents/Int ... l-2007.pdf
Hugs,
Mary Beth
I don't get on the forum as much as I used to, but I also had IC symptoms at the height of my illness. We talk a lot about mast cells on this forum and IC is just another manifestation of mast cell problems. Here is an article describing the role of mast cells in IC. A low histamine diet might be of some benefit.
http://mastcellmaster.com/documents/Int ... l-2007.pdf
Hugs,
Mary Beth
"If you believe it will work out, you'll see opportunities. If you believe it won't you will see obstacles." - Dr. Wayne Dyer
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amberlink09
- Adélie Penguin
- Posts: 130
- Joined: Sun Jun 24, 2012 5:44 pm
- Location: United States
Thanks Mary Beth! I haven't done too much reading on mast cells at this point, but I do hear them mentioned on here a lot so it's definitely something I want to learn more about. I know that somehow all of my different symptoms and illnesses are related, as my gynecologist told me today the interstitial cystitis diagnosis is only one piece of the puzzle of figuring out what's going on with me. The problem is that at this point I've been through tons of doctors since being diagnosed with Celiac and looking for more answers when I found no relief, my only good doctor has been my gynecologist, and he can only do so much for me. I would be so happy if I could manage to find a great gastroenterologist or GP.