Newcomer from Oklahoma

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JeanIrene
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Newcomer from Oklahoma

Post by JeanIrene »

Hi everyone, I'm so happy to have found you. I have been having problems for the past couple months and got a colonoscopy 1/10. The GI's nurse called on 1/14, said I had LC, to take Metamucil, and "call if I had any problems"! So I decided to take the bull by the horns and do some research. Had never heard of LC. So after several days of bad D I went on rice, bananas, and a little chicken. A friend told me about coconut products being helpful in controlling D, so I started doing that too. Then several days later I felt better and started adding in some foods. Decided from advice on your site I would go GF and DF. I don't feel too bad unless I add something I shouldn't have, like tuna the other day. For fruits and veggies I use a juicer, and that seems to be fine. I am still leery about adding insoluble fiber. I ordered Tests A and C from Enterolab today. And based on one of your recommendations, I bought a box of cinnamon Chex which I can't wait to have for dessert tonight heehee. I also ordered Tex's book from Amazon and am so looking forward to reading it. He is a gold mine of info and has answered so many questions, as well as the rest of you. I did have a question about juicing, wonder if you think cruciferous vegetables would be okay? Hate to take a chance! Thank you so much for being there. Makes me believe in angels!
Leah
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Post by Leah »

Welcome JeanIrene! You really have been very proactive. That's great! Since you are already seeing improvement, maybe you were lucky and caught it before there was too much damage done to your intestines. It definitely sounds like you will get this under control. Your determination is commendable.

Be careful not to try to add things back into your diet too quickly though and wait about three days between each "test". I'll be curious to know what your Enterolab tests say. Don't worry about getting fiber in . It's not an essential nutrient. It's not your friend right now.

Oh, and when you want to post something ( like introducing yourself), hit "new topic". It will then go on the main message board so more of us will see it :)

Good luck
Leah
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tex
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Post by tex »

Hi JeanIrene,

Welcome to our internet family. I agree with Leah, you've really taken charge of your life and you're definitely on the right track. It never ceases to amaze me how so many GI specialists still believe that fiber or fiber supplements are helpful for gastrointestinal problems, when research shows that fiber actually doesn't do most of the things for which it is promoted.

Several members here are fans of juicing, and hopefully some of them will respond with their thoughts on the subject. Cruciferous vegetables are probably not a problem (at least not in moderation). As you will see when you read my book (page 93), research shows that cruciferous vegetables may increase the intraepithelial lymphocyte count in the lining of the intestines. As you may already know, an increased lymphocyte count is the primary diagnostic marker of LC. The actual significance of this research is still largely unknown, though, so we probably shouldn't be very concerned about cruciferous vegetables until more evidence of an actual risk for people who have LC becomes available.

Again, welcome aboard, and please feel free to ask anything.

Tex
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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Post by jgivens »

Unless one is constipated, it never ceases to amaze me that doctors tell them to take Metamucil. Don't they get it that D. is definitely NOT going to go away with fiber?? It is SO non-intuitive I cannot believe it! Good for you JeanIrene, that you are already seeing good results and using your own commonsense rather than relying on someone who obviously is capable of doing a great procedure, but unable to treat the diagnosis.
Jane
Diagnosed with Lymphocytic Colitis 12/19/12
"When it gets dark enough,you can see the stars."
Charles A. Beard
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JeanIrene
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Post by JeanIrene »

Thanks so much for your help and encouragement. I think I am the impatient sort and am trying to add new foods too soon! I will concentrate on getting my gut healed instead.

Tex, that is interesting about cruciferous vegetables. Can't wait to start reading your book. What an accomplishment for you.

Since the tuna didn't seem to agree with me, do you think salmon would be a no- no for the time being? Didn't know how most respond to fish.
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Post by CathyMe. »

Hi and Welcome JeanIrene,
I have a protein powder smoothie every day. I put in bunches of kale and spinach, 1 scoop of pp, some almond milk, stevia for sweetner, gelatin and glutamine powder, some ice and water and mix it all up. I love this and have been doing it since November 2011 with no problems. As far as the fish goes, one thing you will learn from this board is that we are all individuals and our tolerance level varies. I can do tuna, cod, haddock, crab, lobster, shrimp, etc. with no problems but salmon is a huge no for me. Good luck in your search and good for you for taking control!
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Post by TXBrenda »

Welcome JeanIrene. Congratulations on taking charge of your health & treatment options. I'm a neighbor to the west. If the tuna that caused your reaction was from a can, check the label. Several members have mentioned that canned tuna has soy in it. You may have noticed from posts that members have reported their canned tuna had soy listed as an ingredient. Several members have found out that they are also intolerant to soy.
Brenda
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JeanIrene
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Post by JeanIrene »

Hi Brenda, dang! I just looked at an identical can, and you're right, there was soy in it. I just assumed a can of tuna in water would just have tuna and water. Stupid girl. Gonna have to pay attention to EVERYTHING, I guess. Thanks for the enlightenment.
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Post by Leah »

Good catch Brenda! Now you know JeanIrene that you should avoid soy from now on. Try the fresh salmon. Although I don't like fish that much, my gut loves it :)

Leah
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birdlover3
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Post by birdlover3 »

Be sure to order Tex's book after you read more on the forum. I'm about 1/2 way through and it helped reading some things here BEFORE I started the book...since I was a little more familiar with the terms. He has so much good information there to read. I've about worn out my highlighter :lol:
Diagnosed with Collagenous Colitis November 2012.
TXBrenda
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Post by TXBrenda »

Leah, that was the reason for my post! Apparently I'm not intolerant to soy but I try to avoid it because of hormone issues.
Brenda
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Gloria
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Post by Gloria »

It is possible to find canned tuna without soy, but it's more costly. It's usually labeled "Premium Tuna" or something similar. I used to look for the gold cans. I don't eat it anymore because canned fish is high in histamines.

Gloria
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Post by maestraz »

Regarding tuna, I like Starkist low Sodium chunk light or chunk white albacore, both listing tuna and water as the only ingredients. Chicken of the Sea also has one type I'll eat. If the can lists vegetable broth as an ingredient, I assume soy is in there, and don't buy it.
Suze
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JeanIrene
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Post by JeanIrene »

I think I might try tuna again if I can find it without soy. It's such a handy thing to have if you can tolerate it. Thanks for all your input.

CathyMe, what brand of rice protein do you buy? Don't know if it makes a difference. I was looking at them yesterday, and there is a wide range of prices, some touting all the amino acids, etc.

Jean
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DebE13
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Post by DebE13 »

I eat he same kind as Gloria did. It's packed in olive oil and about twice the cost as the regular tuna, but well worth it.
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