Feel free to discuss any topic of general interest, so long as nothing you post here is likely to be interpreted as insulting, and/or inflammatory, nor clearly designed to provoke any individual or group. Please be considerate of others feelings, and they will be considerate of yours.
tpsprings wrote:My doctor always pokes at the sacroiliac joints on my back (lower sides of my spine). The more painful, the worse off my stomach is. He calls it sacroiliac arthritis. Does your doc to this test?
No, my docs have been pretty much clueless, but there is definitely a connection between the symptoms of MC (and probably other IBDs and other autoimmune diseases in general, because of the leaky gut connection) and lower back pain. It's a very common symptom for many members of this discussion board. Lower back pain was my constant companion back when I was still reacting.
Good luck with the eggs.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Before I cut gluten and dairy, my sacroiliac joints always hurt. I had constant low back pain. When I accidentally ingested gluten, I would wake up the next day with the same old nagging back pain. Bizarre! I haven't had any back pain for almost a year now.
I had hip and back pain before the D started. In looking back I can think of so many things that weren't "quite right" and seemed minor, but when I put them all together it makes a lot of sense now that I have CC. Three years ago I suddenly started such belching, that it would put any sixth grade boy to shame and I was told that I was swallowing too much and causing the belching. Neither my husband nor I could figure that one out. I had not suddenly started gulping air. I think that quite possibly I was "swallowing more stress" and my upper GI was stressed. The answer was of course--"take a heavier dose of PPIs"!
Now that I am cutting back on the PPI (Prilosec) and taking 20 mg. every other day, the belching is worse, but I think that I am just going to push thru it. I am taking massive doses of Vitamin D-3. Once my diet is under control I anticipate that the belching, pain in all areas of my body that are involved with MC will go away or at least be a whole lot better. I have been off of dairy as well as gluten (I've been gluten free for about 14 months now) for over a month and while I am not having D, I am constipated and still have a lot of pain. I expect that I just need to be patient. Things are definitely better than they were a month ago. Still waiting to hear from my Dr. about Enterolab testing.
Tex, I read a thread from someone and cannot remember who, who asked about whether other people were bothered by odors. I would like to respond, if you remember who that was.
Jane
Diagnosed with Lymphocytic Colitis 12/19/12
"When it gets dark enough,you can see the stars."
Charles A. Beard
yes, the doctor confirmed that when the back pain begins, it's a sign that the inflammation is back and to begin treatment asap. He says that he begins treatment with recurring MC at this point with patients. I guess this is a good sigh to be aware of other than waiting for your stomach to implode on you.
I can also feel this pain in the front of my hips when I walk and it's quite painful, but only when my stomach is at it's worst...like right now.
Thank goodness today is the first day of treatment!
I had pain so bad for a couple of seconds this morning, that I could not stand up. I bent down to put my 8 month old puppy in her crate so that I could get to the bathroom in peace, and I could not stand for a few seconds. The pain was excruciating. Relieved by getting to the bathroom, but I was glad that I was at home when it happened. I have not had pain like that for a couple of weeks. Not sure what it means, but I tell myself that I had D for 7 and 1/2 months, I cannot expect that my gut will feel great right away.
Jane
Diagnosed with Lymphocytic Colitis 12/19/12
"When it gets dark enough,you can see the stars."
Charles A. Beard
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
My Entero Lab tests were positive for eggs but I would give anything to be able to eat them "plain" again. I know there are several of us who are intolerant of eggs who can eat them as long as they are incorporated into something else, i.e. bread. I'm wondering if they would change enough chemically to be eaten in a quiche. I know it is a stretch but I am so sick of eating meat as my primary protein source. Does anyone know or be able to theorize if eggs might be tolerated if baked into a quiche? (minus the crust, of course) Thanks.
Sheila W
To get something you never had, you have to do something you never did.
A person who never made a mistake never tried something new. Einstein
Hmmmmmm, Well Sheila, my suspicion that people who can't eat eggs, but can tolerate them in baked goods is because the amount is so small. When it comes to a quiche, you are still ingesting a big portion of eggs... not to mention the dairy that usually goes into making a quiche. I know, sometimes I get tired of meat too, but I try to think of new ways to serve it. Like, I make lamb burgers that my family loves. Beef stew. Tacos (no cheese). Today, I'm making a soup with a left over ham bone. Do you eat seafood? That's another option.
I have been GF for about 10 weeks and was really lucky in that I saw an improvement within 5 days! That said I should qualify that by the fact that I have been on 9mg budesonide since July - but my energy is back up and I no longer have chronic fatigue. Most days are 1 or 2 Normans although I still have the odd day when things soften or are more frequent. Until I am off the steroids (my consultant is basically planning that by the end of 2013) I won't really know if I just have a gluten problem or if there are other intolerances involved. I keep a food diary though so hopefully if I do have problems I will be able to identify the culprit quickly!!
Anne
Jane- count me in on the odor sensitivies too. It's very annoying and adds to the many odd health quirks that seem random on their own but collectively give me a better insight to MC.
I've been GF for about 14 months and still don't feel that great. Prior to this year, I never ate much meat at all since it just wasn't appealing but it is now my staple. I've been struggling with appetite lately so I find sometimes meat is my meal followed by overcooked veggies. I don't want to slow the healing process anymore than I have to so I've adjusted to it fine- it was more of a mental block for me. I don't get too excited about eating anymore but if I can someday control this beast it will be worth all the effort. March is my 6 year anniversay of my CC diagnosis. I sure wish I could serve papers on my constant companion and file for a divorce of this situation!
