Budenoside, Adding Food Back and Eating Something "Wron

birdlover3 · Post by **birdlover3** » Wed Feb 06, 2013 12:21 pm

If you are on Budenoside will eating something 'wrong' trigger an episode? How quickly would it happen?

How about food sensitivities? If a person is adding back in food (trying different things), and it causes a reaction, how quickly does the reaction happen? Is it within hours, later in the day, the next day or when? it probably varies, but what have others of you experienced?

Post by **tex** » Wed Feb 06, 2013 2:24 pm

For some people, budesonide will mask their symptoms no matter what they eat. For others, food sensitivities can still cause a reaction. The most common time for a reaction is from 3 to 6 hours after eating the food in question. Some people react in as little as 10 or 15 minutes, though, and in some cases, it can take a day or more before a reaction shows up.

My reaction time is usually 3 to 6 hours, but for some foods it's much longer.

Tex

fatbuster205 · Post by **fatbuster205** » Wed Feb 06, 2013 4:22 pm

I am on budesonide, have been GF 10 weeks and have had a couple of reactions when I have accidentally had gluten. Usually symptoms start within 12 hours and the effect lasts a couple of days! Then luckily I go back to normal!
Anne

coryhub · Post by **coryhub** » Wed Feb 06, 2013 5:32 pm

When I have been on budesonide my gluten symptoms are masked. That is one of the nice things about the medicine. On the flip-side, I tend to 'cheat eat' things I could not normally eat. I use the budesonide to heal my gut when I have a bad flare up or when I'm on vacation and can't easily follow a strict diet. It is when I am not on budesonide that I can really gauge my food allergies because then I get an immediate reaction to an 'unsafe' food I ingest. Usually I react quickly, anywhere between 20 minutes - 4 hours later. My advise would be: eat as cautiously as you can while on the medicine and then start a food log when you have rolled off.

Gloria · Post by **Gloria** » Wed Feb 06, 2013 10:38 pm

Reactions largely depend on the dosage you're taking. Just dropping one pill a day can make a difference. The goal is to find a dosage that allows you to react within a day of eating a food, but not to be reacting to everything. My reactions on a dosage like that is between 12-24 hours.

Gloria

DebE13 · Post by **DebE13** » Thu Feb 07, 2013 5:56 am

I've been GF for about 14 months now and been attempting to taper off enotcort. I am not so lucky with gaging reactions with D because that is my "normal" right now, I generally can tell if something I ate doesn't agree with my because I get a stomach ache and terrible fatigue. I was pleased that I finally tapered to 3mg every other day but today decided to go back up to 9mg because things have gotten intolerable since my bout with the flu two weeks ago.

It's very disappointing but it is what it is. I hope you easily find a pattern with identifying what does and doesn't work for you- that communication with your body is truely a blessing.

carolm · Post by **carolm** » Thu Feb 07, 2013 6:58 pm

I took Budesonide for about 4 months. While on it I could eat eggs. Off of it I found that wasn't true and within 3-4 hours the gurgling would start then I'd have several rapid bowel movements. Otherwise I kept to a strict diet both on and off of Budesonide.
When doing food challenges, my reaction would often occur the next morning, and it was D for some foods like pork and spinach. However if I eat peanuts, I don't get D. I ache all over the next day instead. So... for me reactions come in various ways. I suspect there are some things that cause me fatigue (and probably inflammation?) but I haven't been bothered enough to sort those out yet. I just keep moving the next day and it eventually goes away.

Carol

Leah · Post by **Leah** » Fri Feb 08, 2013 10:26 am

Everyone is different and every food will bring a different time frame of reaction. When I was at full dose, i didn't seem to react to much of anything ( but I was VERY CAREFUL and restrictive with food), as I tapered down the dose, the reactions were more noticable. I didn't know I was reacting to soy and peanut butter until I was down to one pill a day. Like others have said, some foods react faster. Dairy is within 20 minutes for me, other things could be the next morning. That's why it's a good idea to test foods one at a time with about three days between ( but you really shouldn't be testing until you are on a much lower dose)

Leah

birdlover3 · Post by **birdlover3** » Fri Feb 08, 2013 11:27 am

These comments have been very helpful. Thank you so much! Barb

brandy · Post by **brandy** » Fri Feb 08, 2013 4:16 pm

I flat out could hardly tell any food intolerances while I was on Entocort and probably for about 6 weeks after I got off Entocort. I was able to tell that corn, rice and quinoa caused dizziness (i.e. more dizziness than normal) The Entocort "masked" everything. I honestly didn't understand much of the discussion on this forum regarding food intolerances. I blindly went GF, DF and SF and stayed the course. It wasn't until very late in the game that I did the Enterolab testing--in retrospect I which I'd done it much sooner.

Brandy