Anyone here with Addison's or low cortisol?

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Zizzle
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Anyone here with Addison's or low cortisol?

Post by Zizzle »

I've been wondering why I feel so darn good on prednisone. I have almost none of the usual side effects -- BP is still low, no weight gain, very little face puffiness, great mood, great digestion, sleeping fine once I dropped under 30 mgs, etc. Then I read about the importance of cortisol in controlling inflammation, and :idea:.

What if I had low cortisol levels/adrenal fatigue/even Addison's Disease which led to my autoimmune conditions?? Certainly the chronic level of stress beginning after my first pregnancy could have contributed.

I had most of the symptoms:
The most common symptoms are fatigue, lightheadedness upon standing or while upright, muscle weakness, fever(no), weight loss, difficulty in standing up, anxiety, nausea(no), vomiting (no), diarrhea, headache, sweating, changes in mood and personality, and joint and muscle pains. Some have marked cravings for salt or salty foods due to the urinary losses of sodium.[1] Increased tanning may be noted, particularly in sun-exposed areas, as well as darkening of the palmar creases, sites of friction, recent scars, the vermilion border of the lips, and genital skin
I was really starting to wonder about all my hyperpigmentation, which is lightening now that I'm on prednisone!!

I also had documented hypoglycemia, persistent low BP (orthostatic hypotension) despite tons of salt intake, and I felt more awake, alert and energetic after 6PM than I did all day (night owl tendencies).

My rheumy thinks I may need replacement doses of prednisone (5 mgs) indefinitely, and now I'm inclined to agree. But I wonder if I might try natural adrenal enhancers eventually instead? In any event, I plan to closely monitor the various blood indicators of adrenal function to know what to do.

Anyone else here with known or suspected adrenal/cortisol problems?
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Gabes-Apg
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Post by Gabes-Apg »

Zizzle
I had low cortisol 2 years before my MC Dx

at the time I was fatigued, IBS was quite flared, i had unexplained kerititis that would not respond to treatment and various other issues (joint aches, brain fog).
I saw one of the top immunologists here in Brisbane and his only conclusion for my health issues was that i must have had contact with bat urine in caves in PNG (which i didnt)

at the time we did considerable natural therapy (liquid herbs, acupuncture) to balance my adrenals
Gabes Ryan

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Gabes-Apg
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Post by Gabes-Apg »

by the way - did you see my post last week and leah posted something similar about gut inflammation and nitrates.

i posted a link to a further article about nitrates as this may explain your hyper sensitivity to nickle.
Gabes Ryan

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Zizzle
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Post by Zizzle »

by the way - did you see my post last week and leah posted something similar about gut inflammation and nitrates.
Just read it and replied. Thanks! So many variables to consider!!!
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Post by gluten »

Hi Zizzle, I am taking adrenal support trace elements as a result of my hair analysis tests. I have a slow metabolism and had many of the symptons you mentioned in your post. Jon
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tex
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Post by tex »

Zizzle,

The member here who has the most experience with adrenal issues is Tessa (other than Julie — but Julie's adrenal fatigue is iatrogenic — caused by abruptly stopping the use of budesonide on her doctor's advice).

Tex
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Post by Julie »

Hi,

I have addisson in iatrogenic form. I took budenofalk for a year (9mg a day). My doc decided to do the most stupid thing in the world: he told me to stop the budenofalk cold turky...

Here's what happened: My body wasn't producing cortisol anymore because my body received cortisone because of the budenofalk. But when you stop cold turky, your body doesn't have enough time to start producing cortisol. That's when you have addisson in third degree. You can also develop this when you wean your cortisone too fast.

Symptoms I have/had are: headaches, feeling very tired, feeling dizzy, having D, having stomach pains, low bloodpressure,pigmentation ....

You can go into an addisson crisis: the more stressed you are, the more cortisol you need. Your body is stressed when you have a fever, when you are very emotional or when you have an accident (a shock to your mind or body). When you have addisson, it doens't produce it.

I am still giving a lot of updates about my addisson. You can see it in the section Discussions on Treatment Options Using Diet, and/or Medications. The title for the discussion is adrenal glands.

If you think you have addisson, get a bloodtest as soon as possible. Tell your doc to test your cortisol level and your thyroid. Why your thyroid? Because if you have addisson, chances are that this could have an effect on your thyroid.

So my advice to you is: get a bloodtest. This way you'll be sure. If you have any more questions about my experiences, could you post them in section adrenal glands? I check that almost every day.

Good luck!

Julie
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Post by Leah »

Hi Zizzle. I had my cortisol levels checked when I saw the immunologist for my IgA deficiency. Simple blood test. My levels were fine.

PS Glad you are feeling so well now :)

Leah
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