Hi all, I feel terrible asking so many questions! I wish that there was a way for me to search my questions here in the forum. I feel like there are already answers somewhere but I don't know where to find them. Let me know if I missed that.
Anyhow, I'm a little disappointing to hear from my doc that I now have to take Prednisone and Entocort simultaneously. What will that do to my body? I am afraid of getting all of the terrible side effects and back lash of prednisone once I have to wean off of it. Since I didn't get the desired results I have to have more tests run, and until I have a follow up, I have to take all of this medication...
Am I just worrying for nothing?
Why Predn. & Entocort at the same time???
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That's curious. I wonder why he just doesn't switch you to Prednisone? I know Zizzle is taking right now, so hopefully she will chime in. When it comes to relapse, your chances are much better of not relapsing if you get the diet down.
When you want to "look something up here, go to the top of the page and hit "search" then type in a word or two and see what pops up. But never worry about asking questions.
Good luck and keep us posted.
Leah
When you want to "look something up here, go to the top of the page and hit "search" then type in a word or two and see what pops up. But never worry about asking questions.
Good luck and keep us posted.
Leah
Hi tpsprings,
No, IMO, you have a good reason to worry. Your doctor doesn't seem to know what he or she is doing. If I were in that position I would try to find another doctor before that one ruined my health. It's bad enough to take one, but taking 2 corticosteroids simultaneously is asking for trouble, and there is absolutely nothing to gain by taking the 2 together. I have no idea what dosages he or she is prescribing, and that certainly matters, but the risk of an overdose certainly exists with that plan.
To search the archives, simply click on the big red link above the forum (on every page) that says Search The Archives of This Discussion Board, and the system will take you to a search form.
I doubt that you will find any previous posts about this topic, though, because I don't recall anyone in the history of this discussion board being told by their doctor to take 2 corticosteroids at the same time.
One member was taking budesonide (Entocort), and her doctor told her to switch to prednisone (to treat a back injury) without tapering the dose of the budesonide first. When she followed his instructions, she suffered a life-threatening reaction that caused blood pressure spikes and tachycardia, because the residual budesonide already in her body led to an overdose when she switched to prednisone. It was touch and go for a couple of weeks, and she now has to take medication to stabilize her BP for the rest of her life, because of that doctor's mistake.
Tex
No, IMO, you have a good reason to worry. Your doctor doesn't seem to know what he or she is doing. If I were in that position I would try to find another doctor before that one ruined my health. It's bad enough to take one, but taking 2 corticosteroids simultaneously is asking for trouble, and there is absolutely nothing to gain by taking the 2 together. I have no idea what dosages he or she is prescribing, and that certainly matters, but the risk of an overdose certainly exists with that plan.
To search the archives, simply click on the big red link above the forum (on every page) that says Search The Archives of This Discussion Board, and the system will take you to a search form.
I doubt that you will find any previous posts about this topic, though, because I don't recall anyone in the history of this discussion board being told by their doctor to take 2 corticosteroids at the same time.
One member was taking budesonide (Entocort), and her doctor told her to switch to prednisone (to treat a back injury) without tapering the dose of the budesonide first. When she followed his instructions, she suffered a life-threatening reaction that caused blood pressure spikes and tachycardia, because the residual budesonide already in her body led to an overdose when she switched to prednisone. It was touch and go for a couple of weeks, and she now has to take medication to stabilize her BP for the rest of her life, because of that doctor's mistake.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Re: Why Predn. & Entocort at the same time???
I'm surprised that you're taking both @ the same time. Did your doc say he was going to taper you off the Entocort? How long were you on the entocort?tpsprings wrote:Hi all, I feel terrible asking so many questions! I wish that there was a way for me to search my questions here in the forum. I feel like there are already answers somewhere but I don't know where to find them. Let me know if I missed that.
Anyhow, I'm a little disappointing to hear from my doc that I now have to take Prednisone and Entocort simultaneously. What will that do to my body? I am afraid of getting all of the terrible side effects and back lash of prednisone once I have to wean off of it. Since I didn't get the desired results I have to have more tests run, and until I have a follow up, I have to take all of this medication...Am I just worrying for nothing?
Thank you for your replies!
Leah-when the nurse told me to take my current med and Predn. together I was definitely confused...I know that they are both corticosteroids and I also mentioned my concern of side effects. I was told to call if I started to notice any "adverse "side effects.
I haven't started the Predn. yet only because I am very concerned as you can tell. I will do my part to get better and that includes being a "good patient", otherwise why see a doctor at all, but from what I can tell it's not common practice to take all of this medication, and you are right Tex, this makes no sense to me either!
I have other autoimmune issues going on and wonder if the doc thinks that the meds will help for that as well and I am not seeing the Big picture? I do wish he would communicate that to me if that's the case.
I'll keep you informed. More testing and more answers (I hope).
Leah-when the nurse told me to take my current med and Predn. together I was definitely confused...I know that they are both corticosteroids and I also mentioned my concern of side effects. I was told to call if I started to notice any "adverse "side effects.
I haven't started the Predn. yet only because I am very concerned as you can tell. I will do my part to get better and that includes being a "good patient", otherwise why see a doctor at all, but from what I can tell it's not common practice to take all of this medication, and you are right Tex, this makes no sense to me either!
I have other autoimmune issues going on and wonder if the doc thinks that the meds will help for that as well and I am not seeing the Big picture? I do wish he would communicate that to me if that's the case.
I'll keep you informed. More testing and more answers (I hope).
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If given the choice, I would keep the budesonide over prednisone if possible. I guess it would also depend on if the budesonide is effective and can you afford it. I've been on prednisone twice. The first time wasn't so bad but I had many side effects the second time and it was hard weaning off. I was NOT the model patient for tapering and most likely created additional problems that I think I'm still paying for now because of it. Taking prednisone is a very serious choice and in my experience anyway, the I did not know the right questions to ask in order to make informed decisions. I was just told to take it and I did. (If you do take it, do not take it before bedtime). I hope your tests give you a bit more insight. All the tests I ever had done came back within their normal ranges which just made everything more frustrating. This forum is an excellent resource.
Best wishes to you.
Best wishes to you.
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birdlover3
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WE have all found that we know our bodies best. Take Tex's advice and get a second opinion. Many of us were born of parents that taught us to accept all doctor's advice, but my generation is starting to realize that we have to question things, do our own research and challenge medical advice when our 'gut' (excuse the pun) tells us something is awry!!! Barbtpsprings wrote:Thank you for your replies!
Leah-when the nurse told me to take my current med and Predn. together I was definitely confused...I know that they are both corticosteroids and I also mentioned my concern of side effects. I was told to call if I started to notice any "adverse "side effects.
I haven't started the Predn. yet only because I am very concerned as you can tell. I will do my part to get better and that includes being a "good patient", otherwise why see a doctor at all, but from what I can tell it's not common practice to take all of this medication, and you are right Tex, this makes no sense to me either!
I have other autoimmune issues going on and wonder if the doc thinks that the meds will help for that as well and I am not seeing the Big picture? I do wish he would communicate that to me if that's the case.
I'll keep you informed. More testing and more answers (I hope).
Diagnosed with Collagenous Colitis November 2012.