Thoughts..

Redsox34 · Post by **Redsox34** » Fri Mar 08, 2013 8:42 pm

So, here's the deal. I've been going gluten free for about 5 days now but have not seen any difference. Tonight I go out to dinner with my family and eat a gluten free meal of chicken and veggies. Felt pretty good which is rare because sometimes I get nervous/anxiety when I'm out which sends me to the bathroom. At the end of the meal I ate a little ice cream (5 or 6 spoonfuls) and went home about 30 minutes away. Within minutes of being home I have to run to the bathroom with horrible diarrhea. Could this be lactose intolerance? Would it strike that fast? I didn't even eat that much. Besides that dinner and ice cream the only other food I ate all day were scrambled eggs which was 9hrs or so earlier. Could eggs be the culprit? I know it was not gluten because I have not had it in days..

Thanks everyone for your help. This condition absolutely sucks..

Post by **tex** » Fri Mar 08, 2013 10:40 pm

Redsox34 wrote:Could this be lactose intolerance? Would it strike that fast?

Lactose has to get to the colon (which usually takes much longer) where bacteria can ferment it before it generates gas, cramps, and diarrhea. And it usually takes more lactose than just the amount in 5 or 6 spoonfuls, to cause diarrhea. You probably are indeed lactose intolerant, because everyone is, when they have enteritis (intestinal inflammation), but your reaction was almost certainly caused by casein (the primary protein in ice cream). At least two-thirds of us are sensitive to casein, and it only takes a tiny amount of it to cause most of us to react. We usually refer to the diarrhea caused by casein as "battery acid D". Does that fit the description of what you experienced?

Eggs are a possibility, but my money is on the casein in the ice cream, just based on the odds.

Tex

Redsox34 · Post by **Redsox34** » Fri Mar 08, 2013 11:00 pm

Thanks for the reply Tex. I assume you're asking if it was a burning sensation.. It was more like very explosive to the point it was uncontrollable. If I stopped trying to hold it in it literally just poured out of me. Felt like lots of gas was coming with it. This has happened many times before and it's just so embarrassing (even when I'm home) because its so loud! Wouldn't say that it burned though.

Looks like I can try avoiding casein too for a while..

ant · Post by **ant** » Sat Mar 09, 2013 1:34 am

Dear Redsox34,

I believe that my recent flare (started early February) was prompted by an accidental consumption of casein. I had ordered a banana and lime "smoothy" and without telling me they added yogurt to it. I just took one gulp and immediately stopped as I recognized the yogurt taste...... but too late..... within about 5 hours I was having explosive D.

I would definitely keep off dairy products.

Best wishes, Ant

Deb · Post by **Deb** » Sat Mar 09, 2013 7:49 am

Lately, when I have an "episode" it is almost immediately. I'm not sure if it's gluten or dairy (it happens when eating at a restaurant). After that I'm usually fine and normal the next day. We were gone for a couple of months and ate out quite a bit so had more exposure than usual. Deb

gluten · Post by **gluten** » Sat Mar 09, 2013 4:48 pm

Hi, The last time I had ice cream was twenty two years before I was diagnosed with MC. It was a nice big dish with four soups of ice cream, banana, hot fudge, extra whip cream and walnuts. It was soo good. But after a forty minute drive home I was lucky to make it to the bathroom. The pain was so intense and it lasted for 30 minutes. That was the last time I had ice cream. Jon

DebE13 · Post by **DebE13** » Sat Mar 09, 2013 7:28 pm

Hang in there with being GF. I've been GF since November of 2011 and still deal with daily D. That doesn't mean it will be that long for you, there's a lot more to my story. Just don't judge the effectiveness of being GF by a few weeks. It's a challenge but it takes time. I was very frustrated for a long time because being GF for a month seemed like a lifetime. I also didnt fully accept the reality that this is lifelong. Be strong in your determination- it's worth it .

brandy · Post by **brandy** » Wed Mar 13, 2013 7:06 pm

Red,

I agree with Deb13 hang in there with being GF. If you are struggling early on try to limit things with ingredient lists and stick with proteins, overcooked veggies, rice, white potato and sweet potato. Don't eat any processed lunch meats unless it is boars head which is GF. All other lunch meats generally have Gluten and/or soy in them. Keep us posted. Brandy

mzh · Post by **mzh** » Sun Mar 17, 2013 7:04 pm

I was gluten free for three years before I went into remission. Just hang in and tell yourself it may take years before being G/L-F lets you heal.

DebE13 · Post by **DebE13** » Sun Mar 17, 2013 7:29 pm

Wow- three years? That gives me perspective. I give you credit for not giving up. Out of curiosity, how long were you sick before modifying your diet?

mzh · Post by **mzh** » Sun Mar 17, 2013 8:04 pm

8 years! My MC started June 6, 2002. It was that definite. On Entocort from 2005 to Jan 7, 2013. Went gluten-free Feb 1, 2010.

I just hope I stay off Entocort but I will always be careful with my diet regardless.

Gabes-Apg · Post by **Gabes-Apg** » Sun Mar 17, 2013 8:24 pm

I had mild symptoms for 2-3 years, chronic symptoms for 3 months (I was 80% GF/YF/LF during this period)

once i removed all major triggers 100% (Gluten, Yeast, Soy, Dairy, nuts, raw veges, raw fruit) followed an easy to digest low inflammation, leaky gut healing eating plan. I attained remission in under 2 years.
only meds were small amount of questran light/immodium for the first few months post Dx.