Enterolab Results are in

birdlover3 · Post by **birdlover3** » Fri Mar 08, 2013 6:48 pm

Hi. I just received my Enterolab results. Where is it that I can view other people's test results. Pretty sure they are here someplace. I showed a "14" for gluten (report says under 10 is good) so now woudl like to know if a "14" is severe or just a little over. I showed sensitivity to OATS. Would it say "WHEAT" if that was an issue? Not sure completely how to interpret this.
Thanks, Barb

Post by **tex** » Fri Mar 08, 2013 7:50 pm

Hi Barb,

If you will post your results here, someone can interpret them for you. A 14 gluten score is a good solid positive result for gluten sensitivity. Higher scores usually just mean that the reaction has been going on for a longer period of time (the longer we allow the reaction to continue, the higher the antibody score goes).

An oat sensitivity means a sensitivity to oats. The antigliadin (gluten) antibody result shows that you are sensitive to wheat, barley, and rye.

You can view other test results here.

Tex

birdlover3 · Post by **birdlover3** » Sat Mar 09, 2013 8:44 am

tex wrote:Hi Barb,

If you will post your results here, someone can interpret them for you. A 14 gluten score is a good solid positive result for gluten sensitivity. Higher scores usually just mean that the reaction has been going on for a longer period of time (the longer we allow the reaction to continue, the higher the antibody score goes).

An oat sensitivity means a sensitivity to oats. The antigliadin (gluten) antibody result shows that you are sensitive to wheat, barley, and rye.

You can view other test results here.

Tex

Hi Everyone,
Tex suggested I post my Enterolab results here:

A + C) Comprehensive Gluten/Antigenic Food Sensitivity Stool Panel
(Combines Panels A and C at a discounted price)
Mean Value 11 Antigenic Foods 4 Units (Normal Range is less than 10 Units)

Fecal Anti-gliadin IgA 14 Units (Normal Range is less than 10 Units)
Fecal Anti-casein (cow’s milk) IgA 3 Units (Normal Range is less than 10 Units)
Fecal Anti-ovalbumin (chicken egg) IgA 1 Units (Normal Range is less than 10 Units)
Fecal Anti-soy IgA 1 Units (Normal Range is less than 10 Units)

It also says:
While all of the foods tested can be immune-stimulating, the hierarchy of reactions detected were as follows:

Food toward which you displayed most immunologic reactivity: Oat
Food for which there was no significant immunologic reactivity: Walnut, Cashew, Rice, Almond, White potato, Corn, Tuna, Chicken, Beef, Pork

Within each class of foods to which you displayed multiple reactions, the hierarchy of those reactions detected were as follows:

Grains:
Grain toward which you displayed the most immunologic reactivity: Oat

Tex has made some comments here to me. Can others please weigh in?

Thanks, Barb

jgivens · Post by **jgivens** » Sat Mar 09, 2013 1:16 pm

Next to my own, I have been really excited waiting to see your test results. I have yet to order the test, not wanting to tempt fate, I am waiting to get the order in the mail before I call and get the kit.

You are SO lucky!! You were not reactive to dairy products. What a wonderful thing. I am really hoping for the same kind of results. It looks like you caught this all in time so that really, the only things you are sensitive too are gluten and oats. We should all be so lucky.

Tex said it well when he said if you are gluten intolerant, you are gluten intolerant no matter how "low" your number is above 10. It doesn't meant that you can have gluten sometimes and get away with it because you are "only" a 14. It just means that you have not had the sensitivity long enough to have an even higher number. That is a good sign because it may mean that less damage has been done to your intestine.

I'd be celebrating if I were you with a gluten-free something!

birdlover3 · Post by **birdlover3** » Sat Mar 09, 2013 1:58 pm

jgivens wrote:Next to my own, I have been really excited waiting to see your test results. I have yet to order the test, not wanting to tempt fate, I am waiting to get the order in the mail before I call and get the kit.

You are SO lucky!! You were not reactive to dairy products. What a wonderful thing. I am really hoping for the same kind of results. It looks like you caught this all in time so that really, the only things you are sensitive too are gluten and oats. We should all be so lucky.

Tex said it well when he said if you are gluten intolerant, you are gluten intolerant no matter how "low" your number is above 10. It doesn't meant that you can have gluten sometimes and get away with it because you are "only" a 14. It just means that you have not had the sensitivity long enough to have an even higher number. That is a good sign because it may mean that less damage has been done to your intestine.

I'd be celebrating if I were you with a gluten-free something!

Thanks Jane.
I do think this is good news. I need to now gather information about what this all means. IT is extremely overwhelming to me to think about this. I went off the Cymbalta and am really not doing well at all. I hoped that I could wait until I was done with my Budesonide regiment, be sure all was 'normans' before starting a new anti-depressant, however I feel so absolutely awful that this morning, my doc put me on Prozac (low dose). I have taken it before with no problems so I'm hoping that it will not cause issues this time either. I definitely was not going back on Cymbalta. I'm afraid I'm going to have to wait a little while to let the Prozac kick in before I can even think of changing my food habits. I'm just too overwhelmed and yucky feeling right now to concentrate.... Grrrrr... depression is horrible.

But I can celebrate as you said that my results were good. I just wonder WHY when I'm 60 all of a sudden I'm gluten intolerant. I don't get that.....

Barb

jgivens · Post by **jgivens** » Sat Mar 09, 2013 2:27 pm

Something triggered the gene tag you have for gluten intolerance. Could be that the Cymbalta did it, could be that prolonged stress did it.

You will probably never know that. I could ask the same question about myself--why after over 1/2 a year of being gluten-free did I suddenly start with diarrhea and all the other symptoms of MC? I could think that I was responding to years of being on PPIs and I probably have had MC for years and just didn't have constant diarrhea, or diarrhea so bad that my life became impossible. Most probably it was from 4 years of prolonged stress.

Sometimes dwelling on the whys, don't get us anywhere and especially when you are depressed, you might want to save your energy to figure out what is next for you in treating this illness. Depression is rough and you are right to prioritize and figure out what comes first--the emotional stability or diet. Fortunately, this is a slow moving disease so you can buy yourself some time.

I wish for you mental stability and a health gut!

t girl · Post by **t girl** » Sat Mar 09, 2013 5:28 pm

Jane, did you order your enter plan yet? I got mine Thursday!!

jgivens · Post by **jgivens** » Sat Mar 09, 2013 6:27 pm

I was waiting for the order from the Dr., leaving nothing to chance.

It came today so I am going to order it online tonight or tomorrow. I pity the poor FedEx man if our kits go back on the same day! He'll never know what precious cargo he is helping to ship!

birdlover3 · Post by **birdlover3** » Sat Mar 09, 2013 7:06 pm

jgivens wrote:Something triggered the gene tag you have for gluten intolerance. Could be that the Cymbalta did it, could be that prolonged stress did it. You will probably never know that. I could ask the same question about myself--why after over 1/2 a year of being gluten-free did I suddenly start with diarrhea and all the other symptoms of MC? I could think that I was responding to years of being on PPIs and I probably have had MC for years and just didn't have constant diarrhea, or diarrhea so bad that my life became impossible. Most probably it was from 4 years of prolonged stress.

Sometimes dwelling on the whys, don't get us anywhere and especially when you are depressed, you might want to save your energy to figure out what is next for you in treating this illness. Depression is rough and you are right to prioritize and figure out what comes first--the emotional stability or diet. Fortunately, this is a slow moving disease so you can buy yourself some time.

I wish for you mental stability and a health gut!

Jane, Thank you for your kind words. With the depression I have with withdrawal of the Cymbalta (which is just overwhelming) and the MC problems, which are also over-whelming, and now to find out the gluten issue (which is over-whelming also since I don't know what to do about it....) I feel that I just cannot cope and end up on the floor in a crying spree. I know I will be able to cope and figure out the gluten issue when I get feeling better...right now nothing is "copeable" so I have to just give it up and try to heal my brain first I think, or my stress over this whole situation is not going to help me.

I think you are right...it's either the Cymbalta, or stress or both. I owned my own business for 15 years and stress was eating at me big time. I sold the business last spring. I wouldn't doubt that it played a big part as I was burnt out and stressed out.

Putting one foot in front of the other right now is what I have to concentrate on. I seem to try to do everything 'just right' therefore I want to do the gluten-free thing RIGHT NOW and get down on myself that I'm not, but I have to tell myself to step back, calm down, relax and realize nothing is going to happen overnight here. It's only been 24 hours that I got the results of the tests....I need to collect information on what gluten-free is all about, what I CAN eat, instead of concentrating or freaking over what I will NOT be able to eat.

Where should I look on the forum to really get a good handle on good foods, yes foods and no foods, recipes, stores, brands, etc. etc?? Even though I'm not doing it yet, maybe I can start to gather information.

I appreciate your support and thoughts. Barb

patc73 · Post by **patc73** » Sat Mar 09, 2013 7:24 pm

When I got my Enterolab results back, everything was under 10 or "normal". Soy was a 5. I found out last fall that I am actually allergic to soy. What does that mean? And I KNOW I can't tolerate gluten or dairy, because I was in a remission for two full months, then "experimented" with dairy first, then gluten (by accident), and I'm now in a flare that's lasted about a month and shows no sign of improving yet. Two steps forward, one step back! And I know I am not IgA deficient, because I had the blood test last year.

I'm the exception that proves the rule, I guess.

birdlover3 · Post by **birdlover3** » Sat Mar 09, 2013 7:43 pm

patc73 wrote:When I got my Enterolab results back, everything was under 10 or "normal". Soy was a 5. I found out last fall that I am actually allergic to soy. What does that mean? And I KNOW I can't tolerate gluten or dairy, because I was in a remission for two full months, then "experimented" with dairy first, then gluten (by accident), and I'm now in a flare that's lasted about a month and shows no sign of improving yet. Two steps forward, one step back! And I know I am not IgA deficient, because I had the blood test last year. I'm the exception that proves the rule, I guess.

Oh Pat, how frustrating. That is really strange. I wonder what happened with your testing...sounds like something went wrong with the lab tests? Gee I never thought about maybe the tests wouldn't be accurate, but like you said, maybe something in your system. Well, I'd love to hear about gluten free eating. I wish you the best and that you get straightened out quickly. Have you done the Busdesonide regiment? Barb

MBombardier · Post by **MBombardier** » Sat Mar 09, 2013 8:03 pm

Pat and I are in the same boat. Not IgA-deficient, but the labs don't show any sensitivity. However, as you can see from my profile, I am grain-free, legume-free, dairy-free, and egg-free because of my experience with them over the last couple of years. I don't "experiment", but on occasion, I accidentally discover that I am not as well as I think I am.

Post by **tex** » Sat Mar 09, 2013 10:05 pm

Barb,

Here's one place where you can find hundreds of good, tasty, gluten-free recipes:

http://www.perskyfarms.com/phpBB2/viewforum.php?f=7

And here is a list of foods and ingredients that may contain gluten, so we have to avoid them:

http://www.perskyfarms.com/phpBB2/viewtopic.php?t=733

Tex

maestraz · Post by **maestraz** » Sat Mar 09, 2013 10:32 pm

Barb, I totally sympathize with how overwhelmed you must feel.

When I was DX, I was taking Celexa, which I had to stop, since SSRIs seem to aggravate MC, and have been taking Wellbutrin since then with good results, along with alprazolam as needed for anxiety.

I, too, felt extremely discouraged at the outset of my MC journey. But it has turned out to be a very manageable thing, thanks in large part to the folks on this board. To me, it is crucial to find ways to manage stress, which I have found aggravates my MC a lot. Exercise has done that for me.

I have found giving up gluten to be a relatively easy thing because of how good I felt fairly soon after I did it. I did Entocort/budesonide and it was immensely helpful toward relieving symptoms while I got diet under control.

I recommend a magazine called Living Without to help you get started with GF living. There is another magazine called Gluten Free Delight, but I like Living Without better.

You have found a great community here. No question will go unanswered, and everyone knows how you're feeling.

Leah · Post by **Leah** » Sun Mar 10, 2013 1:58 am

Hi Barb.
I know it's hard for you right now to realize how lucky you are only intolerant to gluten and not dairy, soy, and eggs also. As you do your research, you will see that going gluten free if fairly easy and gets easier once you do it for a while. It's basically staying away from anything made from wheat, barley, and rye... and for you oats. The foods that you are probably use to eating, but will have to find exchanges for are bread, certain cold cereals, baked goods, and pasta. Those are the big ones, but rice and corn pasta is very good, Chex cereals are GF, and GF bread is OK toasted. Maybe you can start there and once you get that down, you can get into understanding the smaller things (like there is gluten in regular soy sauce! )

Just take it a step at a time until you are completely GF. I have a feeling that once you are for a while, you will feel so much better... even your depression.
Good luck. I am sending good thoughts your way.

Leah

PS. helpful hint: At the end of the ingredients list on the label, there is an ALLERGEN LIST. It will say something like "contains wheat,milk"