Any thoughts about people with MC & related issues being an organ donor? I've indicated on my drivers license that anything can be used, but as I lie in bed with my eyes burning worse than ever it makes me wonder if that's such a good idea. Doctors insist that my health is great aside from the inconvenience of MC (haha - its life altering) so there might not be any hesitation to use potentially unhealthy organs.
I'm not sure why it popped into head but it would be an awful thing to pass on defective parts to someone who is looking for a miracle. I don't know much about transplants but could issues from someone with MC be passed along to someone without it?[/quote]
Organ donor question
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I've always wanted them to spend a day in my shoes or even have to be a family member that lives with it and then tell me it's just a nuisance. Ah, but then they'd have to open their eyes and realize everything is linked to food. Silly me.
DebE,
That's a good question. In general, either blood or organ donations from people who have an autoimmune disease are usually declined, as far as I am aware. It's not so much that the risk of disease transmission is particularly high, but the fact that immune system suppressants are required to prevent organ rejection means that any genetic risks that might be introduced will be greatly amplified. And as we all know, bad things can happen when the immune system is suppressed, so it's best to minimize any risks that are controllable.
That said, as Ant jokingly pointed out, it's possible that some authorities may not be aware that MC is an autoimmune disease, so they might not see a problem, but I agree with Ant, those folks are clearly out of touch with reality.
Tex
That's a good question. In general, either blood or organ donations from people who have an autoimmune disease are usually declined, as far as I am aware. It's not so much that the risk of disease transmission is particularly high, but the fact that immune system suppressants are required to prevent organ rejection means that any genetic risks that might be introduced will be greatly amplified. And as we all know, bad things can happen when the immune system is suppressed, so it's best to minimize any risks that are controllable.
That said, as Ant jokingly pointed out, it's possible that some authorities may not be aware that MC is an autoimmune disease, so they might not see a problem, but I agree with Ant, those folks are clearly out of touch with reality.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
This is interesting. We were at a Colorado Avalanche game last night and my husband stopped to talk to the folks at the bone marrow donor booth. He wanted to know if he could be tested to be on their registry. Of course he can't because he's on coumadin for an artificial aortic valve related to having an ascending aortic aneurysm that dissected. Plus he's celiac...but I don't think that even came up in conversation..
Meanwhile I'm just standing there smiling at these folks since I'm on their registry since I'm a quasi regular blood donor (gave last week actually). I only really didn't give blood when I was taking something on the no no list or immodium. Wow..should I not be giving blood??
HockeyMom
Meanwhile I'm just standing there smiling at these folks since I'm on their registry since I'm a quasi regular blood donor (gave last week actually). I only really didn't give blood when I was taking something on the no no list or immodium. Wow..should I not be giving blood??
HockeyMom
"Do what you can, with what you have, where you are"-Teddy Roosevelt
MichiganBlood calls me all the time, as I am Rh negative and they love my blood. However, I have not given since I have felt so crummy. I did tell them the last time they called and since the person I talked to didn't have a clue, she wanted me to talk to one of their nurses who was equally clueless. I finally ended it by telling them not to call me for "awhile". I think you are right about the blood banks not recognizing it as an autoimmune disease, and in fact, not having the slightest idea of what I was talking about. If its not on their official list, then you are fair game!
I have been on the bone marrow registry for years, but I am sure that they wouldn't take me now. They are extremely picky because they should be. I think that the blood banks need to be also.
I have been on the bone marrow registry for years, but I am sure that they wouldn't take me now. They are extremely picky because they should be. I think that the blood banks need to be also.
Jane
Diagnosed with Lymphocytic Colitis 12/19/12
"When it gets dark enough,you can see the stars."
Charles A. Beard
Diagnosed with Lymphocytic Colitis 12/19/12
"When it gets dark enough,you can see the stars."
Charles A. Beard
Jane,
The next time the question comes up, associating MC with the other inflammatory bowel diseases might make it clear weather or not MC patients qualify as donors.
If they accept donations from people who have Crohn's disease, for example, then someone who has MC should also qualify.
Tex
The next time the question comes up, associating MC with the other inflammatory bowel diseases might make it clear weather or not MC patients qualify as donors.
If they accept donations from people who have Crohn's disease, for example, then someone who has MC should also qualify.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
I find it serendipitous that just this morning I was contacted by the Be A Match registry for bone marrow, wishing an update on my current state of health. I missed seeing your email, Tex, but I told them that CC was classified as an IBD and that it was an autoimmune illness.
I have received a reply thanking me for my service of 15 years, but saying that they have removed me, as they have to take into consideration my well-being as well as the recipient and certain medications I might have to take as a donor might be detrimental to my health.
So, while I am sorry that I no longer qualify as a donor, I also would not want to put myself or someone else at risk with this ugly disease. I had a busy morning before I even got out of bed...will start a new thread about a topic that has been bothering me...
I have received a reply thanking me for my service of 15 years, but saying that they have removed me, as they have to take into consideration my well-being as well as the recipient and certain medications I might have to take as a donor might be detrimental to my health.
So, while I am sorry that I no longer qualify as a donor, I also would not want to put myself or someone else at risk with this ugly disease. I had a busy morning before I even got out of bed...will start a new thread about a topic that has been bothering me...
Jane
Diagnosed with Lymphocytic Colitis 12/19/12
"When it gets dark enough,you can see the stars."
Charles A. Beard
Diagnosed with Lymphocytic Colitis 12/19/12
"When it gets dark enough,you can see the stars."
Charles A. Beard