TSH levels... Tex?

Feel free to discuss any topic of general interest, so long as nothing you post here is likely to be interpreted as insulting, and/or inflammatory, nor clearly designed to provoke any individual or group. Please be considerate of others feelings, and they will be considerate of yours.

Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh

Leah
King Penguin
King Penguin
Posts: 2533
Joined: Thu Feb 02, 2012 10:16 pm
Location: San Francisco Bay Area

TSH levels... Tex?

Post by Leah »

Hi there. So my doctor wanted me to retest my TSH level again. It came out 3.66. According to what I am reading, it shouldn't be any higher than 3... and some say 2. My Endo had refused to do the free T3 and 4, but I'm hoping he will change his mind.... or send me on to someone else. My mid afternoon body temp today is 96.8. Yesterday, it was 95,7! So, am I wrong to think that I am being under treated for my hypothyroidism?

Leah
User avatar
tex
Site Admin
Site Admin
Posts: 35072
Joined: Tue May 24, 2005 9:00 am
Location: Central Texas

Post by tex »

Leah wrote:So, am I wrong to think that I am being under treated for my hypothyroidism?
Nope, you are quite correct — you're being undertreated (probably significantly), based on your TSH and your temp.

If you mention your low body temp, you'll probably get the same old BS that I got, when I pointed that out to my doctor. His response was, "Lots of people in the general population have low body temp, and they aren't diagnosed with hypothyroidism, so that low body temp doesn't mean anything". :lol:

Well doh! What it really means that many people are hypothyroid, and their doctors have failed to properly diagnose them. :roll:

Tex
:cowboy:

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Leah
King Penguin
King Penguin
Posts: 2533
Joined: Thu Feb 02, 2012 10:16 pm
Location: San Francisco Bay Area

Post by Leah »

Well, after e-mailing my doctor ( GP) and reiterating my body temp and hair loss, she is raising my Synthroid by 25 mcg. and I will retest in 6 weeks. They are still unwilling to do the other tests right now ( eye roll), but I am hoping that this at least takes care of these sumptoms.

Thanks for answering.
Leah
User avatar
tex
Site Admin
Site Admin
Posts: 35072
Joined: Tue May 24, 2005 9:00 am
Location: Central Texas

Post by tex »

That's probably not enough, but at least it's a step in the right direction. I'm guessing it will raise your temp roughly half a degree.

Good for her. :thumbsup:

Keep us posted.

Tex
:cowboy:

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
KD
Adélie Penguin
Adélie Penguin
Posts: 79
Joined: Mon Mar 09, 2009 3:51 pm
Location: Nevada

Post by KD »

My Endo is very well published Dr. Robert Fredricks. One of his findings involved absorption of thyroid meds in the gut and how hydrochloric acid in the stomach and digestive acids in the small intestines interfere with the absorption of thyroid meds. Some of this is why you are supposed to take them fasting. He takes a different twist and has done research and published his articles comparing taking meds orally with sublingually. There is much better absorption when taken sublingually. I have been doing this for years. It works best with Synthroid and Cytomel as they dissolve well they don't even taste bad, kind of sweet. Generic versions and desiccated versions don't really dissolve but become somewhat granular and the desiccated doesn't taste very good but you get used to it. He believes that even though they do not dissolve well it is better than just popping the pill. Once they become granular swallow with plenty of water. The first thing I do in the morning is pop my thyroid under my tongue. It should really help all of those who take thyroid to have better results.
Two roads diverged in a wood, and I took the one less traveled by and that has made all the difference.
Robert Frost
Leah
King Penguin
King Penguin
Posts: 2533
Joined: Thu Feb 02, 2012 10:16 pm
Location: San Francisco Bay Area

Post by Leah »

Interesting. I bet Kaiser doesn't even prescribe it in sublingual form.

Tex, I have a feeling that if they get my TSH level to 3 or under, the won't up my dose any more. We'll see if this does the job.

Leah
User avatar
tex
Site Admin
Site Admin
Posts: 35072
Joined: Tue May 24, 2005 9:00 am
Location: Central Texas

Post by tex »

Leah,

Yep, most doctors appear to be mesmerized by TSH results, and they simply aren't capable of looking any further. :roll:

There is no special sublingual form of thyroid supplements, you just use the tablets as if they were designed to be used sublingually. Before Forest Laboratories reformulated Armour (a few years ago), it worked much better sublingually than it does now. The revised version has a semi-hard shell, and many users have complained that it doesn't work as well for them as the original formulation. It's a shame that so many companies feel obligated to "improve" a perfectly good product until it doesn't work as well for many of their customers. :roll:

Tex
:cowboy:

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
KD
Adélie Penguin
Adélie Penguin
Posts: 79
Joined: Mon Mar 09, 2009 3:51 pm
Location: Nevada

Post by KD »

Tex,
The reason Forest Laboratories reformulated it was due to FDA interference. They began to change their product to use a different filler that was much less expensive and the FDA actually shut them down for a period of time. Because they are a natural product that the FDA would rather see disappear sot people would be required to by patent medicines. Forest Labs was forced by the FDA to reapply for a patent and reformulate their products to their standards. Most people I know have switched to Natuthroid.
Two roads diverged in a wood, and I took the one less traveled by and that has made all the difference.
Robert Frost
User avatar
tex
Site Admin
Site Admin
Posts: 35072
Joined: Tue May 24, 2005 9:00 am
Location: Central Texas

Post by tex »

I remember reading "rumors" about that, but I never checked it out. As I said, though, it doesn't pay to mess with a product that works well, and they shouldn't have been surprised at the FDA response, because surely they should have been aware of the FDA's attitude about old products that are essentially grandfathered by the laws, to circumvent the need for FDA approval. I'm sure the FDA is always on the lookout for an easy opportunity to "rein in" such products. :roll:

I may have to look into Naturethroid. I remember checking it out back when all the rumors about Armour were flying, in case I needed to switch, but I never ran out of Armour, so I didn't switch, at the time.

Tex
:cowboy:

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
ladyathome
Adélie Penguin
Adélie Penguin
Posts: 101
Joined: Thu Feb 14, 2013 10:08 am

Post by ladyathome »

My Osteopathic Doc only uses Naturethroid. She says it's more like the old Armour. She also thinks it's "cleaner" than Armour. I have tried to crush it and let it sit under my tongue, but I end up swallowing too soon I'm sure.

This site has lots of good info: http://www.stopthethyroidmadness.com/
KD
Adélie Penguin
Adélie Penguin
Posts: 79
Joined: Mon Mar 09, 2009 3:51 pm
Location: Nevada

Post by KD »

Tex,
When I was on Colchecine for my pericarditis I learned more about the crooks in the FDA. A few years ago the FDA decided that Colchecine (usually used for gout, but one of the primary treatments for pericarditis) had not been ever approved by by the FDA because it is older than the FDA. They found a lab that was willing to go through the process thus they had a patent. The generic form went away and the cost of the drug went from $0.36 to$6.00 a pill. I bought mine in in Canada!!!
Two roads diverged in a wood, and I took the one less traveled by and that has made all the difference.
Robert Frost
User avatar
tex
Site Admin
Site Admin
Posts: 35072
Joined: Tue May 24, 2005 9:00 am
Location: Central Texas

Post by tex »

Yep, that sounds like the good old FDA. The agency was created to protect the consumer from unscrupulous companies selling snake oil, and it eventually evolved to the opposite extreme.

Now their goal appears to be to make sure that Big Pharma is guaranteed the right to maximize their profits at the consumer's expense. And a lot of the drugs they approve are only marginally better than placebos, which means that they are pretty close to snake oil.

Tex
:cowboy:

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
User avatar
MBombardier
Rockhopper Penguin
Rockhopper Penguin
Posts: 1523
Joined: Thu Oct 14, 2010 10:44 am
Location: Vancouver, WA

Post by MBombardier »

I have discovered that when I leave my Armour pill out over night it is much easier to chew into a paste in the morning. I try to keep the paste under my tongue for a bit, but it doesn't really absorb in the short time I can stand it there. I generally swish it around in my mouth with some water and swallow it down.

One thing I do is wait at least half an hour before taking any other pills (like vitamins), and at least an hour before eating. In the afternoons, I make sure that I have not eaten for at least three hours before taking my afternoon dose, and then I wait at least an hour before eating.
Marliss Bombardier

Dum spiro, spero -- While I breathe, I hope

Psoriasis - the dark ages
Hashimoto's Thyroiditis - Dec 2001
Collagenous Colitis - Sept 2010
Granuloma Annulare - June 2011
Eric
Adélie Penguin
Adélie Penguin
Posts: 52
Joined: Tue Apr 02, 2013 8:55 am
Location: FL

Post by Eric »

Please don't allow your doc to treat you based solely on TSH. We do our own labs through an internet service (not sure if I can provide the link or not) and get a full thryoid panel for about $100 (without insurance, but you can submit the claim after the fact to try for reimbursement). I have a problem converting T4 to T3 so my TSH always looks normal since the pituitary detects plenty of T4 and sees no need to increase TSH. I switched once to Naturthroid but didn't do great and that doc was out of state which made it hard to adjust doseage as needed. My current doc wants to try Armour soon. I need something that contains T3 and levothyroxine is not cutting it despite my allopathic doc increasing the dose every appt. I reiterate ladyathome's suggestion for stop the thyroid madness - that's been a great resource for us.
Leah
King Penguin
King Penguin
Posts: 2533
Joined: Thu Feb 02, 2012 10:16 pm
Location: San Francisco Bay Area

Post by Leah »

I tried to insist on the other tests, but the doc. wasn't going for it. Since I am a Kaiser patient, there is no reimbursement for anything. If I have to go out and find a natural doctor to do the test and prescribe the meds, I will, but I'd rather not incur that cost. I don't feel really bad ( my symptoms are minor), so I am going to see if the Levothyroxine works for me at a higher dose.

Leah
Post Reply

Return to “Main Message Board”