An update on my situation

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JeanIrene
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Post by JeanIrene »

Charlotte, I'm sorry about your husband-- just what you needed! I'm happy that things sound like they are getting better for you though. You've had one heck of a couple weeks.

Jean
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tex
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Post by tex »

Charlotte,

That's a heck of a note, for sure, but that's good news that you're not having to deal with a flare along with it.

Tex
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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Post by jgivens »

What a miserable situation, Charlotte. I am so sorry. I hope that you can conquer this flare so that when your husband is back in the hospital, it will be no big deal for you to accompany him. Shoulder joints are so painful.

Keep posting and letting us know how you and he are doing when you can.
Jane
Diagnosed with Lymphocytic Colitis 12/19/12
"When it gets dark enough,you can see the stars."
Charles A. Beard
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Martha
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Post by Martha »

Dear Charlotte,

I'm so sorry to hear about your husband's fall. I hope it can be taken care of with the least possible amount of pain and suffering, and that if he has to have surgery, as you expect, that all goes well with that.

And here's hoping that your flare is over, and you can feel reasonably well and able to care for your husband.

Love,
Martha
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Post by Sheila »

It's always something, isn't it? I hope you can maintain Normans through this latest ordeal. With luck, your husband will get through surgery without complications and you will remain healthy.

Hoping for the best, Charlotte,

Sheila W
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wonderwoman
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Post by wonderwoman »

Thanks for all your well wishes for me and my husband. He hasn’t been able to do anything but sit in the recliner and watch TV. We just finished day two and can expect another 6-8 weeks of this. It sure cramps my style. It’s get me this, do that, more ice, more tea, it’s hot in here etc, etc, etc. He hasn’t showered since Wednesday morning and he says he smells like a water buffalo. I agree. Still wearing the clothes he started on Wed. Because of the sling we can’t get his T and sport shirt off. Tomorrow morning we are going to attempt to get him in the shower. I plan to make a sling out of his bath robe belt to keep is arm up while in the shower.

He makes his own breakfast and lunch and depending upon what I am having, occasionally his own evening meal. Now he can’t even open the cap on the bottle of water or his pill container. I’m back to making 3 meals for him and different ones for myself. I’m eager to hear what the surgeon will say on Monday afternoon.

My heart goes out to the gals here who have husbands and children at home that they have to cook for and then are not able to eat a great deal of it.

On a positive note, I didn’t have a BM yesterday and today I had two NORMANS. Still on two Budesonide a day.
Charlotte

The food you eat can be either the safest and most powerful form of medicine, or the slowest form of poison. Ann Wigmore
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DebE13
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Post by DebE13 »

Is a bone density test recommended to establish baseline? I never though of having one. I have been taking entocort since February of 2011.

Charlotte, I hope you have success with the turkey soup. It's so frustrating not being able to pinpoint problem foods. Our diets are very similar and I wonder if I should try the turkey soup. Norman doesn't care for me much so it could be worth the effort. After a week of the soup , would that be enough time for the D to become something more desirable?
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tex
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Post by tex »

DebE,

Yes, if you have been avoiding gluten for at least a year, you should be able to tell in less than a week, if a food is going to be OK for you. Actually, you should be able to tell in half that time, but more time might be necessary (as long as it isn't obviously making your symptoms worse).

Tex
:cowboy:

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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DebE13
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Post by DebE13 »

Hmmm, in the big scheme of things a week is a blink of an eye. I may have to reconsider that method to figure out what's up with me. I'll have to work up a mental plan in my head because I will have a hard time with that limitation . Although, when I was first diagnosed in 2007 my chiropractor was the first to bring up leaky gut and diet. At that time I clearly remember telling myself I would NEVER give up my favorite foods no matter what. Guess I've made some progress. Almost seems like I would be giving up within sight of the finish line. That's kind of a bad analogy since MC will never end, but you get what I mean.
:smile:
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DebE13
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Post by DebE13 »

Oh- one more question. I can still be taking entocort 3mg every third or forth day? At that dose does it still mask sensitivities? Or just deal with those after the first hurdle?
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tex
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Post by tex »

At a dosage rate that low, it won't mask much. Any significant food sensitivities should cause symptoms.

Tex
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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Gloria
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Post by Gloria »

Charlotte,

I'm so sorry to hear about your husband's shoulder. I haven't cooked for my husband for years, either. I told him three years ago to bear with me for two weeks while I went on an elimination diet. He's still bearing with my diet. :???: I hope you can get through this and he can take a shower soon! Great news that Norman is still visiting.

Gloria
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Post by Eric »

Sheila wrote: So, do we build up a reaction to foods we tend to overeat?
Sheila,
Tex and others have much more practical "field" experience so I'm inclined to listen to them, but some would say that a damaged/inflamed GI tract is likely permeable (leaky gut) which allows undigested food particles/proteins into the bloodstream where the body recognizes them as invaders and develops antibodies to fight them. This would mean that, unless the intestines are healed to some extent, any food we regularly eat will/may result in an intolerance or some type of immune response. Some believe this is why the IgG allergy test sometimes looks like a copy of your grocery shopping list. I don't know enough about the Enterolab tests to know if they work differently.
wonderwoman wrote:I had my TSH checked this morning and they called with the results. It is 2.41 so it is within normal range.
Now I will order three month refill of Levothyroxine .75
How are your thyroid symptoms? Do you feel "normal"? Using TSH levels to assess thyroid function works for some but not all. If you feel something's "off" you may benefit from a full thyroid panel. Just a thought.
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DebE13
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Post by DebE13 »

That is so true! Years ago I had blood tests for food sensitivities and eveything I was supposed to eliminate from my diet was on my grocery list.
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