After Budesonide stops, when would I relapse?

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Leah
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Post by Leah »

EXACTLY! just stay away from that nasty gluten Barb :) Was the flax seed cereal GF ? Even though you were able to get off the Entocort, it doesn't mean you are done healing. A year later, I am STILL healing.

I can't remember who it was here who recently had to add a little fiber to balance out. I think she ate a little dried fruit and then her doctor had her take a small dose of Citricel I believe. Don't quote me on that one though. Beans might be a good way to get some fiber in. I love beans and eat them often ( and was very happy when I could add them back into my diet). If you can handle some salad, that also might work. At least it doesn't have all the sugar fruit has.

Good luck
Leah
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birdlover3
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Post by birdlover3 »

Thanks Tex.....I understand more now. Yes, I am eating dairy, although very little. Why do you ask?
Diagnosed with Collagenous Colitis November 2012.
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birdlover3
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Post by birdlover3 »

Leah wrote:EXACTLY! just stay away from that nasty gluten Barb :) Was the flax seed cereal GF ? Even though you were able to get off the Entocort, it doesn't mean you are done healing. A year later, I am STILL healing.

I can't remember who it was here who recently had to add a little fiber to balance out. I think she ate a little dried fruit and then her doctor had her take a small dose of Citricel I believe. Don't quote me on that one though. Beans might be a good way to get some fiber in. I love beans and eat them often ( and was very happy when I could add them back into my diet). If you can handle some salad, that also might work. At least it doesn't have all the sugar fruit has.

Good luck
Leah
Leah, I like beans. What do you recommend? How do you prepare them?

How will I know if I can handle salad? I get confused since I don't have "D" now, so not sure how I will know if it's hurting me or not.

Yes, the Flaxseed cereal is GF...I made sure of that.

I am eating fruit with supper as a 'salad'. Sometimes it's canned fruit, but yesterday I cut up an apple and added fresh strawberries.

I'm scared to at Citracel.

Please continue to help me...I so much appreciate it.
Diagnosed with Collagenous Colitis November 2012.
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tex
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Post by tex »

Barb wrote:Thanks Tex.....I understand more now. Yes, I am eating dairy, although very little. Why do you ask?
I originally suspected diary, because dairy often causes C, but then I checked your test records and noticed that you tested negative to casein, so that isn't your problem. Unfortunately I forgot to edit the question about dairy out of my post, though. Sorry about that.

Leah may be able to offer better advice on the salads, because I never was much of a salad eater, but IMO the main thing to avoid in salads (until you have more healing) is probably iceberg lettuce. As long as you're not having D, it's probably not hurting you.

Tex
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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Post by Leah »

Hi BL.
I stated adding salad in small doses about six months in. I use mostly red leaf because it is very soft. Baby salad greens work also. At first, I just tossed it with olive oil and vinegar with salt and pepper. Then i added avocado, nuts, and protein ( meat or chopped egg). Sometimes, I even throw in some kidney beans.

Speaking of beans, I make white bean soup with ham. I don't do split pea, but that is also easy to make. I also can eat canned Bush's Original baked beans. They are sweet, so don't eat anything else sweet with your meal. I usually have them when i eat chicken sausages.
I also love refried beans, so I do the mexican thing and just make sure i use corn tortillas and not flour. i had rice and beans topped with avocado for lunch :)

How will you know if these things are bothering you? we are all different, but I would make sure to just try one new thing every three days. If C is your issue, then I would think that pain and/or bloat would be your clue. If it makes you a bit more regular, then you have a winner!

Let me know how it goes!
Leah
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Lesley
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Post by Lesley »

Both Carol and I have C dominated MC. I honestly cannot tell if, when I start to get constipated, whether it is my version of a flare, although I do sometimes have gurgles, mucous, and soft serve stools multiple times a day for a few days. When I have C I usually don't have gurgles. I just feel as though everything has turned to concrete.
Carol's doc told her to use Citrucel in smallish doses to help with the C. I also do it. A teasp. 2x a day, though that is often not enough for me, and I also take Dr. Schultze's Intestinal formula (Jean recommended it) or something called Swiss Kris. Trouble is when I finally can go it's not Norman, though it's not D either.

You are very lucky you can eat almost anything. You will probably heal fairly fast if you watch what you eat, and will be able to eat a lot more foods.
I am sensitive to SO much.

:neutral:
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Post by Julie »

Hi,

My stomach growled a lot when I was on the meds. Now that I'm of the meds, it's better.

You do have to realise that corticoids are quite heavy for the stomach. I am not only MC patient. i have also a hiatus hernia and chronic reflux. My doc told me that these meds are heavy for the stomach.

Good luck with getting of the meds! I had some trouble, but at the end of it: I FEEL GREAT!

Julie
It doesn't matter how many times you fall, but how many times you get up en go for it again. HOPE !!!!
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tex
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Post by tex »

Julie wrote:I had some trouble, but at the end of it: I FEEL GREAT!
You had some very tough times for a while, so it's good to hear that you're feeling so well now.

Tex
:cowboy:

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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birdlover3
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Post by birdlover3 »

Lesley wrote:Both Carol and I have C dominated MC. I honestly cannot tell if, when I start to get constipated, whether it is my version of a flare, although I do sometimes have gurgles, mucous, and soft serve stools multiple times a day for a few days. When I have C I usually don't have gurgles. I just feel as though everything has turned to concrete.
Carol's doc told her to use Citrucel in smallish doses to help with the C. I also do it. A teasp. 2x a day, though that is often not enough for me, and I also take Dr. Schultze's Intestinal formula (Jean recommended it) or something called Swiss Kris. Trouble is when I finally can go it's not Norman, though it's not D either.

You are very lucky you can eat almost anything. You will probably heal fairly fast if you watch what you eat, and will be able to eat a lot more foods.
I am sensitive to SO much.

:neutral:
Lesley, Do you plan to be tested by Enterolab? I see that you don't know what foods you are sensitive to. Barb
Diagnosed with Collagenous Colitis November 2012.
Julie
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Post by Julie »

Thx Tex!

Hope it works out for everybody here!

Julie
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Lesley
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Post by Lesley »

Barb,
I have been tested. You will find my results in the area where tests results are published. I have also done the MRT.

Look there and count yourself lucky!
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birdlover3
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Post by birdlover3 »

Lesley wrote:Barb,
I have been tested. You will find my results in the area where tests results are published. I have also done the MRT.

Look there and count yourself lucky!
What is the MRT?
Diagnosed with Collagenous Colitis November 2012.
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