That's a good point about an official diagnosis. I'm going to stop worrying about that, too.
Hello, Hello, Hello!!
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
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Chocolate Rose
- Posts: 14
- Joined: Sat Apr 27, 2013 9:17 am
- Location: WA
Hi C Rose.
I know the shock can be quite something. I remember. I am here to tell you that this can be done . It just takes some time and dicipline. Because I am one of those people Tex is talking about who could not use the Enterolab tests, I had to do it the old fashioned way. How I did it is that I went Cold turkey on gluten, dairy, and then soy. I also took out any roughage, acid, coffee and tea, and nightshades. I stuck to that during my 6 months on Entocort ( Budesonide). I just kept telling myself that when I get the inflammation down and I am back to going only once a day, I can test some things back in.... and I have been able to add many things back in. That's the good news. I will however never go back to gluten and probably never be able to eat any quantity of dairy. I can tolerate a little soy. We are all different, but we all need healing time - doing what needs to be done during that time to actually get better.
When it comes to the Enzymes, it depends on what kind you take. . If you take something like "Lactaid", then that would help you break down the sugar in dairy, but it does nothing for the protein part. All enzymes break down different types of food. So, it might work for you if you take a lactaid right before you have dairy. it's just that you might want to give it up for a while while healing, and then re test it down the road.
Leah
I know the shock can be quite something. I remember. I am here to tell you that this can be done . It just takes some time and dicipline. Because I am one of those people Tex is talking about who could not use the Enterolab tests, I had to do it the old fashioned way. How I did it is that I went Cold turkey on gluten, dairy, and then soy. I also took out any roughage, acid, coffee and tea, and nightshades. I stuck to that during my 6 months on Entocort ( Budesonide). I just kept telling myself that when I get the inflammation down and I am back to going only once a day, I can test some things back in.... and I have been able to add many things back in. That's the good news. I will however never go back to gluten and probably never be able to eat any quantity of dairy. I can tolerate a little soy. We are all different, but we all need healing time - doing what needs to be done during that time to actually get better.
When it comes to the Enzymes, it depends on what kind you take. . If you take something like "Lactaid", then that would help you break down the sugar in dairy, but it does nothing for the protein part. All enzymes break down different types of food. So, it might work for you if you take a lactaid right before you have dairy. it's just that you might want to give it up for a while while healing, and then re test it down the road.
Leah
Wow, Jean, fantastic list! It looks like it was well-researched. Thank you. I've saved it to my bookmarks.
Welcome Chocolate Rose
There are others on the board who have both Diabetes and MC. I'm wondering what your numbers are for the diabetes diagnosis, both the fasting glucose level and your A1c. Those give a good indication of the severity of your diabetes. You've taken on a pretty restricted diet. Adding MC diet restrictions and histamine restrictions makes an even more restricted diet. It can be done, but you'll probably need to consider your nutritional needs, too.
Most of us who are dairy-free find suitable replacements in either almond or coconut milk. Unfortunately, there isn't a decent replacement for cheese. Hopefully you can eat eggs.
It sounds like you've had a pretty rough time with your MC. Most of us get our lives back once we make the appropriate dietary changes. You've come to the best place for information on dealing with MC.
Gloria
Welcome Chocolate Rose
There are others on the board who have both Diabetes and MC. I'm wondering what your numbers are for the diabetes diagnosis, both the fasting glucose level and your A1c. Those give a good indication of the severity of your diabetes. You've taken on a pretty restricted diet. Adding MC diet restrictions and histamine restrictions makes an even more restricted diet. It can be done, but you'll probably need to consider your nutritional needs, too.
Most of us who are dairy-free find suitable replacements in either almond or coconut milk. Unfortunately, there isn't a decent replacement for cheese. Hopefully you can eat eggs.
It sounds like you've had a pretty rough time with your MC. Most of us get our lives back once we make the appropriate dietary changes. You've come to the best place for information on dealing with MC.
Gloria
You never know what you can do until you have to do it.
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I do not have an official diagnosis. When I joined the forum my first question was whether I needed to have a colonoscopy and get diagnosed. Tex gave me the same answer, that in terms of treatment it didn't really matter. So I decided not to pursue a diagnosis. This approach is working for me. If I felt I needed medication to control things it would be different but I seem to be able to do things with diet alone.Chocolate Rose wrote:Tex, thanks for the reassurance about not testing. My discipline and dedication are due to fear about things getting even worse or having to add in meds.
That's a good point about an official diagnosis. I'm going to stop worrying about that, too.
Jean
Welcome CRose! I can't tell you much more than you've already heard and I don't want to overwhelm you with too much info. I know when I first started with this forum, I was so sick that I could not "take in" all the info.
I am still trying to get my diet figured out. I did Enterolab and really was afraid that I'd find out that dairy was going to be a problem, but not so! I am however, sensitive to eggs. It is fascinating how many things we cannot handle any more. A whole new lifestyle whether you wanted it or not, awaits you. You need to give yourself time to mourn your losses, and when done with that, it really does get much easier--especially with the help of the members here!
My diarrhea stopped at 15 days of Pepto. If I were to do it again, I would NOT take 8 pills a day, as I have been mostly constipated since early January---a welcome relief after 7-1/2 months of constant diarrhea, but certainly not normal and I'd like to see normal again some day. Sounds like you are not taking the dosage that is recommended and you will know soon whether you need all 8 pills a day, or if you can cut back or if something entirely different is needed. Good luck to you as you try to get control of a (pardon me) "shi**y disease!"
I am still trying to get my diet figured out. I did Enterolab and really was afraid that I'd find out that dairy was going to be a problem, but not so! I am however, sensitive to eggs. It is fascinating how many things we cannot handle any more. A whole new lifestyle whether you wanted it or not, awaits you. You need to give yourself time to mourn your losses, and when done with that, it really does get much easier--especially with the help of the members here!
My diarrhea stopped at 15 days of Pepto. If I were to do it again, I would NOT take 8 pills a day, as I have been mostly constipated since early January---a welcome relief after 7-1/2 months of constant diarrhea, but certainly not normal and I'd like to see normal again some day. Sounds like you are not taking the dosage that is recommended and you will know soon whether you need all 8 pills a day, or if you can cut back or if something entirely different is needed. Good luck to you as you try to get control of a (pardon me) "shi**y disease!"
Jane
Diagnosed with Lymphocytic Colitis 12/19/12
"When it gets dark enough,you can see the stars."
Charles A. Beard
Diagnosed with Lymphocytic Colitis 12/19/12
"When it gets dark enough,you can see the stars."
Charles A. Beard