Another Intolerance

maestraz · Post by **maestraz** » Sat Apr 27, 2013 4:43 pm

Gloria, if you can tolerate any sort of bacon, Brussels sprouts taste great when sautéed in a bit of bacon drippings. I also like them steamed with lemon, salt and pepper.

Gloria · Post by **Gloria** » Sat Apr 27, 2013 9:22 pm

Gloria...Have you tried cooked carrots? I eat them a lot. I eat green beans, acorn squash, butternut squash, asparagus, zucchini & yellow squash right now.
I am soaking lima beans, then going to try them next.

It is so hard....I love veggies and fruit and really miss them in variety!

Yes, I've tried carrots - even baby food carrots, but I react to them as well as all of the vegetables you listed above. I love all of them, especially sweet potatoes. Regular potatoes are the most versatile vegetable, IMO. I would sure love to eat them again. After eating no fruit other than avocado for two years, I'm thrilled to be able to eat mango.

Part of my problem is the histamine intolerance. I'm always concerned that I'll eat just enough histamine foods to put me over the edge and give me an itchy rash again. I do get a warning that the histamines are getting close to overload when I get mouth sores. I think taking one Claritin Reditab every day is helping, plus Histame when I eat avocado.

I appreciate the suggestions on cooking Brussels sprouts. I need to try roasting them.

BTW, I had Perfect Normans today after eating the kale yesterday. I will definitely use it in the soup again. I think I need to test it for quantity before I start making chips, etc. out of it, but I am interested.

Gabes,
I'm so sorry that you have a Fibromyaglia diagnosis. Somehow, I thought treating MC also treated Fibromyaglia. I guess not. I hope you can get some energy back soon. You've always seemed pretty energetic; this is a major change for you.

Gloria

Gabes-Apg · Post by **Gabes-Apg** » Sun Apr 28, 2013 2:24 am

Thanks Gloria
i had just got my kidney function 'back to normal' and not requiring fortnightly tests to check function - at first i thought i was just fatigued after the house move and damaging the foot ligaments, but the symptoms kept getting worse.

it has been a tough 6 months with; kidney issues, 2 x moler removal (no painkillers), housemove, now this.

If I had some paid leave available i would take time off, unfortunately I dont, so i have to keep working which takes up a fair amount of my limited energy.
we have the diagnosis, and i am doing the medication change, fingers crossed this works for me and over the next 2 months we see improvement.

JoAnn · Post by **JoAnn** » Tue Apr 30, 2013 8:39 pm

Hi Gloria, I stand in awe of you. You never let MC hold you hostage in spite of having one of the toughest cases here. If MC could be cured by sheer effort and tenacity, you would have stood at the head of the line. I'm sorry you've had to give up yet another food. I hope and pray everyday for you that something will change, and you will be able to heal and add more foods into your diet. When you are on a higher dose of entocort, can you eat more foods without reactions? I know some people here have been able to do that. When I was on entocort, I never seemed to be able to get away with it. I still reacted to my problem foods not matter what dosage I was on. I wonder if Grannyh is still in remission. I remember she was on entocort and ate whatever she wanted and then one time she reported that she was in remission off the entocort.

Hi Gabes, I didn't realize you were coping with kidney problems and fibromyalgia

You are another one of my heroines on this board. No matter what comes your way, you're fighting right back at it with toughness and humor.

You both inspire me and I'm blessed to know you!

Love JoAnn

Nettierud · Post by **Nettierud** » Wed May 01, 2013 7:49 am

I was just going to say that if you can tolerate Brussels sprouts and kale then you should try cabbage too if you haven't since they are so closely related. I have a small pressure cooker that has a steamer basket and I put a mixture of kale, Brussels sprouts, cabbage, and squash and bring them up to steam for 2-3 minutes and it retains all the good flavor and you don't need any seasonings at all. It's delicious and sweet. I add different combinations of veggies- zucchini, broccoli but kale is always a staple.

Zizzle · Post by **Zizzle** » Wed May 01, 2013 11:13 am

Gloria - I eat kale every day in a smoothie. Somehow grinding it up seems to make it easier to digest. I also LOVE beet greens. They are my favorite green, followed by buk choy, kale, swiss chard, and watercress. I eat cilantro like a green too and add it and parsley to my smoothies! Brussels are a favotite too, raosted, pan seared and steamed, or peeled apart and stir fried. I hope you are able to incorporate some greens into your diet. Note that baby greens are thought to be more nutritious than fuly grown varieties, so aim for those when possible, and organic to avoid any residues.

Gloria · Post by **Gloria** » Wed May 01, 2013 10:18 pm

Thank you for the additional suggestions. I will be trying them all as soon as I'm sure I can tolerate the foods.

So far, I seem to be handling both the Brussels sprouts and the kale. I had a slight change in my BM this morning when I had to go to the bathroom at 4:30 a.m., but I seem to be back to normal again. I didn't eat any vegetables yesterday, so I can't blame them! I suspect it was my 1/3 banana, plus I'm testing a one Entocort a day dosage.

JoAnn,
I guess it could be said that I have a lot of perseverance - but really, what other choice does any of us have? I just take it one day at a time - the AA strategy.

Someday I might be able to eat more, but if not, as long as I'm healthy, it's OK. I can still travel, after a little preparation, and I can't complain.

When you are on a higher dose of Entocort, can you eat more foods without reactions?

Things are much different for me now than they were when I first began taking Entocort. Initially I was be able to eat many more foods at the highest dosage. I gave up the "big five": gluten, eggs, soy, dairy and yeast at the same time I began Entocort in August. I remember that green beans were the first food intolerance I identified after that, and that wasn't until June of the following year - when I went off Entocort for the first time. Since then, every time I've gone off Entocort, or even just reduced it, I've had to eliminate additional foods. I was very worried that I wouldn't have any green vegetables this time, just cauliflower, but I'm very thankful that I can substitute Brussels sprouts and kale. I'm also grateful that I can eat mango. All of them provide potassium in pretty abundant quantities.

When I went back on the full dosage nearly two years ago, I was on a very minimal diet and still didn't see Normans for months. Finally, I decided that I would add 1/2 Imodium daily. Norman finally appeared and I began to slowly reduce the dosage, but couldn't add any new foods other than mango. It's taken me nearly two years to reduce from 9 mg. to 3 mg. a day.

Gloria