Update on my daughter - on my own again!

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tex
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Post by tex »

If trial elimination awakens gluten intolerance symptoms in everyone, do I really want to do that to my asymptomatic kids? What if they end up with flu-like symptoms after any cross-contamination? Is it worth it? The family will HATE me.
Yes, that's the dilemma that we face. And the situation that you are in clearly illustrates the complexity of the current topic of the Gluten Free Dude's blog. He might be mad as hell, but that may be because he doesn't understand the complexity of the issue. Namely, that even our own families don't take celiac disease (or gluten sensitivity) seriously. For that matter, do we take it seriously (enough)?

Tex
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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Zizzle
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Post by Zizzle »

Here is incontrovertable proof that IBS-D in people with HLADQ 2 or 8 genes is caused by gluten. Case closed in my opinion. Everyone with IBS-D needs to get gene testing.

http://www.gastrojournal.org/article/S0 ... 2/fulltext
1987 Mononucleosis (EBV)
2004 Hypomyopathic Dermatomyositis
2009 Lymphocytic Colitis
2010 GF/DF/SF Diet
2014 Low Dose Naltrexone
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tex
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Post by tex »

Great article!

Now if they will just go to the trouble of doing the same study with a cohort of IBS-C patients, they will find that gluten is the cause of the problem there, also, which will verify what I've been saying for a long time.

Thanks,
Tex
:cowboy:

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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dfpowell
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Post by dfpowell »

I could not access the article, what do I need to do? Or could it be copied and pasted some how?

Thanks,
Donna

Diagnosed with CC August 2011
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Gloria
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Post by Gloria »

Donna,

The reason that the link doesn't open the page is that the entire URL isn't highlighted. You can see the report by copying the URL and pasting it into the URL address bar.

Gloria
You never know what you can do until you have to do it.
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Gabes-Apg
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Post by Gabes-Apg »

Zizzle
i have been following the thread, and wanted to reply, but didn't know what to say!!

My dear friend Maria, (the naturopath) was having digestion issues and via her last 3 colonscopies (and based on what we have learnt via me about MC, villi damage etc) she has confirmed via one of the scopes that Gluten was damaging the Villi and then another scope, dairy was damaging the villi.

About 6 months after she eliminated dairy, she started reacting to soy. Based on soy being my main trigger, the high numbers of people on this forum having issues with soy, and the amount of articles i have shared with her from here, she didn't need much encouragement to eliminate soy.

her household is pretty much GF/DF/SF - we both agree that early implementation of this type of eating plan will minimise health issues for her children in later life. (her son had always had mild digestion issues since birth, and struggled with fatigue)
Her family and her husband's family are Italian - big extended family, very social, lots of pasta type Italian!!!
to adopt this type of lifestyle has meant quite an adjustment..

I don't envy your situation, and with all you have had to contend with in the past 12 months, and what you have learnt in the last 12 months there would be a natural instinct to protect them from something like MC later in life.
I hope you get the outcome you want

hugs
Gabes Ryan

"Anything that contradicts experience and logic should be abandoned"
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Zizzle
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Post by Zizzle »

Thanks Gabes,
I feel like I know what I want to do, but I absolutely cannot put my kids on a GF diet without medical PROOF that they need to be on it. Simple as that. So my choice is to take my kids to multiple practitioners and spend money I don't have on tests, only to be told by my family that the tests aren't reliable enough to warrant gluten elimination.

I was just reading about NAET to "cure" allergies and I wonder if I might pursue it for my daughter, even if just to minimize her tree pollen allergies. Anyone here ever try it?

http://www.naet.com/Patients/whatsnaet.aspx
The NAET hypothesis is that the presence of an opposing electromagnetic field from a substance may adversely
affect the energy of the human body. A disturbance in the energy pathways leads to muscle spasms near the spinal
nerve roots, causing misalignments of the nervous system and ultimately leading to the symptoms associated with 960
disease or allergic processes. While in the presence of the allergen, stimulation of the spinal nerves relieves these
misalignments, and effectively reprograms the energy pathways to tolerate the allergen and prevent reactions8
.
Peanut allergy reseearch:
http://www.naet.com/pdfs/peanutAllergy.pdf
1987 Mononucleosis (EBV)
2004 Hypomyopathic Dermatomyositis
2009 Lymphocytic Colitis
2010 GF/DF/SF Diet
2014 Low Dose Naltrexone
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