Hi all,
I'm in a super flare right now and just wanted to pop in for some support. I had sort of weird domino effect that got me here. Started with trying to find a solution to insomnia, which led to trying valerian root, which led to extremely low blood sugar, which led to a couple of very scary bouts of vertigo, which led to my eating every 1-2 hours to try to balance out my blood sugar so I wouldn't drop my daughter or some other scary thing, which led to my trying to eat low-calorie foods so I didn't gain so much weight, which led to my eating lots of salads for a week and forgetting that lettuce is such a huge problem for me, which very quickly led to a flare. Phew. I'm back to eating only meat because I have intestinal yeast overgrowth and can't eat potatoes b/c the sugars will feed the little critters, and because any kind of fiber is clearly a big no-no right now. I also bumped the entocort back up to 9 mg/day — too bad because I was down to one every 4th day. I'm on day 3 of meat and high dose of entocort and I've still got the fire hose D going. It's more concerning than usual because I'm breastfeeding and my daughter is nowhere near ready for solids (she's 7 months and chokes on even the tiniest amount of pureed foods), so I need to make sure not to let this go on too long or I'm going to get quite depleted.
Here's my question: I tried adding in imodium, but it didn't seem to do anything. Does anyone know how much is safe to take in a 24 hour period? The box says not to take more than 4 pills, but if I want it to do anything I'm going to have to take a lot more than that.
Thanks, all!
Elizabeth
Checking in
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I used to take 6 at a time. Anything less didn't work. I don't think I did this more than twice in any day.I don't know what either the short or long term safety of this is but I never experienced any adverse effects. I also would wonder if its ok while you're breastfeeding. Hopefully someone here knows more than I do. This must be so hard with a little one.
Jean
Jean
Elizabeth,
I had researched this for myself and came across some information which stated Immodium use for chronic diarrhea should not exceed 16mg/day if that dose does not help after 10 days then it probably will not be effective. This information can be found by googling Immodium and dosage.
I also came across the following:
Use in Lactation: There is little information on the excretion of Imodium in human milk, but as small amounts of the drug are detectable in the milk of nursing mothers, the use of Imodium is not recommended in breast feeding subjects. In a peri- and postnatal study, Ioperamide administered to female rats at dosage of 40mg/kg indicated a possible adverse effect of lactation as evidenced in a decreased pup-survival rate.
I had researched this for myself and came across some information which stated Immodium use for chronic diarrhea should not exceed 16mg/day if that dose does not help after 10 days then it probably will not be effective. This information can be found by googling Immodium and dosage.
I also came across the following:
Use in Lactation: There is little information on the excretion of Imodium in human milk, but as small amounts of the drug are detectable in the milk of nursing mothers, the use of Imodium is not recommended in breast feeding subjects. In a peri- and postnatal study, Ioperamide administered to female rats at dosage of 40mg/kg indicated a possible adverse effect of lactation as evidenced in a decreased pup-survival rate.
Donna
Diagnosed with CC August 2011
Diagnosed with CC August 2011
What I do know about loperamide is that it is an easy drug to get hooked on if one has a propensity for opiates and doctors try to avoid using loperamides as much as they can if they know they have a youngish patient who has a history of addiction. It is sometimes termed "over the counter Methodone".
http://www.drugsandbooze.com/showthread ... ks-Finally
http://www.nature.com/clpt/journal/v28/ ... 0239a.html
I think I would be verrry careful and consult with a pharmacist ((not the doctor) about taking it and breast feeding at the same time.
http://www.drugsandbooze.com/showthread ... ks-Finally
http://www.nature.com/clpt/journal/v28/ ... 0239a.html
I think I would be verrry careful and consult with a pharmacist ((not the doctor) about taking it and breast feeding at the same time.
Jane
Diagnosed with Lymphocytic Colitis 12/19/12
"When it gets dark enough,you can see the stars."
Charles A. Beard
Diagnosed with Lymphocytic Colitis 12/19/12
"When it gets dark enough,you can see the stars."
Charles A. Beard
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MaggieRedwings
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HI Beth,
I totally know what you went through with the Valerian. I used it years ago and had every symptom that you mentioned. It is something that I would - under no circumstances - use again.
I hope things are getting better and that the flare subsides - I am right there with you in the flare state now.
Love, Maggie
I totally know what you went through with the Valerian. I used it years ago and had every symptom that you mentioned. It is something that I would - under no circumstances - use again.
I hope things are getting better and that the flare subsides - I am right there with you in the flare state now.
Love, Maggie
Maggie Scarpone
___________________
Resident Birder - I live to bird and enjoy life!
___________________
Resident Birder - I live to bird and enjoy life!
Donna, thank you. Jane - thank you for posting this! That is really scary. I'm kind of glad the imodium wasn't working now that I saw that information.
Maggie - I'm so sorry about your flare! And isn't valerian freaky? I've been taking passionflower, and it's way better for me. Helps me sleep without the crazy low blood sugar drops.
I think if this flare keeps going that I'll just do a short dose of prednisone to get back on track since I know it works. If you were me (and keeping in mind that I'm breastfeeding), how long would you give yourself before you broke down and did the prednisone?
Maggie - I'm so sorry about your flare! And isn't valerian freaky? I've been taking passionflower, and it's way better for me. Helps me sleep without the crazy low blood sugar drops.
I think if this flare keeps going that I'll just do a short dose of prednisone to get back on track since I know it works. If you were me (and keeping in mind that I'm breastfeeding), how long would you give yourself before you broke down and did the prednisone?
Hi Beth,
So sorry to hear about the D. I have two children so I can completely relate to how exhausting and frustrating MC can be with little ones. My baby is 18 months old now. I don't have advice on breastfeeding (wish I did!) since I didn't b/c I was in bad shape w/ MC right after my son was born and needed my husband to help a lot, including the feedings. It's so overwhelming to deal with MC while caring for a baby....I sympathize and wish I could help you end the flare. Just know it does get better! Good for you for eliminating your diet to non-irritants and no sugar/carbs. I know how hard that is to do. I dealt with yeast also b/c I was on too many antibiotics while pregnant (for asymptomatic recurrent UTIs) followed by Entocort.
I'm not sure if bentonite clay or charcoal (ideally used short-term) could be taken while breastfeeding but it may give you some relief? Just a thought.
I hope I can give you some support, from one mom to another!
All my best,
Marie
So sorry to hear about the D. I have two children so I can completely relate to how exhausting and frustrating MC can be with little ones. My baby is 18 months old now. I don't have advice on breastfeeding (wish I did!) since I didn't b/c I was in bad shape w/ MC right after my son was born and needed my husband to help a lot, including the feedings. It's so overwhelming to deal with MC while caring for a baby....I sympathize and wish I could help you end the flare. Just know it does get better! Good for you for eliminating your diet to non-irritants and no sugar/carbs. I know how hard that is to do. I dealt with yeast also b/c I was on too many antibiotics while pregnant (for asymptomatic recurrent UTIs) followed by Entocort.
I'm not sure if bentonite clay or charcoal (ideally used short-term) could be taken while breastfeeding but it may give you some relief? Just a thought.
I hope I can give you some support, from one mom to another!
All my best,
Marie
Yeah, I don't know many other moms w/ MC either. I figured it would be nice if 'us' moms could stick together; being a mom w/out MC is challenging, with MC it's a whole different level of challenging.
Currently, I'm having a bump in remission. I have Hashi's thyroiditis, lymphocytic colitis, celiac disease, and possible SIBO (planning to breath test). I was in remission from Aug 2012-March 2013. In March I started the GAPS Intro diet and began a mild-moderate flare that lasted about three weeks (odd b/c it's a healing diet, but the fat content was too much). After sessions of NAET acupuncture, Qi Gong, and ozone therapy my flare ended (Thank God!). I did and still do watch my diet insanely well (G/F, D/F, S/F, mostly grain free, sugar free, etc). Of course I wish I didn't have to eat like that! I was feeling so great that I decided to switch from levothyroxine (synthetic thyroid) to natural dessicated thyroid. I did the #1 mistake from "Stop the Thyroid Madness", I stayed on the starting dose too long, and thus, my thyroid levels plummeted. When I started the dessicated thyroid I felt 1000x better than I ever felt on Synthroid or Levothyroxine. Currently my uncontrolled thyroid is directly affecting my GI and causing some D. Hypo/Hashis can reduce stomach acid and bile production, and slow upper gut motility, allowing foods to ferment when they should be broken down and digested, thus D. My goal is to get the dessicated thyroid ramped up to high enough levels for an optimal functioning thyroid so I can kick the D back to the curb where it belongs.
Sorry if I hijacked your thread. I'm good with sharing anything that might be useful so ALL of us can write an awesome success story...the sooner the better! :)
Healing vibes to you! Stay in touch!
Currently, I'm having a bump in remission. I have Hashi's thyroiditis, lymphocytic colitis, celiac disease, and possible SIBO (planning to breath test). I was in remission from Aug 2012-March 2013. In March I started the GAPS Intro diet and began a mild-moderate flare that lasted about three weeks (odd b/c it's a healing diet, but the fat content was too much). After sessions of NAET acupuncture, Qi Gong, and ozone therapy my flare ended (Thank God!). I did and still do watch my diet insanely well (G/F, D/F, S/F, mostly grain free, sugar free, etc). Of course I wish I didn't have to eat like that! I was feeling so great that I decided to switch from levothyroxine (synthetic thyroid) to natural dessicated thyroid. I did the #1 mistake from "Stop the Thyroid Madness", I stayed on the starting dose too long, and thus, my thyroid levels plummeted. When I started the dessicated thyroid I felt 1000x better than I ever felt on Synthroid or Levothyroxine. Currently my uncontrolled thyroid is directly affecting my GI and causing some D. Hypo/Hashis can reduce stomach acid and bile production, and slow upper gut motility, allowing foods to ferment when they should be broken down and digested, thus D. My goal is to get the dessicated thyroid ramped up to high enough levels for an optimal functioning thyroid so I can kick the D back to the curb where it belongs.
Sorry if I hijacked your thread. I'm good with sharing anything that might be useful so ALL of us can write an awesome success story...the sooner the better! :)
Healing vibes to you! Stay in touch!