I didn't make it to the bathroom in time.

Camie · Post by **Camie** » Mon May 13, 2013 6:01 pm

Sorry to be a foul weather friend. But here I am again looking for advice and support. My son had prom on Friday nite. We went to his school to take pictures. I had only eaten two things all day.......foods that were "safe". I skipped dinner. That was too much of a risk. I have been slowly weaning off Endocort, one every other day. I had taken one Endocort and one Imodium that day. Then while driving home I had this sudden urgent need to use the BR. My husband drove as fast as you can in a city with traffic and stop lights. I got to the bathroom door but not in time. I soiled myself my pants and the entire bathroom floor.

I am a nurse by profession so I have dealt with incontinence and the cleanup. MY elderly
mom lived here with me and did plenty of cleanup duty. It is an entirely different story when it is your own accident.

I am so ashamed and sad. This has never happened

Post by **tex** » Mon May 13, 2013 11:09 pm

Hi Camie,

I'm sorry that happened. Been there, done that. It's probably one of the worst and most demoralizing symptoms of MC, but you're not the first to experience that — many of us have had that experience.

Your incident was probably due to a combination of stress, and reducing your Entocort dosage. Please don't beat your self up — that experience is just something that can happen whenever our MC is active.

Your diet may need a little more fine-tuning. You will probably need to increase your Entocort dosage again in order to stop the flare, and you may need to taper the dose more slowly.

Tex

CathyMe. · Post by **CathyMe.** » Tue May 14, 2013 5:23 am

Camie wrote:Sorry to be a foul weather friend. But here I am again looking for advice and support. My son had prom on Friday nite. We went to his school to take pictures. I had only eaten two things all day.......foods that were "safe". I skipped dinner. That was too much of a risk. I have been slowly weaning off Endocort, one every other day. I had taken one Endocort and one Imodium that day. Then while driving home I had this sudden urgent need to use the BR. My husband drove as fast as you can in a city with traffic and stop lights. I got to the bathroom door but not in time. I soiled myself my pants and the entire bathroom floor.

I am a nurse by profession so I have dealt with incontinence and the cleanup. MY elderly
mom lived here with me and did plenty of cleanup duty. It is an entirely different story when it is your own accident.

I am so ashamed and sad. This has never happened

So sorry you had to deal with his Camie. As Tex has said, it has happened to many of us, myself included. I can't tell you how many times I would be walking my dogs in the woods, would feel the urge and have to just duck behind a tree to relieve myself. I would agree with Tex on the Entocort as well..you may have decreased it too quickly.

JFR · Post by **JFR** » Tue May 14, 2013 6:24 am

Camie,

I am another person who has experienced something similar. I used to wake up in bed and it would already be too late. Those were certainly times when I was glad I slept alone. I think that for me such possibilities of public humiliation are part of what keeps me on the straight and narrow, practicing scrupulous adherence to the dietary restrictions which keep things in control. Being gf, df, sf, ef and more is certainly preferable to not being able to reach a bathroom on time or even simply the anxiety around the possibility of not reaching a bathroom on time. So while possibly upping the endocort (I never took it) also look at your diet and try to figure out what might be causing you trouble. For most of us this is not a disease with an easy fix but one in which perseverance pay off.

Jean

maestraz · Post by **maestraz** » Tue May 14, 2013 6:59 am

Camie,
That's an upsetting thing, to be sure. I'm sorry it happened to you.

Have you seen prior posts about the free Medical Alert/Bathroom Access Required card available at www.MyIBD.org? Having this card might help get you access to a bathroom if you have to make an emergency stop and no public one is available. I've never actually had to use it, but it's like carrying a little peace of mind with me.

MaggieRedwings · Post by **MaggieRedwings** » Tue May 14, 2013 9:29 am

HI Camie,

So sorry about the incident but most of us have been there and done that and the humiliation factor is always the worse. I have recently had a couple of the sleeping accidents and still get embarrassed even though it just my husband and I. I guess instead of saying embarrassed I am just really humiliated and so, so mad about it.

Maggie

jgivens · Post by **jgivens** » Tue May 14, 2013 9:33 am

Oh, Camie. I am so sorry. I am a nurse too (and therefore used to some pretty awful messes) and my own incontinence just about undid me last fall. It is more common than you would know! I thought that incontinence of bowel was horribly humiliating until I got a rectal abscess. You want humiliation, try having to have that taken care of in the doctor's office and then having to have one's spouse (thank God mine was willing!) pack the consequent wound two to three times a day for at least two weeks.

I find this disease beyond humiliating. No one chooses to talk about their bowel movements all the time except some of the folks in my mother's generation (she is 92). I think that having a support group where one can talk about such humiliating experiences as these is a Godsend. I feel like the sharing of humiliating circumstances that we find ourselves in because of this nasty disease helps take the edge off of the humiliation just to know that others have suffered the same wretched situations and have survived!

Know that it will not always be like this and you will not only get your life back, but your dignity too!

Leah · Post by **Leah** » Tue May 14, 2013 12:54 pm

Oh Camie. You poor thing! It's never happened to me, but I feel your pain.
Tex said what I would have. I think the stress got to you. I don't know how long you have been on Entocort, but it doesn't sound like you are ready for the lower dose.

leah

fatbuster205 · Post by **fatbuster205** » Tue May 14, 2013 2:34 pm

maestraz wrote: Have you seen prior posts about the free Medical Alert/Bathroom Access Required card available at www.MyIBD.org? Having this card might help get you access to a bathroom if you have to make an emergency stop and no public one is available. I've never actually had to use it, but it's like carrying a little peace of mind with me.

I carry a "Can't Wait" card (from NACC) and yes - I came close to using it once! I guess it does definitely bring peace of mind.

So sorry, Carrie! It has only happened to me once and I was on a crowded bus!! I had to go to a store and buy new knickers! Then when I got to work I had to clean up! Complete nightmare because only babies and very young children or really old people who are bed ridden are meant to suffer the indignity of this affliction! When you are a baby or toddler, it's cool...!!!

Hope you get on top of this really soon! FWIW! Here in the UK, first sign of flare and I am back on 9mg (I managed one week off)!! My GP intends a minimum 3 month reduction! I have been on them since last July! Difference for me is I currently get free prescriptions and I know my US cousins don't have that luxury! But even one week off, my Doc recommended 9mg to get things back under control and one week on they are! Just a thought|!

Take care and I hope you get on top of this flare soon! And don't worry about the poo everywhere!!!! shi* happens!!! LOL!!!!!!
Anne xxx

Joefnh · Post by **Joefnh** » Tue May 14, 2013 2:45 pm

Hi Camie...it is hard to accept that these events can happen to us. Your right it's hard to deal with when it's personal, not someone else. I have had this happen a few times now, fortunately only once when I was not at home. At this point I keep a full set of extra clothes at work and more recently a spare set in the car. Some days I have a 1 hour commute and with a new medicine I'm taking (Mestinon), has played havoc with my GI system.

Hang in there, your certainly not alone and it is tough to accept but nothing to be ashamed of. You have a condition that can be challenging on the good days. The good news is it does get better.

Take care

Sheila · Post by **Sheila** » Tue May 14, 2013 6:09 pm

I'm so sorry you had this experience. Unfortunately, it isn't an exclusive club. The very first time it happened to me I was in the Rome, Italy train station. I was mortified.

So now it's about three years later and I'm GF, SF, DF and down to one Entocort every other day. WD hit in the morning while I was thinking about getting up. "That" feeling hit and I was a few seconds too late. Why? I had a very stressful experience and then comforted myself with something I shouldn't have eaten and two glasses of wine.

I know how you feel and I hope it doesn't happen again to you or to me. MC sucks.

Sheila W

Denise · Post by **Denise** » Tue May 14, 2013 7:27 pm

Sheila,

That is what I wanted to say "MC sucks". At the beginning I had a few episodes that I did not even know it was happening until I felt wetness. Thankfully I was at home. There are days where I think I should just wear a diaper just in case.

OttawaGrl · Post by **OttawaGrl** » Wed May 15, 2013 7:08 am

Hi Camie,

I am sorry you had to go through this. This has happened to me several times. Always when I am away for the weekend or something. I tend to worry when I go away if there will be a "safe" washroom where I can take care of business. So I stress out and then while I am away I have the accidents. Once it has happened to me while I was singing on stage. I had to finish my song than I ran off the stage. I was mortified!!
But I have been learning to deal with the stress and things have been getting better, so hang in there!

Tracy

patc73 · Post by **patc73** » Wed May 15, 2013 8:10 am

I, too, have recently had accidents. Some wake me up in the middle of the night, and some happen when I sneeze or cough. I wear a Poise pad or Depends almost every day now. It's humiliating, messy, stinky, and nasty, but we have to deal with it. I hate to think what it'll be like when I'm elderly!

SmallTownLady2U · Post by **SmallTownLady2U** » Wed May 15, 2013 9:51 pm

I also wear a poise pad. I will never forget my first mortifieing accident and then my second. I live in a very small town and this is a huge fear in my life and my children's we would never live it down. I really hope this disease gets better, from what I am learning it really doesn't ! I try to just enjoy the little gifts in life like sitting outside chatting and not having to run to the bathroom. Making it to work. Or getting a load of laundry done. I know those are small things but huge blessings to me! I hope it never happens to you again or any of us!! Just remember although we are far apart, you are not alone! We are all in this together.

MICROSCOPIC COLITIS SUPPORT

I didn't make it to the bathroom in time.

I didn't make it to the bathroom in time.

Re: I didn't make it to the bathroom in time.