Modified Paleo Diet and Arthritis

Updates from members who have been successful in controlling their symptoms.

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Sheila
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Modified Paleo Diet and Arthritis

Post by Sheila »

I've been on a paleo to modified paleo diet for about a year. The diet required stopping the ingestion of nightshade vegetables, a real sacrifice for me. I sucked it up and have eaten very few nightshades, very infrequently during the past year.

I have Hebenden's nodes, a hereditary arthritic swelling of the first joint of the fingers. My mother had them and my sister and I are both afflicted. While I was taking Celebrex for many years the joint swelling and pain completely stopped. When I had to stop taking Celebrex a lilttle more than a year ago I noticed a few joints started growing with the concomitant extreme tenderness that accompanies the growth of the nodes. Over the past year, the nodes have stopped swelling and the pain has stopped. I have to conclude that the changes in my diet have played a significant role in this small miracle.

My body is pretty well riddled with OA and the diet has not significantly helped with pain and stiffness in my back and knee. It has, however, eased the pain of arthritis in my toes. My toes used to seize up with cramps on a regular basis causing me to jump around like a crazy person trying to get the pain to stop. A very expensive prescription, Pennsaid (a combination of Volaren and DMSO) helped to stop the cramps. For the past several months I've had very few episodes of toe cramps. SO, there seems to be a correlation between the modified paleo, nightshade restricted diet and the easing of some arthritis pain and painful toe cramps.

After a year on modified paleo diet, I'm getting used to it but still don't love it. The MC seems to be under better control while on the diet. I had one very major episode of WD caused by stress, a bag of veggie chips and wine. Entirely my own fault. :oops: The other episode was probably a combination of stress and a virus or infection.

The change to a modified paleo diet has resulted in regular Normans and fewer symptoms. The only time I have problems with gas and/or bloating is when I eat something I shouldn't, mostly cookies. So, although I'm not wild about this diet I will stick with it because it does work for me.

Sheila W
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tex
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Post by tex »

Sheila,

That's great news. I hope your symptoms continue to improve.

Thanks for the update.

Tex
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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Lesley
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Post by Lesley »

Sheila.
That's terrific!
One of the big problems with this illness is there is no comfort eating. You can't go to the market, buy a pint of ice cream, a packet of cookies, a slab of chocolate. Sometimes I would KILL to be able to finish off a slab of chocolate.

Tell me about your paleo modifications. I am also eatng modified paleo. My modification is gluten free oats. I make oat cookies and flat savory cakes. Gives me something cracker-y to put sardines on. This week I ate white potatoes (I tolerate them well) because I had them, and a friend was here for a few days, and we had to eat.

Just BTW - I got a puppy on mother's day. I will post about her later, but if I remember rightly you also got a dog a while ago, right?
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Post by Sheila »

Puppies are wonderful and will make you feel better every day. Walking Rosie every day, many times a day, gets me out of the house and enjoying my neighborhood and neighbors. I started out walking her a lot because she wasn't housebroken and now it is a habit. Once our South Florida summer heat hits, the walks will be shorter.

I seem to do best when I don't try to recreate foods I used to be able to eat. I love linguine with clam sauce and make it with GF pasta occasionally. It just isn't as good and then I don't feel well afterward. The GF pasta doesn't sit well and there is something else in the recipe that doesn't agree with me anymore. Too much olive oil, I think. So, keeping it simple is simply best.

I eat protein, usually meat, at every meal. Staples to go with protein meals are spaghetti squash with mushrooms and shallots, zucchini pancakes, risotto and sweet potatoes as accompaniments. I make a frozen fruit smoothie every day with bananas, peaches, raspberries, mangos and apple juice. Most other fruits are not on my acceptable list. I have butternut squash soup and ground turkey patties in the freezer for lunches as well as frozen meat cut into small pieces to put into the soup. I make risotto with shrimp and asparagus frequently. And then there is chocolate. It's not on the acceptable list but I need to have a sweet or two or three every day. The chocolate chip cookie recipe in Elizabeth Hasselbeck's cookbook is fabulous. I keep them in the freezer for when I have to have a cookie. Snacks are limited to rice cakes with almond butter. Other snacks don't agree with me and I've given up trying. I make homemade bread and now realize that the flax seed I put into it is making me very gassy. Found this out when I bought a loaf of Udi's bread to take to my son's house and didn't have any gas problems after eating a sandwich. No legumes or nightshades. Limited veggies because of gas issues.

So, Lesley, my diet is a lot of meat and mostly shellfish accompanied by one of the above side dishes. In my pre MC days, I love to make french and Italian dishes and spent a lot of time cooking. Now I spend a lot of time cooking basic foods to keep me alive and healthy.

I hope you enjoy your new companion as much as I love my little Rosie, a mini-wire-haired dachshund. She leaks a little and I can live with that.

Sheila W
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Post by Kari »

Sheila - it's so good to read such a positive post from you. I've always identified with your struggle to eat closer to a paleo diet, and it sounds like you're finally getting used to it!!! I find that the more time goes by, the easier it is for me to live with a similar type diet. Slowly, but surely, it's becoming the food I prefer, as it makes me feel so much better. I'm also happy to hear you're enjoying your little dog :).

Leslie - that's good news from you as well. So glad to hear you got a puppy - I'm a huge animal lover, and my 2 cats are a tremendous comfort to me. They can sense when I need nurturing, and will be right at my side :grin: .

Love,
Kari
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Post by JeanIrene »

Hi Sheila, your diet is very is pretty similar to mine, but no rice for me! I have a smoothie with bananas berries, maybe some mango in the morning. Lunch is usually leftovers or homemade chicken soup. I have pork, chicken, or turkey for dinner with vegetables, usually something green, and either sweet potato or winter squash. I stay away from night shades too. I always have a supply of pork or chicken/pork burgers in the freezer. I make bread and assorted muffins from almond flour, as well as cookies once in awhile. I usually have a small square of Lindt 85 percent cacao in the evening as my treat.

I have also found relief from arthritis symptoms in my hip since starting the diet.

My appetite has improved significantly. Food really tastes wonderful now, where in the past I seemed to have a lessened sense of taste. Nothing tasted really good like it does now. Strange.

I find I feel pretty much back to normal if I stick to paleo, so that is what I will do. Feeling good is the best reward!

Thanks for your update. It's good to know how others are managing.

Glad you're enjoying your little doggy!

Jean
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Post by JFR »

I eat a paleo diet too, meat, veggies, berries and nut butter, no grains at all. The pain in my deformed arthritic fingers is virtually gone and they are no more crooked than they were a year ago. I don't eat nightshades either. What your doctor won't tell you, Tex will.

Jean
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tex
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Post by tex »

JeanIrene wrote:Thanks for your update. It's good to know how others are managing.
:iagree:

Not only is it good to know, but that information can be virtually priceless for some of us. Where else could we learn how it truly feels to be in remission, and the details of how others have accomplished that goal. In most cases, about all that our GI doc can tell us about the process is what the drug reps teach, and we all know how well that works. :roll:

Jean wrote:The pain in my deformed arthritic fingers is virtually gone and they are no more crooked than they were a year ago.
It appears that you and I measure progress on that issue exactly the same way. :lol:

Tex
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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Lesley
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Post by Lesley »

Sheila,

Rice! So that's your modification. I can't have rice. Seems a lot of really good stuff is made either with rice and/or almond flour.
There is also a lot in those cookies that aren't included in the paleo diet. Since I can't have rice I will have to skip those.
I use the oat cookies to act as a carrier for stuff like peanut butter, preserves and even my sardines.
Otherwise, no grains at all. And no nightshades. I have been hoping stopping them will help my
back, and other inflamed parts of my body, but, unfortunately, I have had to have steroid shots. They have helped to an extent, but the pain is still very much present.
I am hoping going out with Licorice will help strengthen my back so it doesn't hurt so badly. No more pain pills!

I haven't made muffins in a while. I really need to get some baking done. I am totally out of oat cookies,

Meals? I have some sardines for protein (usually) in the morning, with the oat cookies or Udi's oat granola.
Lunch is some sort of meat with a baked squash, or some sweet potato. I haven't made juice for a while, but I do it 3-4 times a week with carrots, kale, spinach, lettuce, apple - anything I have other than parsley and celery. They really don't agree with me )-;.
Smoothies are made from strawberries, blueberries, bananas, mango, maybe peach, or nectarine when I have them (summer now!). I like to buy them when cheap, make a puree and freeze them in ice cube trays.
I like to make ice cream with coconut milk, but haven't for while because smoothies seem to be enough for me.

I suck a lot of rock candy (only sugar and water) to keep the saliva flowing to help to keep the GERD at bay. More sugar than I need. I don't know what else I can do for the GERD. It's driving me NUTS!

I like everything in the diet, but would so love to have some milk products, chicken and rice in addition to what I can eat.

Licorice is so cute. She's totally trained and lets me know when she wants to go out. She follows me around, sits at (or on) my feet and loves to play. Havng a pet is expensive, but it is worth every penny.

Walking in FL in the summer - possible? It is SO humid there. It gets ht here, but is not humid so it's usually bearable.
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Post by gluten »

Hi Sheila, In your modified Paleo Diet do you eat any carbs? What kind of rice do you eat? I am concerned about the arsenic content of brown rice. I follow a modified Paleo Diet but now due to the results of my hair analysis I need to consume 50% carbs to prevent muscle protein catabolism. Jon
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Post by Zizzle »

Regarding nightshades, are they really a NEVER EAT item? I keep trying to avoid them, but with summer vegetables here, I'm eating way more tomatoes and peppers than usual, and I'm absolutely fine. I never stopped eating copious amounts of chili powder. I've always eaten white potato with no problem whatsoever either, although I've cut down. I avoid eggplant, but I do miss it. Can someone remind me why they are so evil for someone without any arthritis symptoms or digestive upset after eating them? Are nightshades going to somehow fuel my autoimmune skin disease? I really do tolerate them well. I'm still eating black beans occasionally too (I'm half Guatemalan!). I'm avoiding all other legumes, especially soy and peanuts.
1987 Mononucleosis (EBV)
2004 Hypomyopathic Dermatomyositis
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Sheila
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Post by Sheila »

I eat arborio rice a couple of times a week. I make risotto with it usually adding shrimp and zucchini or asparagus. I eat a paleo muffin or two a week made with almond flour as well. I eat homemade GF sandwich bread made with brown rice flour, millet, arrowroot, almond flour, sorghum flour. The zucchini muffins are made with coconut flour. I don't know what I would do without rice. I have a fruit smoothie every day. Rice cakes with almond butter are the only snack I eat. So, there are definitely carbs in my diet. The chocolate chip cookies contain way too much sugar and potato flour, two things I shouldn't be eating. The cookies don't cause too much trouble and I continue to eat a few now and then. I have to confess to putting Parmesan cheese on my risotto. It doesn't amount to much and makes such a difference in the taste.

Giving up nightshades definitely helped with some OA issues but has little to no effect on more serious arthritis in my spine, wrist and knees. I guess nightshades work selectively in helping with some arthritis issues but not all.

Without carbs I lose weight rapidly and I can't afford to do that. I don't love meat and having something savory to accompany it makes it much more palatable. We each have to find what works best for us. Exchanging information is so helpful with this disease.

Thanks everybody for all the input.

Sheila W
To get something you never had, you have to do something you never did.

A person who never made a mistake never tried something new. Einstein
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Post by Leah »

Hi Zizzle. I don't think nightshades are bad for people who don't have arthritis or intestinal issues. I stayed away fro a long time, but have since added white potato and some spices that are from peppers. I still have problems with tomatoes and bell peppers are deadly!
My opinion, but i think you are fine. Enjoy! :)

leah
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Lesley
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Post by Lesley »

I so agree with that last statement.

I WISH I could eat rice. Or almonds. Or corn. Or something.

I am so sick of making stuff that I am not really doing much. Trying to get myself into the kitchen to make some oat cookies.

I have tried a little milk in my morning coffee. Just a drop. Since I don't know what is causing my problems I don't know whether I can risk it

Sheila, sounds as if you are doing fine in general!
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Post by Fish2575 »

Zizzle, the only thing I have to say about the nightshades you listed, is that the tomatoes are super high in histamine and may aggravate your skin condition :(

Lesley, I have quite a few Paleo cookie recipes if you want some. Do you like coconut?

Susie
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