Did anyone experience hand tremors/shaking while on Entocort?
Thanks, Jan
Hand tremors or shaking
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Hand tremors or shaking
Diagnosed with MC - May 2012
Hi,
yes, that is a common side effect of corticoids... Annoying, isn't it?
I had it very often. At first, I thought that I was shaking because I didn't feel well. But after a few months I went to see my doc for a check-up and he said that a lot of his patients, who take corticoids, have this side effect.
This is the patient information for entocort: http://www1.astrazeneca-us.com/pi/entocortec.pdf
Good luck!
Julie
yes, that is a common side effect of corticoids... Annoying, isn't it?
I had it very often. At first, I thought that I was shaking because I didn't feel well. But after a few months I went to see my doc for a check-up and he said that a lot of his patients, who take corticoids, have this side effect.
This is the patient information for entocort: http://www1.astrazeneca-us.com/pi/entocortec.pdf
Good luck!
Julie
It doesn't matter how many times you fall, but how many times you get up en go for it again. HOPE !!!!
I already have a mild tremor in my hands. Taking higher doses of prednisone made it much worse. It freaked people out. I saw a neuroligist several years ago for vertigo and mentioned the tremor -- he said it's "benign", but everyone who notices it thinks something is really wrong with me!!
1987 Mononucleosis (EBV)
2004 Hypomyopathic Dermatomyositis
2009 Lymphocytic Colitis
2010 GF/DF/SF Diet
2014 Low Dose Naltrexone
2004 Hypomyopathic Dermatomyositis
2009 Lymphocytic Colitis
2010 GF/DF/SF Diet
2014 Low Dose Naltrexone
Hi Jan,
trust me, you're not alone. That's what I love about this website.
I always thought that I was the only one having this disease and none of my friends or family really understood what it's like for me.
They do tell me all the time that my illness is hard on them too...
Don't worry about the shaking, after a few months you have stopped the entocort, the shaking goes away.
Good luck!
Julie
trust me, you're not alone. That's what I love about this website.
I always thought that I was the only one having this disease and none of my friends or family really understood what it's like for me.
They do tell me all the time that my illness is hard on them too...
Don't worry about the shaking, after a few months you have stopped the entocort, the shaking goes away.
Good luck!
Julie
It doesn't matter how many times you fall, but how many times you get up en go for it again. HOPE !!!!
Thanks sizzle. I was thinking there was something else wrong with me along with anyone who notices the tremors.
Julie - thanks for the info. My next question was going to be, do they stop once you stop the medication?
The tremors are scary. It has freaked me out so much that I go into a huge panic attack and that makes it worse. It's bad enough to have MC but then to have the medication giving you other upsetting side effects is just wrong!!
Thanks for all the support!
Julie - thanks for the info. My next question was going to be, do they stop once you stop the medication?
The tremors are scary. It has freaked me out so much that I go into a huge panic attack and that makes it worse. It's bad enough to have MC but then to have the medication giving you other upsetting side effects is just wrong!!
Thanks for all the support!
Diagnosed with MC - May 2012
Camie and Jan,
It appears that tremors can also be a side effect of neurological damage associated with gluten sensitivity for some of us.
I had occasional tremors for at least several years after I was in remission (this was roughly up until about 4 or 5 years after I adopted the GF diet. After that they disappeared, and have not returned. Don't mention tremors to a neurologist unless you want a Parkinson's diagnosis, because I made that mistake, and it appeared to clinch the diagnosis for him.
He had noticed that I had a gait problem, balance issues, and peripheral neuropathy (my reflexes in my knees and ankles were pretty much dead, and my feet had almost no feeling). When he asked if I ever had any tremors, I replied that I had had occasional minor tremors a few years earlier, but they hadn't returned since then. He promptly diagnosed me with Parkinson's disease. I was pretty sure that my symptoms were due to years of untreated gluten sensitivity, but of course he knew better, and refused to believe that gluten could cause neurological damage.
Since then I've been taking large doses of vitamins B-12, B-9, and B-6 (in a prescription supplement known as Metanx, which is sold to treat peripheral neuropathy associated with diabetes), and after taking it for over 3 years now, my symptoms are much improved (my gait is more normal, balance issues are much, much better, my reflexes are almost normal in my knees and ankles, and I can at least feel a pin prick virtually anywhere on my feet. As a result, another neurologist who noted my improvement, agreed with me that I do not have Parkinson's. Unfortunately though, even though she was/is the head of the neurology department at that hospital, and even though she could not explain why I had those symptoms, she refused to believe that they could have been caused by gluten sensitivity.
The wheels of progress seem to turn slowly in the medical arena.
Tex
It appears that tremors can also be a side effect of neurological damage associated with gluten sensitivity for some of us.
I had occasional tremors for at least several years after I was in remission (this was roughly up until about 4 or 5 years after I adopted the GF diet. After that they disappeared, and have not returned. Don't mention tremors to a neurologist unless you want a Parkinson's diagnosis, because I made that mistake, and it appeared to clinch the diagnosis for him.
He had noticed that I had a gait problem, balance issues, and peripheral neuropathy (my reflexes in my knees and ankles were pretty much dead, and my feet had almost no feeling). When he asked if I ever had any tremors, I replied that I had had occasional minor tremors a few years earlier, but they hadn't returned since then. He promptly diagnosed me with Parkinson's disease. I was pretty sure that my symptoms were due to years of untreated gluten sensitivity, but of course he knew better, and refused to believe that gluten could cause neurological damage.
Since then I've been taking large doses of vitamins B-12, B-9, and B-6 (in a prescription supplement known as Metanx, which is sold to treat peripheral neuropathy associated with diabetes), and after taking it for over 3 years now, my symptoms are much improved (my gait is more normal, balance issues are much, much better, my reflexes are almost normal in my knees and ankles, and I can at least feel a pin prick virtually anywhere on my feet. As a result, another neurologist who noted my improvement, agreed with me that I do not have Parkinson's. Unfortunately though, even though she was/is the head of the neurology department at that hospital, and even though she could not explain why I had those symptoms, she refused to believe that they could have been caused by gluten sensitivity.
The wheels of progress seem to turn slowly in the medical arena.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
I've had the tremor since I was a young kid. Not sure what that means. I suspect it's related to my lifelong autonomic nervous system imbalance issues (perhaps tied to mitral valve prolapse?). I do think it improves with several factors: adequate B vitamins, adequate calcium and magnesium, and periodic "grounding" --standing barefoot outdoors/placing palms in the grass/dirt too (seems to calm the nerves all around).
Incidentally, any weight lifting or repetitive exertion with my arms (trimming hedges, pruning shrubs, etc) makes the tremor much worse, often for days.
Incidentally, any weight lifting or repetitive exertion with my arms (trimming hedges, pruning shrubs, etc) makes the tremor much worse, often for days.
1987 Mononucleosis (EBV)
2004 Hypomyopathic Dermatomyositis
2009 Lymphocytic Colitis
2010 GF/DF/SF Diet
2014 Low Dose Naltrexone
2004 Hypomyopathic Dermatomyositis
2009 Lymphocytic Colitis
2010 GF/DF/SF Diet
2014 Low Dose Naltrexone
i have experimented hand tremors/shaking on entocord, this was a terrible situation for me i thank thath i had parkinsons, i sotped entocort two months ago, and im not totality well yet, actually the tremors come and gone intermitently, i wish thath they disapear..... how are you? did you getting fine? sorry for my bad english im from spain