My Enterolab resulst... so many questions.

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Jazi
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My Enterolab resulst... so many questions.

Post by Jazi »

Well, finally it's here, thanks to Jean (JFR) :bigbighug:

As most of you were when you first got your results, I am very unhappy and somewhat confused.

I'm having a difficult time inserting the entire document so I will copy and paste... sorry it's so long :???:

Gluten/Antigenic Food Sensitivity Stool Panel
Fecal Anti-gliadin IgA 160 Units (Normal Range is less than 10 Units)
Fecal Anti-casein (cow’s milk) IgA 41 Units (Normal Range is less than 10 Units)
Fecal Anti-ovalbumin (chicken egg) IgA 24 Units (Normal Range is less than 10 Units)
Fecal Anti-soy IgA 49 Units (Normal Range is less than 10 Units)

Expanded Antigenic Food Sensitivity Stool Panel

Mean Value 11 Antigenic Foods 33 Units (Normal Range is less than 10 Units)

While all of the foods tested can be immune-stimulating, the hierarchy of reactions detected were as follows:
Food to which there was no significant immunological reactivity: None
Food to which there was some immunological reactivity (1+): Beef, Almond, White Potato
Food to which there was moderate immunological reactivity (2+): Pork, corn, rice, oat
Food to which there was significant and/or the most immunological reactivity (3+): Walnut, cashew, chicken, tuna

Within each class of foods to which you displayed multiple reactions, the hierarchy of those reactions detected were as follows:
Grains:
Grain toward which you displayed the most immunologic reactivity: Corn
Grain toward which you displayed intermediate immunologic reactivity: Rice
Grain toward which you displayed the least immunologic reactivity: Oat

Meats:
Meat toward which you displayed the most immunologic reactivity: Chicken
Meat toward which you were next most immunologically reactive: Tuna
Meat toward which you displayed intermediate immunologic reactivity: Pork
Meat toward which you displayed the least immunologic reactivity: Beef

Nuts:
Nut toward which you displayed the most immunologic reactivity: Walnut
Nut toward which you displayed intermediate immunologic reactivity: Cashew
Nut toward which you displayed the least immunologic reactivity: Almond

Nightshades:
You displayed immunologic reactivity to white potato, the member of the nightshade family usually consumed most often and in greatest quantities. While this does not necessarily mean you would react to all other nightshade foods (tomatoes, peppers, eggplant), it is possible. In the realm of elimination diets for immunologic disorders, nightshades are usually eliminated as the entire food class (i.e., all four previously mentioned foods in this class). This is especially important to the clinical setting of arthritis.

TEST INTERPRETATION(S):
Interpretation of Fecal Anti-gliadin IgA: The level of intestinal anti-gliadin IgA antibody was elevated, indicative of active dietary gluten sensitivity. For optimal health; resolution or improvement of gluten-induced syndromes (mainly falling into six categories abbreviated as NAAAGS – neuropsychiatric, autoimmune, asthma, abdominal, glandular deficiencies/hyperactivity or skin diseases); resolution of symptoms known to be associated with gluten sensitivity (such as abdominal symptoms - pain, cramping, bloating, gas, diarrhea and/or constipation, chronic headaches, chronic sinus congestion, depression, arthritis, chronic skin problems/rashes, fibromyalgia, and/or chronic fatigue); and prevention of small intestinal damage and malnutrition, osteoporosis, and damage to other tissues (like nerves, brain, joints, muscles, thyroid, pancreas, other glands, skin, liver, spleen, among others), it is recommended that you follow a strict and permanent gluten free diet. As gluten sensitivity is a genetic syndrome, you may want to have your relatives screened as well.
For additional information on result interpretation, as well as educational information on the subject of gluten sensitivity, please see the "FAQ Result Interpretation," "FAQ Gluten/Food Sensitivity," and "Research & Education" links on our EnteroLab.com website.

Interpretation of Fecal Anti-casein (cow’s milk) IgA:
Levels of fecal IgA antibody to food antigens greater than or equal to 10 Units are indicative of an immune reaction, and hence immunologic “sensitivity” to that food. It is recommended that for any elevated fecal antibody level to a highly antigenic food such as milk, that it be removed from your diet.

Interpretation of Fecal Anti-ovalbumin (chicken egg) IgA: Levels of fecal IgA antibody to food antigens greater than or equal to 10 Units are indicative of an immune reaction, and hence immunologic “sensitivity” to that food. It is recommended that for any elevated fecal antibody level to a highly antigenic food such as egg, that it be removed from your diet.

Interpretation of Fecal Anti-soy IgA: Levels of fecal IgA antibody to food antigens greater than or equal to 10 Units are indicative of an immune reaction, and hence immunologic “sensitivity” to that food. It is recommended that for any elevated fecal antibody level to a highly antigenic food such as soy, that it be removed from your diet.

Interpretation of Mean Value 11 Antigenic Foods: With respect to the mean value of the 11 foods tested, overall, there was only a modest amount of immunological reactivity detected to these antigenic foods in terms of fecal IgA production.
Many foods besides gluten, milk, egg, and soy are antigenic in their own right; the main classes of which include other grains, meats, nuts, and nightshades (potatoes being the primary food eaten from this latter class). Minimizing exposure to antigenic foods is an important component of an anti-inflammatory lifestyle to optimize immune system health. This is especially important for those with chronic abdominal symptoms and/or chronic immune/autoimmune syndromes, or for those who want to prevent them.

For immunologic food sensitivity testing, the actual numeric value (in Units) for any given food or for the overall average of a group of foods is important mainly for determining: 1) if the immune reaction is present or absent, and 2) the immune reaction in relative terms to different foods tested in a given individual at a given point in time. It is not a score, per se, to be interpreted as a measure of clinical or immunological severity for that individual or between individuals. This is because the amount of IgA antibody made by a given person is particular for the immune function of that person. Furthermore, sometimes a person can display what can be viewed as immunological and nutritional “exhaustion,” whereby a more significant and symptomatic immunologic food sensitivity is accompanied by a lower positive measured anti-food antibody value (rather than a higher positive). In such an instance, following clinical improvement and improved nutritional status (while the suspect antigenic foods are withdrawn), values can actually be higher for a time before finally falling into the negative range after several years.
Thus, the overall average food sensitivity antibody value for this panel is an assessment of your overall humoral immunologic food reactivity, which can help determine if dietary elimination trials may help you. If the mean value is less than 10 Units, the humoral immune reactions can be considered clinically insignificant (negative); if greater than or equal to 10 Units, they can be considered clinically significant (positive). Rather than reporting the absolute value of a positive result for each individual food, since it cannot be considered as an assessment of severity, the results are reported in semi-quantitative terms between the foods tested (1+, 2+, or 3+). This provides you with the knowledge of which foods are stimulating the most immune response which, in turn, is indeed the most practically applied information to dietary elimination trials.
Dietary Recommendation Based on Test Results to Individual Foods:
This test panel was designed to guide your choices when building a new more healthful, less antigenic dietary plan. The results are delivered in such a way that you are not left with “nothing to eat,” but instead they should guide you in avoiding the foods to which the highest or most immunologic reaction was detected (and hence, are most stimulating to your immune system). We discourage dietary changes that involve removing too many foods at once. This can lead you to feel too hungry too often, especially if adequate healthful replacement foods are not readily available. Dietary elimination (beyond gluten-free, dairy-free, and soy-free) is best approached over a period of weeks to months and sometimes years, removing one or two additional foods at a time, rather than removing many foods at once.
If you reacted to more than one of the grains, meats, or nuts, we recommend that you first eliminate from your diet the one food from that class you reacted to most strongly, while keeping in your diet the ones you reacted to less strongly. When you want to try and eliminate additional foods, do so in the order of the strength of reaction from highest, intermediate, to least. In the case of potato, you may want to eliminate it if you reacted positively to it.
If you have an autoimmune or chronic inflammatory syndrome, or just want to pursue an optimally healthy diet and lifestyle, avoiding all grains, meats, and nightshades can optimize an anti-inflammatory diet (despite a negative result on food testing). As nuts and seeds are a very healthful source of vegetarian protein and heart-protective oils and minerals, rather than avoiding all nuts and seeds, you can render nuts and seeds less antigenic, more digestible, and more easily tolerated by choosing the few that you seem to best tolerate overall, soaking a one-day supply in a glass jar filled with clean water for 4-8 hours (or for ease, overnight), and pouring off the water and rinsing before eating. The resultant soaked nuts or seeds can be eaten as is (alone or with fresh or dried fruit), blended into nut butters (by adding some water), or added to “smoothies.”
Joanne

"A Journey Of A Thousand Miles Must Begin With A Single Step"
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Post by ladyathome »

Jazzy, I have been awaiting your results almost as much as I did my own...and oh my goodness, that's a lot to take in all at once! I guess we know why your meds weren't helping as much as you had hoped... The good news is now you know, and you can begin your healing process! I'm so thankful you were able to do this test! I am so sorry these results are so limiting for you, but if you're like me, you are just so happy to see what is making you so sick in black and white! I just want to offer encouragement because since getting my results and cutting the last of my offending foods, I have felt so good! This is the first time I've felt normal in 3 years! I will be so excited for you to begin to heal and get your life back!

I am anxious to read what Tex has to say to you. It seems to me that a vegan diet is in your foreseeable future to heal.

I wonder if you would react to quinoa..

Hopefully after some healing time you can return to having beef, oats, and almonds since they are your least offending foods.

Are you familiar with nightshades? (Potatoes, tomatoes, sweet and hot peppers, eggplant, tomatillos, tamarios, pepinos, pimentos, paprika, and cayenne peppers) I had to google that term when I first was told to stay away from them.
This is a pretty comprehensive list of nightshade veggies: http://nightshadejournal.com/2010/12/my ... -solanine/ I do think it helps my joints to stay away from these foods altogether.

Hopefully it will be good for you to have this long weekend to "digest" all this! :grin: :goodone: :roll:
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Post by JFR »

No need for a vegan diet. I continued eating the foods that had the least immunological activity, which for me were pork and almond (I eat almond butter). I cut out all the rest. I too had no food with no reactivity. I also eat lamb, which is not tested for, but is often a meat that people don't react to. I also seem to be able to eat turkey, cod and venison (although I don't buy venison often). So no need to become a vegan. When I first started out I stuck with ground meat, nothing added. bone broth made from the bones of allowable meats, and well cooked veggies, mostly kale chips but also collards, swiss chard and bok choy. I added almond butter after a while and I also make macadamia nut butter which also seems to be ok. I put coconut oil on my well cooked veggies. It may be a dull diet to some but it works so I stick with it.

I know you don't like to cook Joanne, but my cooking techniques are very simply. I also don't have the problem of bringing food with me to work, but you could probably make a stew out of acceptable meats and veggies and bring it to work in a thermos. I know Gabes makes a big pot of stew regularly.

I know that you can do this. It does take a strong belief that this is the correct approach, an intention to stick with it, and the effort to make it happen. The results are more than worth it.

Jean
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Post by tex »

Hi Joanne,

Judging by your antibody levels, you've been reacting to some of those foods (especially gluten, soy, and casein), for a long time. That is probably why you are now sensitive to so many additional foods. Hopefully some of the secondary sensitivities will fade away after your gut heals.

Not only is a vegan diet not necessary (as Jean points out), but IMO a vegan diet would make it impossible to take in sufficient protein for healing, due to the fact that you are sensitive to soy, which means that you are also very likely to be sensitive to all legumes. That doesn't leave any vegan sources of safe protein, and a lot of protein is required in order to heal the intestines.

I agree with Jean that beef may be safe (you may need to test it to be sure), and the ancient ancestors of beef should surely be safe for you, including all members of the deer family (which includes elk, reindeer, and moose), and the more distant relatives, such as antelope, sheep, and goats. Bison are so closely related to cattle that they commonly cross breed, so if it turns out that you react to cattle, then you might also react to bison (since virtually all bison today contain DNA from domestic cattle in their genome).

Almond and white potatoes (along with beef) only tested at a +1 level, so you can probably use almond milk and eat white potatoes. However, note that the starch in red potatoes and yellow potatoes (and many other less common varieties) is much easier to digest, so they might be better choices. I posted about the potato options in another thread only a couple of weeks ago, I believe. Sweet potatoes are another option that would probably be safe for you (but you may have to test them to be sure).

To see the information that I posted about potatoes, pleases scroll down to post number 4 in the thread at the following link:

http://www.perskyfarms.com/phpBB2/viewtopic.php?t=18085

Do you mind if I add your results to our list?

Tex
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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Post by carolm »

HI Joanne,
My ambition here is to give you some hope. My mean value was 32 to the 11 antigenic foods. I also reacted to all 4 so I have had to eliminate all four. It can be done. And the best advice is what Jean said-- eat simply.

You really need to test the foods before eliminating things permanently. I did fine with chicken, potatoes and carrots so that was the foundation of my baseline diet. Even though my test results said I had an 'intermediate reaction" to beef, I tested beef and did okay. In fact I saw no difference or reaction at all (as long as it's lean. If it's fatty bad things happen the next day). Even though I had a significant reaction to tuna, I do fine with cod, tilapia, and shrimp. Although oat was my least reactive grain, I rarely eat gf oats. I just don't digest oat well. I think it's the fiber. And although rice was 'intermediate' I'm okay with rice. The foods they said I was the most reactive to-- I AM. No doubts about it and that info has probably kept me from creating an unnecessary flare.

When people look at me and say 'what do you eat?" I tell them "I eat grilled steak, a beef roast with potatoes and carrots, I make chicken and noodles (with gf noodles of course) with rosemary and sage that my family won't stay out of". I make my own sausage out of lean ground turkey that I get a lot of mileage out of. With roasted red potatoes it's a nice breakfast. Keep it simple. The smartest thing I did early on was establish a 'baseline diet' that I was confident in-- that I was 100% sure was going to keep my gut calm and that I can go back to after a food test to be sure things are fine before the next test. I still go back to my baseline diet in times of stress too. I was one of the people that found that I did better with red potatoes than white. Sweet potatoes were ok too. Spices don't bother me and that's been a plus.

I started with many restrictions, like you, but it just takes time to learn what will help you heal and then what you can add to expand your diet.

Best wishes,

Carol
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Post by Jazi »

I'm a little freaked out here..

I'm apologizing in advance for the questions I'm about to ask.

1. Egg seemed like it had a low #, can I still eat that?

2. Why didn't they test for turkey? Is it in the same category as chicken?

3. I'm surprised they didn't test for peanut. Isn't that a high allergy food?

4 How bad is goat's milk? I was once told I could eat feta but make sure it's from goats milk.

5. Can I have a protein shake with pea protein?

6. Ladyathome recommended a vegan diet... why can't I heal without the protein? Is protein really that important for healing LC?

7. Tex, are you saying that my other high results may be because my gluten level is so high?

8. Will eating any of these foods delay the healing process (not referring to gluten or any grains) mainly beef and sometimes pork. I have decided to accept giving up all grains, I kinda gave myself a little head start. It's the chicken/eggs and pork that kinda freaked me out. :sad:

9. Can I have pistachios?

Okay, I'll stop with the questions for now but I expect every single one of them answered!! :cool:

Tex, of course you can add my results to the list, you can even add my brothers.

Thank you all for your support. I couldn't do this without you.

:thanks:
Joanne

"A Journey Of A Thousand Miles Must Begin With A Single Step"
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Post by ldubois7 »

Joanne,

Your results are similar to mine. I was as devastated as you are!

I don't think my results got posted, but my mean value was 32 units. I reacted to all 11 foods tested. The past couple of months have been a blur of hunting recipes, and finding foods to eat.

I eat venison (thanks to my brother) cod & haddock, lamb, bison and turkey once a week. I rotated all meats so there are three days between them as per Enterolab recommendations due to the hyper alert my body is in.
I do have a smoothie for lunch using only ingredients I can tolerate....cooked spinach (I wilt & freeze it in muffin cups), avocado, coconut milk (I make myself), 1/4 frozen banana, 5 frozen blueberries, and hemp protein powder with no fiber.

I eat a lot of over cooked veggies because that is gentle on my system....mainly zucchini, butternut & acorn squash, carrots, asparagus, & green beans.

Since corn was in my lowest grain reaction, I have cornflakes for breakfast with soaked seeds. Pork was my lowest meat reaction, but I was reacting to it, so I stopped eating it.

I also found I need to cook meats fresh due to histamine issues & I take an antihistamine.

I make a little cookie with ground pecans that is my treat of the day.

It is very simple eating....I eat red or yellow potatoes twice a week. (they were in my +1 zone).

The key for me seems to be the rotation of the foods so I don't continue to build sensitivities.

Your egg score is higher than 10, so you need to eliminate those. There is a good egg substitute call Ener-G.

Tex can explain some of the other questions better than me. If you look in my old posts you will find many answers to your questions, as I asked the same ones. :)

Everyone is different in the healing process, but some of the principles are common for MC. Keep educating yourself, and you will start to feel better in no time.

:snack:
Linda :)

LC Oct. 2012
MTHFR gene mutation and many more....
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Post by carolm »

Joanne, If I were you I'd avoid the pea protein or at least test it out. Peas are legumes and related to soy. If you react to soy there is a good likelihood you'll react peas and any other legume.

As far as the protein issue you'll need a considerable amount of protein daily during the healing process. My GI doc (who believes diet plays a role) told me that 50% of my diet needed to be protein (as did our leaders on this site). Since I had enough meat options I went that route, but if you have to give up legumes/ beans, eggs, dairy (including whey protein and yogurt), soy (as in tofu), I just don't know how you can get enough protein to make up 1/2 of your diet. Between meat, almond butter and almond milk I think I was and still am at about 50%. I was tolerating a small number of vegetables but tolerated meat better.

I don't know if pistachios are related to legumes. Probably someone else will know. Peanuts I believe are a legume or related. I don't know why they don't test for them but again if you are sensitive to soy, then all other legumes are suspect. I ate peanut better regularly before LC hit. Now if I get something with peanuts or peanut oil in it, I ache all over the next day.

I had the same question you did about turkey and I still don't know the answer. I just already knew I could tolerate it. Its one of my 'go to' meats.

And yes, eating foods that cause you inflammation will delay the healing process. The goal is to get rid of all the inflammation so your body has a chance to heal itself.

I'm sure others with more knowledge and experience will chime in. You'll find a lot of help here.
Carol
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Post by ladyathome »

Sorry, I didn't mean to imply I knew more about anything than you guys! I just went with with my first reaction would have been and said cut everything and get well more quickly! I tend to be an all or nothing kinda galQuinoa: 11g Protein / Cup (not a grain but a seed that cooks like rice)
there is a unique combination of anti-inflammatory compounds in quinoa and high in manganese43% tryptophan21.8% magnesium20.9%, folate19.5%, and phosphorus19.4%
Romaine Lettuce 7.7 gm protein per head- also a complete protein; it has all 8 essential amino acids
Spirulina: 6g Protein / 10 grams
Spirulina is a wonderful way to consume high quality protein that's easy on the body. It contains enzymes, which naturally assist in the digestion process.
Hemp Seeds: 16g Protein / 3 Tbsp
Pumpkin/squash seeds 5g/1 oz 85 seeds
Kale 6 gm
Brussel sprouts 6 gm/1 cup
Spinach 6 gm/1 cup
Broccoli 6 gm/1 cup or higher
Watercress 3 gm/
Artichoke 3 gm
Cauliflower 3 gm
Dried Apricots 5 gm
Avocado 5 gm
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Post by Leah »

So sorry to read your results Joanne. But like everyone here has said, there is hope if you cut back to a very simple diet for a good long time. When you start to heal and feel better, then you can test some of the medium reactions foods back in to see if you react. the key now is to bring your inflammation down.

ANY number over 10 means you probably should stay away from it for good. The high numbers you have for some of them is because you've been reacting for so long to them ( not because you are MORE reactive to them). if one of your numbers was a 12, it would still mean you should stay away from it. The one exception is that down the road, you may be able to tolerate some egg BAKED IN to something.

Everyone has given you great advice about alternative proteins. Yes, protein is very important to healing cells.

Nuts are something you will have to test on your own. Peanuts are a legume, but most others are tree nuts. If you do decide to eat nuts, chew them very well to make them a paste before swallowing. I ate them throughout my healing, but find for some reason that pistachios are worse for me then others. For Tex, pecans are bad. We are all different.

Sweet potatoes was a go to food for me... and still is. I love the white ones the best and I either bake them whole or cut in pieces and roast them.

Don't know why they don't test for turkey, but it's not the same as chicken. Peanuts are a very "allergic" food, but that is an IgE reaction and not a intestinal reaction thing...BUT it's a legume and a cousin to soy, so for now, I would stay away.

I wouldn't eat goat's milk either... at least for now.

I would go ahead and try beef. it's pretty low on your test and very handy and versatile. Cooked carrots and squash was always good for me. I also was always good with green beans.

Try to stay calm and just try to wrap your head around a simple diet for now. I know it's a real life changer, but you will feel so much better if you resign yourself to this way of eating.

Good luck Sweetie
Leah
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Post by tex »

Hi Joanne,

Since many of your questions have been answered, I'll only address the ones that remain, and/or the ones about which I have additional thoughts to add.
1. Egg seemed like it had a low #, can I still eat that?
The individual EnteroLab tests are different from the "11 antigenic foods" test. They are much more specific and more reliable As other members pointed out, anything over 9 is a positive result, and 24 is a relatively high number for eggs.
2. Why didn't they test for turkey? Is it in the same category as chicken?
They don't test for turkey because for one thing, turkey is not a common food sensitivity (by comparison, sensitivity to chicken seems to be much more common). And secondly, every test costs money and adds to the total cost of the package. If they tested for many more foods, the cost of the panel would become prohibitive for more patients.
3. I'm surprised they didn't test for peanut. Isn't that a high allergy food?
I'm guessing that they don't test for peanuts because as others pointed out, if you're sensitive to soy you are almost certainly sensitive to peanuts, and if you're not sensitive to soy, you probably would not be sensitive to peanuts. And again, a separate test for peanuts would run up the total cost of the panel for everyone.
4 How bad is goat's milk? I was once told I could eat feta but make sure it's from goats milk.
It's not impossible that you might be able to tolerate goat's casein, but the odds of that happening, are mighty slim, statistically.
6. Ladyathome recommended a vegan diet... why can't I heal without the protein? Is protein really that important for healing LC?
Aside from your food sensitivities, protein is the most important part of your diet. You absolutely will not heal without adequate protein.
7. Tex, are you saying that my other high results may be because my gluten level is so high?
Yes, because a relatively high anti-gliadin antibody level typically indicates several years of reacting to gluten, and the longer we react to gluten, the better the odds that we may develop other food sensitivities. Also, the longer we react to gluten, the higher our chances of developing additional autoimmune type diseases.
8. Will eating any of these foods delay the healing process (not referring to gluten or any grains) mainly beef and sometimes pork. I have decided to accept giving up all grains, I kinda gave myself a little head start. It's the chicken/eggs and pork that kinda freaked me out. :sad:
IMO, eating eggs would very likely prevent you from being able to achieve remission, and eating chicken would probably have the same effect. Eating pork might cause problems, but it's not as likely to absolutely prevent you from achieving remission. Beef shouldn't be a significant problem, but you should test it to be sure. Our immune systems are extremely complex, so none of this is chiseled in stone — it's just my opinion, based on the experiences of many members of this board, over the years.

Thanks. I'll add your results to our list.

Tex
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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Post by JeanIrene »

Hi Joanne,

Seems like most of your questions have been answered, so i don't have much practical advice. I felt the same as you when I got my results back. It's a shock at first, but after awhile you get used to your new eating life. I agree with Jean, there is a certain appeal to the simplicity of my diet now. But I love and appreciate everything I eat. You will find your way and invent new combinations of foods which you enjoy. And once you start to feel better you can experiment with some new foods to see if they can be added in.

I know you'll do fine!

Jean
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Post by Jazi »

Thank you everyone for taking the time to help me understand my test results.

I'm a major stress eater and it's not easy being stressed and not being able to eat! :roll:

I had another question but Tex, you actually answered it in explaining the "11 antigenic foods" test, thank you.

Okay, now to work on my life, God I wish I knew all this last year.
Joanne

"A Journey Of A Thousand Miles Must Begin With A Single Step"
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Post by Martha »

Dear Joanne,

Wow, those are quite some test results. It must have felt at first that there would be nothing left to eat. But you've gotten lots of good input from others on how to go about modifying your diet to get a very simple diet that doesn't make you sick.

I don't have insights to add, but just wanted to chime in and give you my sympathy and encouragement as you start healing.

Love,
Martha
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