Hi
New to this forum but not new to CC. I have had symptoms for almost 8 years...initially dx with IBS and told there wasn't much that could be done...found a new doctor who cares, did biopsies and finally dx the CC. I also have SIBO. I had good response to the antibiotic treatment for the SIBO. Remission for about 30 days, I forgot what it felt like to not feel sick. The last few days have been especially bad, so I was looking online and found fellow poopers!!. I am going to give the GF diet a try, it cant hurt!! Just wondering if SIBO is common among the CC crowd?
Newbie- with CC and SIBO
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Hi Cindy,
Welcome to our internet family. SIBO is probably more common with this disease than is realized, because the inflammation associated with the disease disrupts our digestive process so severely that the gut bacteria population balances are surely disrupted as a result. The good news is that once we get our food sensitivities out of our diet, so that our digestive system can begin working more normally again, gut bacteria populations will usually stabilize to fit our new diet.
Antibiotics in the fluoroquinolone family (including Ciprofloxacin) almost always bring remission for virtually any of us, but of course after the treatment is discontinued, the symptoms always relapse.
Removing the cause of the inflammation (foods to which we produce antibodies), will stop new inflammation from being generated, which will allow the gut to heal. This doesn't happen overnight, unfortunately, because it takes a long time for the damage to the intestines to heal, but some of us see improvement much sooner than others.
Good luck with your treatment (diet). Please be aware that most of us also have to avoid all dairy products, and many of us have to avoid soy, also, but gluten is the primary offender, and untreated gluten sensitivity can eventually lead to other problems.
Again, welcome aboard, and please feel free to ask anything.
Tex
Welcome to our internet family. SIBO is probably more common with this disease than is realized, because the inflammation associated with the disease disrupts our digestive process so severely that the gut bacteria population balances are surely disrupted as a result. The good news is that once we get our food sensitivities out of our diet, so that our digestive system can begin working more normally again, gut bacteria populations will usually stabilize to fit our new diet.
Antibiotics in the fluoroquinolone family (including Ciprofloxacin) almost always bring remission for virtually any of us, but of course after the treatment is discontinued, the symptoms always relapse.
Removing the cause of the inflammation (foods to which we produce antibodies), will stop new inflammation from being generated, which will allow the gut to heal. This doesn't happen overnight, unfortunately, because it takes a long time for the damage to the intestines to heal, but some of us see improvement much sooner than others.
Good luck with your treatment (diet). Please be aware that most of us also have to avoid all dairy products, and many of us have to avoid soy, also, but gluten is the primary offender, and untreated gluten sensitivity can eventually lead to other problems.
Again, welcome aboard, and please feel free to ask anything.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Welcome Cindy.
It's a good idea to take gluten out for a good long time. it takes a long time for the antibodies ( half life) to completely die off. As Tex has said, dairy is another big offender.
You don't mention how bad your symptoms are, but if you really want to heal as fast as possible, you should also temporarily stop eating all RAW fruits and veggies, beans and legumes, acid foods like tomatoes, and maybe caffeine. These are all irritants and can prevent you from healing. Once you feel better, then you can test each one back in.
Tex has written a book about MC. it is a great source of info. If you look at the uppe right hand corner of this page, you can click on it to order it.
Read as much as you can on this forum. All of us has been through/ going through the process of healing. Some of us have a harder time with it then others.
Keep us posted
leah
It's a good idea to take gluten out for a good long time. it takes a long time for the antibodies ( half life) to completely die off. As Tex has said, dairy is another big offender.
You don't mention how bad your symptoms are, but if you really want to heal as fast as possible, you should also temporarily stop eating all RAW fruits and veggies, beans and legumes, acid foods like tomatoes, and maybe caffeine. These are all irritants and can prevent you from healing. Once you feel better, then you can test each one back in.
Tex has written a book about MC. it is a great source of info. If you look at the uppe right hand corner of this page, you can click on it to order it.
Read as much as you can on this forum. All of us has been through/ going through the process of healing. Some of us have a harder time with it then others.
Keep us posted
leah
I've had d 6-20 times a day for the past 8 years...worse about 30 mins after I eat..bloating,gas (gotta be careful) and pain....lower back pain had been much worse lately..no meds seem to help..over the counter or prescription..just want to be able to go somewhere whiteout scouting out the restrooms or not eating..nice to know I'm not alone..nice to also know what I have and it's real and have a gastro who cares and says we will find a solution and wants my quality of life to improve
Cindy,
FWIW, that's precisely the typical reaction pattern that most of us have experienced (including the lower back pain), until we get our treatment program fine-tuned, and our food sensitivities out of our diet, so that our gut can begin to heal.
You'll get your life back too, if you're willing to take the bull by the horns, and do what needs to be done, and we'll be here every step of the way, anytime you need support or answers to questions — just ask.
Tex
FWIW, that's precisely the typical reaction pattern that most of us have experienced (including the lower back pain), until we get our treatment program fine-tuned, and our food sensitivities out of our diet, so that our gut can begin to heal.
You'll get your life back too, if you're willing to take the bull by the horns, and do what needs to be done, and we'll be here every step of the way, anytime you need support or answers to questions — just ask.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.