Going out for meals etc at the weekend, need some advice ple

Hoggett · Post by **Hoggett** » Mon Jun 03, 2013 6:05 am

Hi everyone,
Hope you are all as well as you can be.

I need some advice from you more knowledgable members. It is my 50th birthday at the weekend, so some of my carers are taking me ouit for a meal (it won't be GF) on Saturday, then Sunday afternoon I am going out again for another meal, then on the night we are having drinks. So my question is, how would you prepare for it?

I was thinking of eating normal till Wednesday then being very careful for the rest of the week and trying to make sure ther isn't much inside me by the weekend, also before going out taking a immodium. I would go completely GF but can't as I am having a endoscopy done at the end of June and been told I must stuff my self with gluten

Thanks

Ian

Post by **tex** » Mon Jun 03, 2013 9:57 am

Hi Ian,

Congratulations on your upcoming birthday. I wish I could offer some helpful advice, but all I can think of is how inconsiderate and retarded your doctors are, if they are willing to subject a patient to all the miseries that are associated with a gluten challenge (especially during your birthday). IMO, gluten challenges are primitive, inappropriate medical procedures that should have never been approved in the first place, let alone allowed to survive this long as a legal test option.

Did your doctors even test your DNA to verify that you have a celiac gene? If you do not have a celiac gene, then I can absolutely guarantee that your test results will be negative, because there is no way that you could accrue enough small intestinal damage to trigger positive test results in the relatively short amount of time that's devoted to a gluten challenge (unless you have either a DQ2 or DQ8 celiac gene).

I have no idea how one should prepare for such events. You're tougher than I am, because I don't think I could go through with that during a gluten challenge. For me at least, the gluten challenge would take all the fun out of it. I think you're right, that Imodium should help.

I hope that everything goes well, and a good time will be had by all.

Tex

Leah · Post by **Leah** » Mon Jun 03, 2013 12:16 pm

I don't understand why you would have to eat gluten for an Endoscopy. Tex?
I go to restaurants all the time John and can easily order gluten free. Mexican works well. So does a burger without a bun.
I guess Immodium will help.
Happy birthday!

Leah

Post by **tex** » Mon Jun 03, 2013 3:02 pm

Leah,

Ian is doing a gluten challenge at the request of his doctor. GI specialists are happier when they can punish patients by coercing them into doing a gluten challenge so that the doctor can go through the motions of pretending to rule out celiac disease.

Besides, I'm not sure that restaurants in England offer Mexican fare.

Tex

Gabes-Apg · Post by **Gabes-Apg** » Mon Jun 03, 2013 3:05 pm

few years before my MC Dx, I got PUSHED by the GP to do the gluten challenge for the celiac test.

took me 4 weeks to recover.

Post by **tex** » Mon Jun 03, 2013 3:08 pm

And I'm guessing that the test result was negative. Right?

Tex

Leah · Post by **Leah** » Mon Jun 03, 2013 4:31 pm

Thanks Tex. Sounds dopey to me.

Leah

Hoggett · Post by **Hoggett** » Wed Jun 05, 2013 11:16 am

Hi everyone,

Thanks for the birthday wishes, hopefully its gonna be a good one. You are so right Tex, the GP's here don't care or should I say there hands are tied by the power above them. I understand that the NHS cannot afford to do things willy nilly but I think that genuine easy to spot cases should be dealt with sooner rather than later, I have had problems with MC now for well over a year and just feel as though I am being brushed to one side and ignored in a way. I read a few years ago that the NHS priorities (sp) pateints i.e. if you are of working age and capable of working they do everything to get up fit and well, but as you get older/less well you go down the list. I have a feeling that because of everything that has happened to me I am at the bottom of the list for help.

Regarding testing my DNA, no I have been checked, well don't think so.

I am at the point where I feel like going GF on my own, but I don't want to give in and let the doctors win by saying theres nothing wrong with me. BTW I had to self diagnose myself having diabetes, so I know that the doctors don't seem to know much.

Ian

Zizzle · Post by **Zizzle** » Wed Jun 05, 2013 12:42 pm

I just broke down and bought one of the new Gluten Defense-type digestive enzymes, one that contains DPP-IV. Many pharmacies here carry their own brand, like CVS.

http://www.vitacost.com/vitacost-gluten ... ore-dpp-iv

I was glutened (or got milk) at breakfast this weekend -- dairy free veggie omelette and "gluten free" home fries. Turns out the home fries were deep fried in co-mingled oil, and the omelette looked suspicuiously milky. We went to see the Star Trek movie afterwards and I had to run out of the theater 3 times with violent D! The reaction was over in 8 hours, but I'm not taking chances anymore if I have to eat out. I'm taking a gluten enzyme anytime I don't prepare the food. Hubby needs it too, since he's not as careful as I am, and his neurological reactions are worse than my D!

coryhub · Post by **coryhub** » Wed Jun 05, 2013 2:02 pm

Hi Ian and Happy Birthday!

It seems silly your Doctor would have you worsen your condition by eating gluten. Better bring some Pepto Bismal along this weekend. My doctor had me doing lots of wrong stuff the first 6 months I was sick. Luckily, I found this board three years ago and received an education from reading Tex's book. Giving up gluten has been the only solution that's allowed me a semblance of remission from this nasty disease. Let us know how your test results turn out and may the end of June come quickly.

Best,
Cory

natythingycolbery · Post by **natythingycolbery** » Wed Jun 05, 2013 5:53 pm

Ian, slight tangent here, but have you looked into having food intolerance tests?

My GI sent me for lots of tests and said I had no food issues, but I still had issues eating, so did a test through Yorktest and came out with 22 intolerances!

Since cutting out these things I've found it easier going out to eat with friends and stuff.

Hoggett · Post by **Hoggett** » Thu Jun 06, 2013 7:17 am

Hi,
Has anyone ever had a glucose hydrogen breath test? I have to have one done on the 18th June for some reason, I assume it is something to do with my bowels.

I have thought about getting tested for intolerances but my GP says they don't work and not worth the money

Zizzle · Post by **Zizzle** » Thu Jun 06, 2013 8:27 am

I had a hydrogen breath test for Small Intestine Bacterial Overgrowth (SIBO) around the time of my LC diagnosis. It was borderline negative.

natythingycolbery · Post by **natythingycolbery** » Thu Jun 06, 2013 8:34 am

My GP actually told me to go for these tests! Don't you just love how they all say different things?

Hoggett · Post by **Hoggett** » Tue Jun 18, 2013 6:57 am

Well I went for my test, before you drink the glucose the reading supposed to be under 10 p.p.m. mine was 63 p.p.m.!!! that's after a 12 hour fast. They told me to rinse my mouth with water then checked me again after half a hour it had dropped to 43 p.p.m. So I have to go back at a later date to have it done again.GGGRRRRRRR

Ian