Hot During The Night

SweetSydney · Post by **SweetSydney** » Tue Jun 25, 2013 6:43 am

I wake up too hot during the night, even in the winter. I was wondering if it is related to my Lymphocytic colitis.

I am hypothyroid, but levels have remained stable, and my DO re-tests me, on a regular basis.

I also have MS. Not sure if being too hot during the night is related to it.

Sydney

carolm · Post by **carolm** » Tue Jun 25, 2013 10:10 am

Sydney, I'm guessing you are a woman. Could this also be menopausal, as in hot flashes? Has it been recent or has it gone on awhile? I'm through menopause but still occasionally have a hot flash. When I was peri-menopausal they were problematic and could occur anytime during the day or night-- and would even wake me up. They did not increase when I developed LC.

If it's not that then I would be suspicious of your thyroid like you are. I apologize that I don't know enough about MS to know if it's part of that of what you are experiencing.

Hopefully others with more experience will chime in here.

Carol

SweetSydney · Post by **SweetSydney** » Tue Jun 25, 2013 10:28 am

Hi, Carol.

Yes, you guessed right, I am female. No, the hot feeling is not menopause. I had a total abdominal hysterectomy in 2006, and I have been on the Vivelle Dot, since then.

And my DO tests my levels on a regular basis.

Thyroid levels are good on Armour.

I did have 1 hot flash, after the surgery, before I started estrogen replacement, and I know how it feels.

The way I am feeling, hot, is very different.

I don't get a "flash" of heat, I am just hot for hours. I can't sleep.

I am wondering if it is related to Rebif, because it started 4-5 months approx. after I started Rebif.

I was off of Rebif for a month, to see if it was contributing to my Lymphocytic colitis. I re-started last night, and I felt really hot in the early hours of the morning.

I am beginning to wonder if I am going to be able to tolerate a DMD.

Sydney

JLH · Post by **JLH** » Tue Jun 25, 2013 10:43 am

Check out Dr.Terry Wahls. Also, going GF may help your MS.

"Gluten Sensitivity: One Cause, Many Diseases

A review paper in The New England Journal of Medicine listed 55 "diseases" that can be caused by eating gluten. (iv) These include osteoporosis, irritable bowel disease, inflammatory bowel disease, anemia, cancer, fatigue, canker sores, (v) and rheumatoid arthritis, lupus, multiple sclerosis, and almost all other autoimmune diseases. Gluten is also linked to many psychiatric (vi) and neurological diseases, including anxiety, depression, (vii) schizophrenia, (viii) dementia, (ix) migraines, epilepsy, and neuropathy (nerve damage). (x) It has also been linked to autism.(ix)"
From Dr. Mark Hymans's article "What You don't Know About Gluten Might Kill You" http://www.huffingtonpost.com/dr-mark-h ... 79089.html

SweetSydney · Post by **SweetSydney** » Tue Jun 25, 2013 12:03 pm

Thanks-I've been GF for a very long time. It hasn't helped my MS and in all honesty, many of us in the MS community have little to no interest in Terry Wahls. I won't go into reasons.

I don't want to start a war.

Sydney

JLH · Post by **JLH** » Tue Jun 25, 2013 12:35 pm

OK.

Would you please tell me why in a private message? A friend is newly diagnosed.

gluten · Post by **gluten** » Tue Jun 25, 2013 1:32 pm

Hi Syndey, I would like to know why also because I work with a celiac support group that has people who have MS. Jon

SweetSydney · Post by **SweetSydney** » Tue Jun 25, 2013 1:49 pm

gluten wrote:Hi Syndey, I would like to know why also because I work with a celiac support group that has people who have MS. Jon

Jon,

I will pm you.

Sydney

Post by **tex** » Tue Jun 25, 2013 3:44 pm

Hi Sydney,

I think your suspicions are correct, your temperature problems are probably related to the Rebif. Have you by any chance previously read the threads at these links? They discuss this issue.

http://www.msworld.org/forum/showthread.php?t=101183

http://www.thisisms.com/forum/rebif-f6/topic5931.html

Tex

SweetSydney · Post by **SweetSydney** » Tue Jun 25, 2013 4:44 pm

tex wrote:Hi Sydney,

I think your suspicions are correct, your temperature problems are probably related to the Rebif. Have you by any chance previously read the threads at these links? They discuss this issue.

http://www.msworld.org/forum/showthread.php?t=101183

http://www.thisisms.com/forum/rebif-f6/topic5931.html

Tex

Thank you, Tex! Tex to my rescue again!!!!

Thank you for the links-I'm headed to read!!

I'm back-read all of the posts-I believe it is the Rebif.

carolm · Post by **carolm** » Tue Jun 25, 2013 4:47 pm

Well, Sydney, I'm clueless on the Rebif but it sounds like you were about to answer your own question. Glad Tex chimed in. I hope you get it sorted out. It sounds miserable and being sleep deprived won't help either your MS or your MC.

take care,
Carol

kayare · Post by **kayare** » Tue Jun 25, 2013 7:41 pm

I also wake up hot during the night the way Sydney describes. I have also had a hysterectomy and know the difference between this and a hot flash. My ex would tell me I would wake him up because I would get so hot.

Kathy

carolm · Post by **carolm** » Tue Jun 25, 2013 7:44 pm

Kathy, what do you think that is? I'm guessing you aren't on Rebif like Sydney is.

Carol

SweetSydney · Post by **SweetSydney** » Wed Jun 26, 2013 4:57 am

carolm wrote:Well, Sydney, I'm clueless on the Rebif but it sounds like you were about to answer your own question. Glad Tex chimed in. I hope you get it sorted out. It sounds miserable and being sleep deprived won't help either your MS or your MC.

take care,
Carol

Hi, Carol.

I believe, after reading the posts in the links, that Tex provided, it is the Rebif. I plan to finish two injections this week, and take the summer off.

You're right, it won't help my MS or my MC, to be sleep deprived.

Thanks so much.

Sydney

kayare · Post by **kayare** » Wed Jun 26, 2013 8:19 pm

No, I'm not on Rebif, and I really don't have an explanation. It has happened to me for as long as I remember - both before and after my hysterectomy and both before and after MC and my dietary changes. I had my thyroid levels tested a couple of times years ago with normal results. I just wake up sometimes and realize I am hot and, at times, perspiring - even on my scalp. It's happened for so long that I imagine I didn't think about it as abnormal until now. Does this happen to anyone else?

Kathy