I am wondering whether Entocort is the best med for mc.
I think I have a problem with salicylates (I certainly do topically and can't use cosmetics, lotions, shampoos, soaps, etc. with salicylates or I get a terrible rash) and the doc put me on Asacol. I am fine for about 6 days, with no symptoms then on day 7 I have multiple movements, then back to fine the next day.
Salicylates evidently build up (the bucket effect) and eventually cause a reaction.
Did you or do you take Entocort?
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Did you or do you take Entocort?
MC diagnosed 2007
Entocort EC (budesonide) is the safest effective medication currently available for treating MC.
I assume you are aware that mesalamine (the active ingredient in Asacol) is a derivative of salicylic acid. That's why most people who are sensitive to NSAIDs react adversely to mesalamine.
Tex
I assume you are aware that mesalamine (the active ingredient in Asacol) is a derivative of salicylic acid. That's why most people who are sensitive to NSAIDs react adversely to mesalamine.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Yes, I am aware of the problem with Asacol.
I just read about Entocort EC and am concerned that it lowers the immune system. I realize that in order to heal our immune system needs to calm down though.
In the beginning I was on Sulfasalazine and it worked well, but they had to take me off because my white blood count went down to 700.
I just read about Entocort EC and am concerned that it lowers the immune system. I realize that in order to heal our immune system needs to calm down though.
In the beginning I was on Sulfasalazine and it worked well, but they had to take me off because my white blood count went down to 700.
MC diagnosed 2007
I can eat three meats: turkey, lamb and pork, two vegetables: cauliflower and Brussels sprouts, three fruits: mango, cherries and rhubarb (so far), corn flour and almond flour and almond milk, arrowroot, and asparagus.
I devised a 3-day rotation diet three years ago on the MRT LEAP diet program. I've had to modify and eliminate several vegetables and flours over the years, but I still follow the basic rotation that I set up initially. Even if you can't rotate and have different foods every day, rotating some of them will help tell you which ones are the problem. Another nice thing about rotating meals is you don't get as tired of eating the same things every day. Like you, I have had problems with almost all vegetables and fruits. I'm thrilled that I seem to be able to eat two more fruits now.
Here is my 3-day menu plan:
Turkey day
Breakfast: waffle or pancakes with maple syrup and homemade turkey sausage
Lunch: homemade turkey soup with cauliflower and grits, almond muffin with cherry jam, slice washed, dried mango
Dinner: turkey, corn noodles and turkey gravy, almond muffin with cherry jam, slice washed, dried mango or
turkey burger between two tortillas with homemade mayonnaise and a slice of bacon
Pork day
Breakfast: Corn Chex cereal with almond milk
Lunch: corn tortillas with sliced pork and avocado, washed dried mango slice
Dinner: pork roast or pork chop with corn noodles and pork gravy, washed dried mango slice, corn muffin with mango jam
Lamb day
Breakfast: Jones pork sausage, fried polenta (GF from Trader Joe's), maple syrup
Lunch: corn tortillas with sliced lamb, homemade mayonnaise, washed dried mango slice
Dinner: lamb chop, gravy, cauliflower, brown sugar muffin with rhubarb, washed dried mango slice
Even though I eat few foods, I've been able to have a variety of meals because I change how I use the foods on each rotation day. There was a time when I hated eating my turkey and lamb dinners. I added corn noodles to the turkey dinner, different from the type of noodles I eat the day after with my pork dinner. I changed my lamb dinner by eating a lamb chop instead of a reheated leg of lamb slice. Sometimes I eat a turkey or lamb patty, which taste pretty good and provide a change.
I don't focus on what I can't eat, but rather try to be creative with what I can eat. The only time I long for a food is when DH cooks fried onions or melts chocolate at Christmas time. The smells are overwhelming, but somehow I get through it.
Some days I eat Fritos Scoops with my mango custard-type jam as a snack in the afternoon. Sometimes I eat canned mango or cooked frozen mango chunks from Trader Joe's.
I don't drink anything other than water. I only use almond milk in my cereal and in baking. I'm going to make almond yogurt tomorrow for the first time. I hope it turns out OK. I might not have enough room in my refrigerator with DD here.
Gloria
I devised a 3-day rotation diet three years ago on the MRT LEAP diet program. I've had to modify and eliminate several vegetables and flours over the years, but I still follow the basic rotation that I set up initially. Even if you can't rotate and have different foods every day, rotating some of them will help tell you which ones are the problem. Another nice thing about rotating meals is you don't get as tired of eating the same things every day. Like you, I have had problems with almost all vegetables and fruits. I'm thrilled that I seem to be able to eat two more fruits now.
Here is my 3-day menu plan:
Turkey day
Breakfast: waffle or pancakes with maple syrup and homemade turkey sausage
Lunch: homemade turkey soup with cauliflower and grits, almond muffin with cherry jam, slice washed, dried mango
Dinner: turkey, corn noodles and turkey gravy, almond muffin with cherry jam, slice washed, dried mango or
turkey burger between two tortillas with homemade mayonnaise and a slice of bacon
Pork day
Breakfast: Corn Chex cereal with almond milk
Lunch: corn tortillas with sliced pork and avocado, washed dried mango slice
Dinner: pork roast or pork chop with corn noodles and pork gravy, washed dried mango slice, corn muffin with mango jam
Lamb day
Breakfast: Jones pork sausage, fried polenta (GF from Trader Joe's), maple syrup
Lunch: corn tortillas with sliced lamb, homemade mayonnaise, washed dried mango slice
Dinner: lamb chop, gravy, cauliflower, brown sugar muffin with rhubarb, washed dried mango slice
Even though I eat few foods, I've been able to have a variety of meals because I change how I use the foods on each rotation day. There was a time when I hated eating my turkey and lamb dinners. I added corn noodles to the turkey dinner, different from the type of noodles I eat the day after with my pork dinner. I changed my lamb dinner by eating a lamb chop instead of a reheated leg of lamb slice. Sometimes I eat a turkey or lamb patty, which taste pretty good and provide a change.
I don't focus on what I can't eat, but rather try to be creative with what I can eat. The only time I long for a food is when DH cooks fried onions or melts chocolate at Christmas time. The smells are overwhelming, but somehow I get through it.
Some days I eat Fritos Scoops with my mango custard-type jam as a snack in the afternoon. Sometimes I eat canned mango or cooked frozen mango chunks from Trader Joe's.
I don't drink anything other than water. I only use almond milk in my cereal and in baking. I'm going to make almond yogurt tomorrow for the first time. I hope it turns out OK. I might not have enough room in my refrigerator with DD here.
Gloria
You never know what you can do until you have to do it.
I took Entocort for 6 months. I started with 3 pills a day and slowly weaned down and then off of it while I completely changed my diet. I worked great for me ( and quickly) and allowed me to live my life while I healed my gut. Even though others have had reactions to it, I had none and have not had to go back on it since ( a year ago).
leah
leah
Re: Did you or do you take Entocort?
I took entocort for a month, didn't help me at all. I took mesalamine and it helped me. I had that bucket effect, before I took any Meds.mcnomore wrote:I am wondering whether Entocort is the best med for mc.
I think I have a problem with salicylates (I certainly do topically and can't use cosmetics, lotions, shampoos, soaps, etc. with salicylates or I get a terrible rash) and the doc put me on Asacol. I am fine for about 6 days, with no symptoms then on day 7 I have multiple movements, then back to fine the next day.
Salicylates evidently build up (the bucket effect) and eventually cause a reaction.
I eat all animal proteins ( including eggs). I also eat rice and rice products. Corn tortillas and chips ( if fried in the right oil). Sweet potatoes during my first six months, but have added red potato in since. During the first six months I ate only cooked veggies. I have since added some raw veggies in ( small salad, a few carrot sticks, celery, homemade coleslaw). I can eat tree nuts also. Avocado is my cheese substitute :) Fruit is still a problem.
I must say that I could probably be more careful and restrictive with my diet... and if I was, I'm sure i would be in what you would call remission. However, I have an active life style and I'm out and about with my husband a lot. I always stay away from gluten, dairy, and soy but I take unknown risks when I eat out or am in a situation like camping. Because of that, I am in a state of "semi-remission". Like that word? I usually only go to the bathroom once in the morning, but it's only completely solid sometimes. There have been times when I know I have gotten cross contamination or have eaten something that my gut doesn't like and I will have D the next morning. I can live with that.
The thing is, because of my IgA deficiency, i can't use Enterolab for definitive answers, so it's all trial and error. I know I also have histamine issues, so I don't eat left over proteins and I take an antihistamine each day. I should also take high histamine foods OUT, but I have only cut back on them.
We all make our own decisions about how much we are willing to give up to feel good. I feel pretty good and can live my life without fear of not being by a toilet.Ya know? That's good for me :)
Leah
I must say that I could probably be more careful and restrictive with my diet... and if I was, I'm sure i would be in what you would call remission. However, I have an active life style and I'm out and about with my husband a lot. I always stay away from gluten, dairy, and soy but I take unknown risks when I eat out or am in a situation like camping. Because of that, I am in a state of "semi-remission". Like that word? I usually only go to the bathroom once in the morning, but it's only completely solid sometimes. There have been times when I know I have gotten cross contamination or have eaten something that my gut doesn't like and I will have D the next morning. I can live with that.
The thing is, because of my IgA deficiency, i can't use Enterolab for definitive answers, so it's all trial and error. I know I also have histamine issues, so I don't eat left over proteins and I take an antihistamine each day. I should also take high histamine foods OUT, but I have only cut back on them.
We all make our own decisions about how much we are willing to give up to feel good. I feel pretty good and can live my life without fear of not being by a toilet.Ya know? That's good for me :)
Leah
Yes, I am in remission and am having Normans every day.mcnomore wrote:Are you in remission now?
I am in the process of very slowly reducing my Entocort dosage from 3 mg every day. My method, for those who are interested, is for two weeks, I skipped taking Entocort for one day each week, seven days apart. I'm in the third week and I skipped taking a pill for one day after six days. I'll wait six more days and skip taking Entocort again. I'm going to continue this plan, shortening the number of days between skipping Entocort by one day every two weeks.
I agree with Tex's theory that the body reacts to the loss of corticosteroids by flooding the body with histamines, which in turn cause a return of MC symptoms. I am very susceptible to having histamine issues and need to proceed very slowly. Of course, symptoms can also return if not all food sensitivities haven't been removed.
So far, skipping Entocort 7 days apart and now, 6 days apart hasn't had any impact on my MC. I will lower the number of days apart until I see a degradation in my symptoms. From experience, I know that Entocort stays in my system for several weeks before the level reduces sufficiently enough for me to react to the reduction. I'm hoping this very slow taper gives me enough time to detect a problem so that I can better determine the dosage I need to remain in remission.
Gloria
You never know what you can do until you have to do it.
If you are symptom-free, you are in remission by definition, whether due to diet changes, use of one or more medications, a combination of diet changes and medication, divine intervention, or any other means.Leah wrote:Can you be in remission if you are still on Entocort?
Obviously if one is in remission while taking a medication, then remission may be conditional upon continuing to take the medication, just as being in remission by means of diet changes is conditional upon maintaining those diet changes.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.