I should find out the results sometime next week with the new labs. It also doesn't appear I have any problems with kidney function or stones. I had a comprehensive metabolic panel done and everything is within normal ranges except for a slightly elevated serum protein. Boy am I getting an education.And the hunt goes on.......
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And the hunt goes on.......
My endocrinologist is currently trying to determine whether I have primary or secondary Hyperparathyroidism. I just had my third lab drawn last Monday. The first set of labs showed PTH-83, calcium-10.2. At that time, I was supplementing with 6000 iu's daily of Vit. D and the lab value was 78 (over range). I stopped taking the D supplement and had another blood draw two weeks later. Results were PTH-121, calcium 9.4 and Vit. D-34. He seems to think my HPT is due to malabsorption. I don't know if I necessarily agree with him as even though I still have MC and at times still have secretory D, that happens only a few times per month. These labs are odd to me as I had only been off of Vit. D for a couple of weeks yet there is a huge change in values. I still can't help but think my MC, hypo thyroid and HPT are all interconnected as I don't have the typical IGA reactions. My Enterolab results showed I didn't react to anything. I should find out the results sometime next week with the new labs. It also doesn't appear I have any problems with kidney function or stones. I had a comprehensive metabolic panel done and everything is within normal ranges except for a slightly elevated serum protein. Boy am I getting an education.
I should find out the results sometime next week with the new labs. It also doesn't appear I have any problems with kidney function or stones. I had a comprehensive metabolic panel done and everything is within normal ranges except for a slightly elevated serum protein. Boy am I getting an education.
Hi Linda,
I agree with you — there is no way that your vitamin D level could drop 44 points in 2 weeks.
I don't understand why you labeled a vitamin D level of 78 as over range, however. The normal range for vitamin D in this country is 30–100 ng/ml.
I believe that I may have figured out your problem. Blood calcium levels fall as we age, but labs do not correct their stated reference ranges for age. I note that your calcium level is too high for your age. It should never be above 10.0. A level of 10.2 suggests that you may have a parathyhroid tumor. Please review the information at this site:
http://www.parathyroid.com/Normal-Blood ... Levels.htm
Your doctor seems to be lost. You may have to show him this information if he remains unconvinced.
Love,
Tex
I agree with you — there is no way that your vitamin D level could drop 44 points in 2 weeks.
I don't understand why you labeled a vitamin D level of 78 as over range, however. The normal range for vitamin D in this country is 30–100 ng/ml.
If HPT represents hyperparathyhroidism in that sentence, I don't understand what malabsorption could possibly have to do with it. If that were even possible, then most of us should have either hyperthyroidism or hyperparathyroidism, because most of us have malabsorption issues to some degree, and for some of us it is severe, yet we have never shown hyperthyroidism or hyperparathyroidism symptoms. He seems to be grasping at straws.Linda wrote:He seems to think my HPT is due to malabsorption.
I believe that I may have figured out your problem. Blood calcium levels fall as we age, but labs do not correct their stated reference ranges for age. I note that your calcium level is too high for your age. It should never be above 10.0. A level of 10.2 suggests that you may have a parathyhroid tumor. Please review the information at this site:
http://www.parathyroid.com/Normal-Blood ... Levels.htm
Your doctor seems to be lost. You may have to show him this information if he remains unconvinced.
Love,
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Good morning Tex,
I actually typed the wrong Vit. D level - it was 79. The normal range for this particular lab was 17-60. Researching further, I found that this was the inactive form of Vit. D. The second Vit. D lab value was for the active form. The range for that is >20. Anything >150 is considered possible toxicity. Doing a google search I found there are many references to secondary hyperparathyroidism due to malabsorption although that is pretty rare and like I said, I don't think that is it. I found a nomogram for determining whether primary hyperparathyroidism is indicated by inputting my lab values and both times it kicked back pHPT Indicated. Last time I was in to see him he did state that if my values are similar with this next round of labs he wanted to refer me to a surgical endocronologist. Having MC, I just think he wants to be thorough and more so he just wants to eliminate that possibility. In the best of all worlds, I'm hoping to be diagnosed with primary as the solution is much more black and white. There is a tumor growing in my parathyroid causing it to dump PTH hormone into my body. Surgically removing that will cure me. If it is secondary to malabsorption then god help me! I have yet to find a GI doctor that understands this condition. I've pretty much given up all hope on finding one that will treat the disease instead of the symptoms. Or look further as to just what is causing it in the first place. You specifically and this group as a whole have provided me more guidance than any doctor I've encountered and I thank you from the bottom of my heart. The last colonoscopy I had done I asked my. GI doctor to run a mast cell count and she refused saying "I can't have my patients requesting their own lab tests". She sent me to a specialist at the University of Michigan who also said mast cells weren't my problem and that she and every other doctor within her group has never encountered it and what I really needed was a psychiatrist and a nutritionist. Maybe I am crazy - many people with HPT were initially misdiagnosed with mental disorders.
I should know more next week when the next labs are made available. You are also correct that calcium ranges should be adjusted for age but there are many normocalcemic pHPT people out there. My last calcium level was smack dab in the middle of the range. I have read everything on parathyroid.com. It has a wealth of information on it and Dr. Norman has a way of explaining things that even a layman can understand. The problem with his website is that he pretty much focuses on primary and has little to say about secondary or tertiary disease. As I said, the hunt goes on......
Love,
Linda
I actually typed the wrong Vit. D level - it was 79. The normal range for this particular lab was 17-60. Researching further, I found that this was the inactive form of Vit. D. The second Vit. D lab value was for the active form. The range for that is >20. Anything >150 is considered possible toxicity. Doing a google search I found there are many references to secondary hyperparathyroidism due to malabsorption although that is pretty rare and like I said, I don't think that is it. I found a nomogram for determining whether primary hyperparathyroidism is indicated by inputting my lab values and both times it kicked back pHPT Indicated. Last time I was in to see him he did state that if my values are similar with this next round of labs he wanted to refer me to a surgical endocronologist. Having MC, I just think he wants to be thorough and more so he just wants to eliminate that possibility. In the best of all worlds, I'm hoping to be diagnosed with primary as the solution is much more black and white. There is a tumor growing in my parathyroid causing it to dump PTH hormone into my body. Surgically removing that will cure me. If it is secondary to malabsorption then god help me! I have yet to find a GI doctor that understands this condition. I've pretty much given up all hope on finding one that will treat the disease instead of the symptoms. Or look further as to just what is causing it in the first place. You specifically and this group as a whole have provided me more guidance than any doctor I've encountered and I thank you from the bottom of my heart. The last colonoscopy I had done I asked my. GI doctor to run a mast cell count and she refused saying "I can't have my patients requesting their own lab tests". She sent me to a specialist at the University of Michigan who also said mast cells weren't my problem and that she and every other doctor within her group has never encountered it and what I really needed was a psychiatrist and a nutritionist. Maybe I am crazy - many people with HPT were initially misdiagnosed with mental disorders.
I should know more next week when the next labs are made available. You are also correct that calcium ranges should be adjusted for age but there are many normocalcemic pHPT people out there. My last calcium level was smack dab in the middle of the range. I have read everything on parathyroid.com. It has a wealth of information on it and Dr. Norman has a way of explaining things that even a layman can understand. The problem with his website is that he pretty much focuses on primary and has little to say about secondary or tertiary disease. As I said, the hunt goes on......Love,
Linda
Linda wrote:The last colonoscopy I had done I asked my. GI doctor to run a mast cell count and she refused saying "I can't have my patients requesting their own lab tests".
My response to that would have to be, "And I can't have a doctor who refuses to at least consider my needs".Nope, it's not you — they're the ones who are nuts. They have never encountered a mast cell problem because they refuse to look for it, so it becomes a self-fulfilling prophecy. Like MC, you can't diagnose a mast cell problem unless you specifically look for it. And the fact that so many HPT patients were misdiagnosed with mental disorders is simply evidence that their doctors didn't know what they were doing, either.She sent me to a specialist at the University of Michigan who also said mast cells weren't my problem and that she and every other doctor within her group has never encountered it and what I really needed was a psychiatrist and a nutritionist. Maybe I am crazy - many people with HPT were initially misdiagnosed with mental disorders.
Yes, I noticed that Dr. Norman's site never seems to get past primary disease. Apparently that's all he's interested in.
I hope the latest test results provide some better insight.
Love,
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.