Hi! So I have some questions! Does anyone with mc still have severe stomach cramps/pain after going gluten free? I've been GF now for 6-7 months and I'm still having severe pain..I've only been diagnosed with "what looks like lymphocytic colitis" no signs of chrones or uc. I also have been tested for celiac w/ a blood test that was negative. The pain is Stabbing and debilitating and only lasts for maybe 15 min. I'm trying to understand if this is "normal" for people with microscopic colitis. My dr is wonderful but just doesn't have much information for me since my body didn't respond to entocort so he usually recommends Imodium to treat the d and talks about possible imuran. I just want to get my life back and finally feel good for a couple days on a row! Thanks everyone!!
Lindsey
Any tips?? Questions about pain
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Well, it sounds like you still have inflammation. When we are inflamed, our systems don't produce enzymes that help with breaking down certain foods. You should definitely try to cut out dairy. if the pain still persists, you should also try to limit fiber severely..... fruit, raw veggies, beans and legumes.
leah
leah
Hi Lindsey,
Some of us have a lot of pain until we reach remission, and some do not. I'm not sure if this is similar to what you're describing, but back when I was recovering, I would occasionally have what I would describe as a wave of pain that was apparently associated with cramps. Usually it came on suddenly, and sometimes the pain would quickly build to a level that was so intense that it would force me to stop whatever I was doing, and wait for it to pass. Fortunately, it usually only lasted for a few minutes at a severe level. I have a hunch that it was caused by gas shifting positions in my gut. Sometimes a bowel movement would relieve the pain if it didn't stop on it's own.
I would often have a constant pain that wasn't as severe, in my lower left quadrant, but I have a hunch that this may have been associated with diverticulitis. Of course anytime that I was bloated during a reaction, this in itself caused a lot of continuous pain.
I agree with Leah, most of us also have other food sensitivities in addition to gluten, such as dairy products and/or soy. So it's possible that you might be reacting to a food other than gluten
Tex
Some of us have a lot of pain until we reach remission, and some do not. I'm not sure if this is similar to what you're describing, but back when I was recovering, I would occasionally have what I would describe as a wave of pain that was apparently associated with cramps. Usually it came on suddenly, and sometimes the pain would quickly build to a level that was so intense that it would force me to stop whatever I was doing, and wait for it to pass. Fortunately, it usually only lasted for a few minutes at a severe level. I have a hunch that it was caused by gas shifting positions in my gut. Sometimes a bowel movement would relieve the pain if it didn't stop on it's own.
I would often have a constant pain that wasn't as severe, in my lower left quadrant, but I have a hunch that this may have been associated with diverticulitis. Of course anytime that I was bloated during a reaction, this in itself caused a lot of continuous pain.
I agree with Leah, most of us also have other food sensitivities in addition to gluten, such as dairy products and/or soy. So it's possible that you might be reacting to a food other than gluten
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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ObsessedMrFixit
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in my experience, I'd say you're probably still reacting to some food you're eating. Cutting out gluten has probably helped, but may not be the whole story. Have you had IgG testing for food intolerances? That may give you some hints as to what to avoid. Otherwise, start with dairy as mentioned above, and if that doesn't help, start eliminating the top 8 (in no particular order: dairy, soy, eggs, nuts, tree nuts, wheat, shellfish, fish).