It is so nice to here how well you are doing despite so much stress at work. Hooray for you, Carole.
Sheila W
You know you are in remission when.....
Moderators: Rosie, JFR, Gabes-Apg, grannyh, Mars, starfire, Polly, Joefnh
Thanks everyone for your kind and encouraging comments.
Tex, education has changed a great deal. Like Cathy said we are encouraged to get the other students out and allow property destruction if that what it takes. The kid I dealt with on Thursday had already caused his general ed room to clear, and when we moved him to the resource room, we ended up having to clear that room too. So now his behavior was affecting the learning of about 30 other kids, between the 2 rooms. It became an emergency situation when it looked like he was going to hurt himself or someone else. That leaves us virtually no other choice. In our case mom had shown us how she restrains him at home (picture a seated bear hug). He was pulling out all the stops showing us his whole repertoire of behaviors (kicking, hitting, biting, spitting, throwing himself on the floor, knocking over furniture, etc) but we didn't back down and stayed calm and consistent. Today we established broader response team and set up an office as a quiet bare room where he can go and we can supervise him but we won't have to restrain him. We are also using strategies like social stories and video modeling of desired behaviors, as well as reinforcing desired behaviors to shape and train new positive behaviors.
Cathy is right-- the hands-off trend comes from something going wrong and a law suit develops, then entire states issue a decision-- hands off unless harm is occurring. Even time-out is discouraged and has to meet a certain criteria to be ok. The child we were dealing with on Thursday has considerable neurological and psychiatric issues. If we can't get his behavior under control, we do have an alternative school in our district that is a collaborative program between the mental health center, the special ed cooperative and our school district. This school provides treatment and education for children whose behavior can't be managed in their home school. It's a life saver.
Ok I'm writing a book here-- don't get me talking about work. There is never a dull moment for school psychologists like Cathy and I--we have a jillion stories. And just when we think we've seen and heard it all, some crazy situation happens and proves us wrong.
Monique, The only meds I am taking are my Claritin, Zantac, and 10mg of Amitriptyline, plus a multivitamin, calcium, D3, B12, and folate. I was wondering if I need the Amitriptyline anymore....but why fight success. I'm going to leave everything the same.
Hang in there everyone. It took 2 years and many restrictions for me to get to this point-- even superhuman consistency at times-- but it does pay off and I am happy to share some good news for a change.
Carol
Tex, education has changed a great deal. Like Cathy said we are encouraged to get the other students out and allow property destruction if that what it takes. The kid I dealt with on Thursday had already caused his general ed room to clear, and when we moved him to the resource room, we ended up having to clear that room too. So now his behavior was affecting the learning of about 30 other kids, between the 2 rooms. It became an emergency situation when it looked like he was going to hurt himself or someone else. That leaves us virtually no other choice. In our case mom had shown us how she restrains him at home (picture a seated bear hug). He was pulling out all the stops showing us his whole repertoire of behaviors (kicking, hitting, biting, spitting, throwing himself on the floor, knocking over furniture, etc) but we didn't back down and stayed calm and consistent. Today we established broader response team and set up an office as a quiet bare room where he can go and we can supervise him but we won't have to restrain him. We are also using strategies like social stories and video modeling of desired behaviors, as well as reinforcing desired behaviors to shape and train new positive behaviors.
Cathy is right-- the hands-off trend comes from something going wrong and a law suit develops, then entire states issue a decision-- hands off unless harm is occurring. Even time-out is discouraged and has to meet a certain criteria to be ok. The child we were dealing with on Thursday has considerable neurological and psychiatric issues. If we can't get his behavior under control, we do have an alternative school in our district that is a collaborative program between the mental health center, the special ed cooperative and our school district. This school provides treatment and education for children whose behavior can't be managed in their home school. It's a life saver.
Ok I'm writing a book here-- don't get me talking about work. There is never a dull moment for school psychologists like Cathy and I--we have a jillion stories. And just when we think we've seen and heard it all, some crazy situation happens and proves us wrong.
Monique, The only meds I am taking are my Claritin, Zantac, and 10mg of Amitriptyline, plus a multivitamin, calcium, D3, B12, and folate. I was wondering if I need the Amitriptyline anymore....but why fight success. I'm going to leave everything the same.
Hang in there everyone. It took 2 years and many restrictions for me to get to this point-- even superhuman consistency at times-- but it does pay off and I am happy to share some good news for a change.
Carol
“.... people will forget what you said, people will forget what you did, but people will never forget how you made them feel.” Maya Angelou
Thanks for the reminder and encouraging words. I started GF/DF in Dec 2012 and EF/SF in 2012 and am still working at it. I am happy for those who noticed almost immediate improvements but it was frustrating that it took so long for me . There were many times i thought changing my diet so drastically wasnt worth it without results but could never convince myself i should stop trying. I never imagined it could take so long to heal but learning here made me understand- i didnt like it but it made sense. I also remind myself that it took thirty-some years to manifest, throw in some excessive use of ibuprophin, long term use of BCP, possibly genetics, and other underlying health issues and what do you expect?? I expected a couple weeks tops.
Deb
"Do not follow where the path may lead. Go instead, where there is no path, and leave a trail.
-Ralph Waldo Emerson
2007 CC
2013 thyroid cancer- total thyroidectomy
2013 Hashimoto's - numbers always "normal"
2017 Lyme's Disease
"Do not follow where the path may lead. Go instead, where there is no path, and leave a trail.
-Ralph Waldo Emerson
2007 CC
2013 thyroid cancer- total thyroidectomy
2013 Hashimoto's - numbers always "normal"
2017 Lyme's Disease
Deb-- It took 2 years and I never cheated in spite of having what I like to call 'diet burn out' . Any set backs were infrequent and due to accidental exposure to soy or gluten and stress (like my husbands heart surgery). I was told up front here on our PP sight to plan on 2 years for the gut to heal. My GI doc said the same thing and told me that 50% of my diet needed to be protein-- again just like what we've learned here. I believe my motility issues of the past year were at least partially to due to the fact that I wasn't completely healed. Somewhere in early August I turned the corner.
After the 2nd and 3rd week of being well all week, I REALLY wanted to trust it. Now I trust it and although I'm aware I could still have one miserable morning somewhere along the line, I know longer worry about it. I just keep whatever meds I would need with me and I am as prepared as I can be. Also I think it won't throw me into despair either if it happens since I've had many more good days than bad.
Take care and stay the course.
Carol
After the 2nd and 3rd week of being well all week, I REALLY wanted to trust it. Now I trust it and although I'm aware I could still have one miserable morning somewhere along the line, I know longer worry about it. I just keep whatever meds I would need with me and I am as prepared as I can be. Also I think it won't throw me into despair either if it happens since I've had many more good days than bad.
Take care and stay the course.
Carol
“.... people will forget what you said, people will forget what you did, but people will never forget how you made them feel.” Maya Angelou
Carol,
We all need to be reminded that this healing process takes time! I have been struggling with diet burn out....eating the same 7 foods has me crazy and obsessing for a more normal life! It's fall and apple season in PA! I want to make pies, sauce, pumpkin desserts! And, all the festivals around me are focused on the FOODS of the season!! We run a produce stand and I can only smell the fresh fruits and look at the yummy veggies. I tell myself it's not permanent, but it does get to me sometimes....I guess the cup is half empty right now, huh?
I just wanted to let you know that you have helped me realize that I am not alone, things will get better with time, and keep moving forward!
We all need to be reminded that this healing process takes time! I have been struggling with diet burn out....eating the same 7 foods has me crazy and obsessing for a more normal life! It's fall and apple season in PA! I want to make pies, sauce, pumpkin desserts! And, all the festivals around me are focused on the FOODS of the season!! We run a produce stand and I can only smell the fresh fruits and look at the yummy veggies. I tell myself it's not permanent, but it does get to me sometimes....I guess the cup is half empty right now, huh?
I just wanted to let you know that you have helped me realize that I am not alone, things will get better with time, and keep moving forward!
Linda :)
LC Oct. 2012
MTHFR gene mutation and many more....
LC Oct. 2012
MTHFR gene mutation and many more....
Linda, I tolerate almond flour well and started baking the Morning Glory muffins that someone posted here (carrots, apples, and raisin or dates, cinnamon, etc). They are addicting. I've also found a couple of recipes I like for pumpkin muffins and pumpkin bars that have helped with the cravings. I don't eat them daily but when the time comes that I have the strong cravings I have options. And I had these recipes a year ago, so it is possible to enjoy them while you are recovering. Helped with my burn out too. :)
A fruit stand sounds lovely. Wish I was in your neighborhood-- I'd come by.
Carol
A fruit stand sounds lovely. Wish I was in your neighborhood-- I'd come by.
Carol
“.... people will forget what you said, people will forget what you did, but people will never forget how you made them feel.” Maya Angelou
-
humbird753
- Rockhopper Penguin
- Posts: 1014
- Joined: Mon Nov 28, 2011 4:44 pm
- Location: Wisconsin
Carol - this is great news. Glad to hear you're doing so well.
This is a reminder to all of us that time and patience can pay off.
Paula
This is a reminder to all of us that time and patience can pay off.
Paula
Paula
"You'll never know how strong you are until being strong is the only choice you have."
"Life is not about waiting for the storm to pass... It's learning to dance in the rain."
"You'll never know how strong you are until being strong is the only choice you have."
"Life is not about waiting for the storm to pass... It's learning to dance in the rain."
Congrats Carol! So good to hear! I'm on my 2nd year of healing...my one year anniversary date of remission has come and gone this month. I now can eat more and I can pig out with no issues. I no longer think about BM's...they've been normal for over a year now. Every symptom has completely gone away. Only take the Amitriptyline since I've been on it for 20 years and can't get off the stuff. But that's okay. To tackle what you have been lately and not flared is amazing. You are definitely healing well....so happy for you. We had a death in our family over Labor day weekend and I thought I would flare, but only the ole eyes gave me an issue after crying...dang Blepharitis! It's such a relief though to not have one stomach issue!
Take Care,
Terri
Take Care,
Terri
Diagnosed with Lymphocytic Colitis in July, 2012 then with Celiac in November, 2012.
-
MBombardier
- Rockhopper Penguin
- Posts: 1523
- Joined: Thu Oct 14, 2010 10:44 am
- Location: Vancouver, WA
Oh, Carol, that's wonderful news!! It's been a long journey for you, and I'm soooo glad you are getting your life back!! YAY!!
Marliss Bombardier
Dum spiro, spero -- While I breathe, I hope
Psoriasis - the dark ages
Hashimoto's Thyroiditis - Dec 2001
Collagenous Colitis - Sept 2010
Granuloma Annulare - June 2011
Dum spiro, spero -- While I breathe, I hope
Psoriasis - the dark ages
Hashimoto's Thyroiditis - Dec 2001
Collagenous Colitis - Sept 2010
Granuloma Annulare - June 2011
-
UkuleleLady
- Gentoo Penguin
- Posts: 383
- Joined: Sun Jun 23, 2013 4:45 pm
- Location: Texas
Congrats Terri! LOVE reading the success stories here. It took me 1.5 years of a very strict diet, no cheating, to heal my gut. I am coming up on the 2 year "anniversary" of my diagnosis in Jan/Feb.-that's when I started playing with my diet and excluding things. My husband injured his back, ended up in the hospital for 1 week and had to have neurosurgery on his back (this was the beg. of August) and I thought for sure that I would flare due to the stress but I did not!tlras wrote:Congrats Carol! So good to hear! I'm on my 2nd year of healing...my one year anniversary date of remission has come and gone this month. I now can eat more and I can pig out with no issues. I no longer think about BM's...they've been normal for over a year now. Every symptom has completely gone away. Only take the Amitriptyline since I've been on it for 20 years and can't get off the stuff. But that's okay. To tackle what you have been lately and not flared is amazing. You are definitely healing well....so happy for you. We had a death in our family over Labor day weekend and I thought I would flare, but only the ole eyes gave me an issue after crying...dang Blepharitis! It's such a relief though to not have one stomach issue!
Take Care,
Terri
