You know you are in remission when.....

Updates from members who have been successful in controlling their symptoms.

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Gabes-Apg
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Post by Gabes-Apg »

Carol, big woo hoo and congratulations!!!!

Great news.....
I am sooo with you on the quality of sleep, and it's impact on the poop routine....

Take care
Gabes Ryan

"Anything that contradicts experience and logic should be abandoned"
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CathyMe.
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Post by CathyMe. »

Thanks all for the good thoughts. Leah, I recall we were diagnosed around the same time and I"m so happy you're in remission as well!
Quick story on hubby-he literally could not walk, I lugged him to the garage and he fell to the ground as we were trying to make it to a doctors apt. and I had to call the ambulance to transport him to the ER. We finally talked them into admitting him (after they pumped him full of every narcotic known to man with no relief), they did an MRI and found that a piece of herniated disc was pressing into his sciatic nerve, hence him not able to walk or sit without feeling like an electric shock was going through his body. The neurosurgeon went into his back, picked the piece of cartilage out of his nerve and by the next day he was up walking around in the hospital-truly unbelievable. While it was a completely frustrating experience (the ER doctors thought he was just med seeking and at one point came into the ER room and said, "we need to get you vertical"...that's a whole other story and the licensing board received a letter from me!!) the outcome has been almost miraculous. He had to take it easy for 2 weeks but is now completely back to his normal, physical job and activities. So yes, it was stressful for 7 complete days and I think this whole situation made me really realize that I really am in remission!!
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carolm
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Post by carolm »

Cathy, I'm glad he had such a quick and positive result from the back surgery. Can't believe the ER docs would try to "get him vertical" without looking at the xray or MRI results first. :roll:
Any way-- glad you are both doing well. I hope your school year goes well too.

Carol
“.... people will forget what you said, people will forget what you did, but people will never forget how you made them feel.” Maya Angelou
brandy
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Post by brandy »

Hi Carol, Cathy and Terry,

So glad you gals are doing better! I noticed a big change at about 23 months that my stamina/energy is finally back to normal. Brandy
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Lesley
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Post by Lesley »

How I wish I could join you in the remission celebrations.

Cathy - the story about your husband is chilling. When doctors don;t do the right tests, or interpret tests wrong the consequences could be so bad!
When I hurt myself this time I first went to Urgent Care after 5 days of walking the dog. The doc there sent me for xrays (agony to get into the right position) and spotted the fracture. I learned that she couldn't send me directly for the MRI from there, but could only refer me onwards. Frankly I think she should have sent me straight to the ER, but the radiologist's report said there was not much change, and actually I was doing quite well.
Which is what my PCP told me also. 3 days later I got myself a walker, because I could NOT work without it. I was in such agony I took myself to the ER, where they sent me for an MRI chop chop.
It really was quick. The doctor got a neurosurgeon on the phone and showed him the results. The NS said NOT to send me home without a brace. My back is a real mess.

And yet - initial x-ray readings, according to the radiologist, were good. And it was OK for me to go home and walk around.

I was lucky because I have a lot of medical training, knew what I should do, and went to the ER when I felt it was getting dangerous.

What do other people do?

P.S. On second thoughts - I have a "dangerously high pain tolerance level" (actual dx) for a variety of historical reasons, mostly to do with being pushed after having had polio, and learning to push myself. Others might have gone to the ER earlier.
I just wonder.....
However,
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carolm
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Post by carolm »

Lesley, I also wish you could join in the remission celebrations. I'd very much like to see that for you.

Brandy, are you back from your cruise? How was it? How did you do MC-wise?

Carol
“.... people will forget what you said, people will forget what you did, but people will never forget how you made them feel.” Maya Angelou
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