Entocort

JLH · Post by **JLH** » Fri Oct 11, 2013 8:11 am

How long did it take to work for you? Does it help 100%?

lorimoose · Post by **lorimoose** » Fri Oct 11, 2013 11:49 am

Hi Joan,

I had major improvement within a week. Within 2 weeks I was experiencing C and lowered the dose. I seem to be very sensitive to entocort, and within 8 weeks I completely weaned off, until I was down to 1 pill every third day, and then I stopped. I am not 100% (is anybody?), but I am very, very good. I think the entocort gave me time to let my diet heal.

I hope you feel much much better soon.

Lori

JLH · Post by **JLH** » Fri Oct 11, 2013 12:05 pm

Thanks, Lori. I'm glad it helped you so well. I guess I am the opposite.

DH did point out lactose in the ingredients list.

Maybe, that's my problem.

Leah · Post by **Leah** » Fri Oct 11, 2013 6:14 pm

It helped me almost right away. I was on the full dose for a month ( while doing a pretty strict elimination diet), 6 mg. for a month, 3 mg. for two months and then spent the last two months slowly weaning off and fine tuning the diet.

Leah

Leah · Post by **Leah** » Fri Oct 11, 2013 6:16 pm

... and can I say I am 100%? Not really, but I have added things to my diet and take a few food risks here and there. i am doing well and can easily live with how I am now.

Leah

DJ · Post by DJ » Fri Oct 11, 2013 8:44 pm

JLH wrote:How long did it take to work for you? Does it help 100%?

I started Entocort while on an extremely restricted diet, mostly meat and sugar and the diet and Entocort helped in combination. I was on 9 mg for two months, 6 mg for two months and will probably remain on 3 mg for at least 3 months. It helps but not 100%. I am still careful how many veggies I consume and I try to avoid my offending foods 100%.

JLH · Post by **JLH** » Sat Oct 12, 2013 8:55 am

Thanks very much.

I think I'm just getting thrush from it. It may be helping a little bit, I don't know........

Lesley · Post by **Lesley** » Sat Oct 12, 2013 2:17 pm

Thrush - oy! Where? upstairs or downstairs?

JLH · Post by **JLH** » Sat Oct 12, 2013 3:20 pm

Mouth/tongue.

Jeanemcl · Post by **Jeanemcl** » Sat Oct 12, 2013 3:39 pm

I was on 9 mg for a month, 6 for a month and 3 for a month and that did the trick for me the first time. The last 3 times my Gi has tried to shorten that and I have had trouble. This time I was on 6 mg for a month and I kept getting worse. I have started back on the 9 and after listening to people on this site I am just eating a few foods. Yesterday and today I ate white rice, turkey, chicken ( think I will stay with just turkey a few more days) and applesauce. I have to have black coffee in the am (which I am getting used to) or my head kills me! I got some ginger ale today as that seems to help with the nausea.

Lesley · Post by **Lesley** » Sat Oct 12, 2013 9:35 pm

When I get thrush I use clotrimazole Troche which I dissolve in my mouth. The prescription calls for 5 a day. I never have to get that far.
I used to eat a lot of yogurt

no more.

Trish RN · Post by **Trish RN** » Sat Oct 12, 2013 10:53 pm

Entocort worked for me in one day. :) I was on 9 mg.

DebE13 · Post by **DebE13** » Sun Oct 13, 2013 11:37 am

At 9mg I don't notice a terribly big difference than at 3mg anymore. However, I've been trying to get off it for what's seems to be forever. Been taking it since February of 2012. I just don't like the idea of high doses anymore. When I started, I was still learning about food elimination but I've been GF, SF, DF, EF for some time now and I still can't get below 3mg every third or fourth day. After a period of time at that dose, I start getting gurgley, then very nervous about a the possibility of a swift decline. I usually then take one 6mg dose and it calms that down and I continue as usual. I still am in the bathroom 3-4x each morning with D. Stress and histamines factor into this because out of nowhere I will have almost Normans with no change in diet. Makes it difficult to pinpoint foods. Seems my work life and family life is a roller coaster of ups and lots of downs. It's always something. I keep hoping a good attitude will help but I'm finding optimism alone isnt cutting it. I probably don't have the best entocort plan but it's what I'm doing until I can figure out something better.

janet · Post by **janet** » Sun Oct 13, 2013 8:54 pm

after 6 weeks on entocort 3mg x 3 pills per day I have had four days incl. today free of d. I have had 20 years of mc and this is the first time I have been free of it.
I feel nervous still, its habit, still look for where the toilets are.
At the end of the day I relax and thank God, I hope this freedom keeps up, is all I can say.
Tex is right when he says you cant rush things.
I was guilty of that when I first started taking Entocort.
Well Im still young enought to learn. So thanks to all my friends out there, I will keep you posted. Love Marie

Jeanemcl · Post by **Jeanemcl** » Mon Oct 14, 2013 4:19 am

I am amazed how so many of us keep chugging along in spite of this. I read the posts and realize so many of you deal with so much more than me and I have no right to whine! The fact of the matter is that I feel like this episode (3rd in 1 yr) has kicked my butt (no pun intended). I keep alternating between pushing myself through it or stopping more to heal. I have missed 5 days of work in the past 3 weeks because of fatigue. I am getting out side and walking which helps, but I am struggling. I live alone so I certainly don't have to deal with what so many of you do. I can retire if I have to....so that is not hanging over my head...yet that old work ethic is dangling over me telling me to get back there and work. I pushed myself in Sept and was out of town 3 weekends. Maybe that was too much or was it good for me because it got my mind off from obsessing over this issue.?? Thoughts? Experience?

Thanks my friends for being there.

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