dosage of enterocort

Personal experiences with various medications used to control the symptoms of Microscopic Colitis and related issues, should be posted here.

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rachdemots
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dosage of enterocort

Post by rachdemots »

I am newly diagnosed and my GE doctor put me on 6 mg of enterocort a day for two months. I am two weeks in and thought I was feeling a bit better but had a backslide today. I am wondering if I should call her and ask her to bump it to 9mg a day to get this under control. It seems that is a more common dosage for starting, right? I just want to feel better, have been feeling really bad for two years now.... :sad:
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tex
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Post by tex »

9 mg is the regular label treatment dose, and 6 mg is the label maintenance dose. Your doctor is apparently a rookie at treating LC. :roll:

Based on the improvement in your symptoms, mentioned in your other posts, if you cut out oats and cut down on fiber, you may do just fine on 6 mg, though. The point is, for most of us, budesonide (even at full dosage) can usually mask secondary food sensitivities, but it often will not mask the major food sensitivities. IOW, for many of us, if we accidentally ingest gluten, a full dose of Entocort is still not going to prevent a reaction. YMMV.

Tex
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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
rachdemots
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Post by rachdemots »

Ok..I guess I will give up the oats :sad: ..I am having a hard time finding stuff to eat for breakfast...my doctor is definitely a rookie..SD is a rather unpopulated state and the doctors have less exposure to different conditions because of it...plus she is younger than me :wink:
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Post by lorimoose »

Hi Rachdemots,

Breakfast can be tricky, and I had to let go of what I thought was "normal". I eat the same thing for breakfast that I would for any other meal. Usually, I have a stew of chicken or beef, cooked veggies, and rice or potatoes. There are some breakfast sausages that are GF DF SF EF, and bacon too (check ingredients for additives). Chex cereal is a good choice with alternative milks, if you like more traditional breakfast food.

I miss my hard roll with butter, that I used to pick up on the way to work....but I wonder if it was more the social aspect of meeting the folks at the deli and just chatting, before going into work.

It will get easier, and it will even be a delight, once you feel a bit better. I hope that happens soon for you!

Lori
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Post by Gloria »

I miss eggs for breakfast. My substitution, albeit a poor one, is to fry slices of GF polenta (from Trader Joe's) in oil. I eat them drizzled with maple syrup and have pork sausage links on the side.

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rachdemots
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Post by rachdemots »

Thanks everyone. I have been doing the bacon and gf sausage. What about potatoes..do they seem to bother you? (like homemade hashbrowns, breakfast potatoes?)
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rachdemots
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Post by rachdemots »

Oh, and I did get my dr. to up me to 9mg endocort.
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tex
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Post by tex »

Most of us can tolerate potatoes just fine, but a few members are sensitive to them. The type of starch in red and yellow potatoes is easier to digest than the starch in white (Russet) potatoes, and sometimes that can make a difference for some of us. Red and yellow potatoes are known as waxy potatoes, because they contain mostly amylopectin starch. The amylos starch in Russets and other non-waxy potatoes is based on a longer-chain molecule that's more difficult to digest.

Hash browns are a good option for breakfast for those of us who can tolerate potatoes.

Did increasing the Entocort dosage help?

Tex
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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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SIE EFFECTS OF REDUCING ENTECORT

Post by janet »

HELLO PALS, CAN ANYBODY ENLIGHTEN ME TO WHEN THE SIDE EFFECT OF TAKING ENTOCORT LEAVE MY BODY AND I AM BACK TO NORMAL.
I HAVE WEAKNESS IN MY THIGHS, AND RED PATCHES ON MY ARMS, HAIR COMING OUT TIREDNESSS I COULD GO ON.
HAS ANYBODY XPERIENCES THESE THINGS AND EVEN THOUGH I AM NOW DOWN TO 1 PILL PER DAY I AM SEEING MY GASTRO DR IN MARCH AND AM EXPECTING HIM TO TELL ME TO FINISH TAKING THEM. FINGERS CROSSED.
NO - THEY HAVENT CURED ME, SORRY TO SAY, A BIT BETTER. BUT I STILL TAKE 3 OR 4 EMODIUM BEFORE I VENTURE OUTDOORS. CAN YOU PLEASE GIVE ME HOPE. THANKYOU FOR READING MY MOANS AND GROANS, I AWAIT YOUR REPLIES. KINDEST
MARIE
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tex
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Post by tex »

Hi Marie,

I'm sorry to hear that the Entocort hasn't stopped your symptoms, and you're having so many side effects. For most people, the side effects will slowly fade away, beginning a few days after they stop taking the Entocort.

Have you tried taking an over-the-counter antihistamine? For many of us, antihistamines work almost as well as Entocort. And some of us have found that when Entocort does not stop all our symptoms, taking an antihistamine sometimes brings relief.

Tex
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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
janet
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Post by janet »

HELLO TEX AND THANYOU, I HAVE PRESCIBED MYSELF AN OVER THE COUNTER ANTIHISTAMINE TABLET 1 PER DAY BENODRYN 25 MG'S
AFTER READING ON YOUR FORUM ABOUT THE BENIFITS I THOUGHT I WOULD GIVE IT A GO.
I TAKE IT IN THE EVENING, AND HAVE BEEN DOING SO FOR ABOUT 3 WEEKS NOW.
I WOULD SAY PERCENTAGE WISE THERE HAS BEEN A 30 - 40 % IMPROVEMENT IN MY BM'S. I WAS HOPING FOR A REMISSION EQUAL SAY TO 2 YEARS.

THANKYOU SO ONCE AGAIN. BEST WISHES
MARIE I SHOULD CALL MYSELF MOANING MINNIE
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tex
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Post by tex »

Hi Marie,

I'm glad to hear that it seems to be helping. You are taking a very low dosage. Increasing the dose might help to bring more improvement.

Tex
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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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