All the way to 9 again?

Personal experiences with various medications used to control the symptoms of Microscopic Colitis and related issues, should be posted here.

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Thumbs
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All the way to 9 again?

Post by Thumbs »

Hi..
I have been tapering down per the MD orders and was doing fine with 2 days on 3mg of Entocort and one day off... then I went to every other and viola... its back. I just started taking 3mg daily again but my question is do I try this for a few days at 3mg or do I need to go all the way back up. I have been on Entocort for at least 6 months. I had an oral thrush infection from some dental work so it was either the yeast medication, my nasty cold, or the peanut butter scoop that did me in. It did not help that the green beans that I had at a family dinner yesterday were not soft.. but a bit crunchy. I have already gone 5 times today. I have been going to acupuncturist and God bless her I she did an Indian dance (not really, but she went all out) around the table with smoke and masa? to help me. Alas... I realize I am going to have to look harder at my foods and supplements.
I made an appointment with my Gastro as I only have enough Entocort for 20 more days and if he decides that I need to be done..... I have read that some people do well with some Effexor? or Elavil? but that is risky right? I will pull all my supplements again excluding the Allegra (Can I try two a day).. Should I supplement with Pepto? anything else I can do to avoid a total setback?- Any positive helpful advice would be appreciated. I am feeling frustrated to say the least.
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tex
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Post by tex »

Hi Thumbs,

Deciding on dosage is often a tough decision. Due to the way that corticosteroids work, many people find it necessary to go back to a full dose in order to nip a flare in the bud in a reasonably short amount of time. But some of us are more sensitive to it than others.

Your flare may have been due to the dental work, especially if it involved any cleaning compounds. Many of them contain gluten, and dentists aren't even aware of the risks, or dentists or dental hygienists think that it doesn't matter. Or it could have been any of the things that you mentioned.

Small doses of Elavil seem to be beneficial for some patients, while for others, it causes MC. Likewise for SSRIs such as Effexor.

Regarding off-label doses of OTC antihistamines, allergists often prescribe up to 4 times the labeled dose when treating serious cases of urticaria, so presumably anything less than that should not cause any problems.

If your GI doctor won't renew your Entocort prescription, the Pepto-Bismol treatment is certainly worth a try. Some of us have found that once we have a prescription for Entocort on our record, if our GI doc won't renew a prescription, our PCP is often more understanding, and willing to renew the prescription.

Good luck with turning things around, and please keep us posted.

Tex
:cowboy:

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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