First post. Hello everyone.
I'm writing on behalf of my 81 - soon to be 82 y.o. mum. She's do been so terribly ill since start of Oct. and was diagnosed with what seems to be the common denominator here, collagenous colitis. Good news initially, she was prescribed prednisone 25mg daily, and for 3 days was high as a kite. Then, she was unable to sleep, 2-3 hrs night and broke out in small amount of hives. So she was then prescribed Entocort - couldn't stop sleeping but then became very weak and fatigued, terrible struggle to get from one room to another - and this is one crazy, non stop lady. Her appetite was also affected, soooo back to prednisone and decided to put up with sleeplessness (was taking sleeping pills) but she is now riddled with hives. Has anyone tried treatment without steroids? Any info would be so much appreciated.
This is such a hideous disease, I'm so very sorry to those of you that are suffering from it and sincerely, sincerely, hope you get at least some relief, if not total cure, REALLY soon.
Shirl's girl.
allergic to prednisone
Moderators: Rosie, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
Sure, most of us here have controlled our symptoms by making diet changes, and many of us have done it without even trying medications. The medications only work to mask the symptoms temporarily, anyway. As soon as they are withdrawn, the symptoms return. And the longer one continues to use prednisone, the greater the risk of permanent damage to the adrenals, and other organs.Shirl's girl wrote:Has anyone tried treatment without steroids? Any info would be so much appreciated.
Virtually all of us who have this disease are sensitive to gluten, despite negative celiac blood test results. The blood tests are very unreliable. In addition, most of us are also sensitive to all dairy products, soy, and most legumes. Some have other food sensitivities. Often, the longer we react before we change our diet, the more food sensitivities we will have.
Many people are very reluctant to make such a drastic lifestyle change, but avoiding the foods that are causing the inflammation in our intestines makes the difference between getting our life back or living the rest of it afraid to stray very far from a bathroom.
Don't expect her doctors to be aware of this, because most of them will insist that diet has nothing to do with treating the disease. They are dead wrong — diet has everything to do with treating this disease.
Again, welcome aboard, and please feel free to ask anything.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Gabes-Apg
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Hi Shirl's Girl
I am sorry that your mum's MC journey has started so horribly.... MC is messy enough!
As tex said, many get good management of the symptoms with minimal to no medications. setting up and adhering to a strict eating plan is not easy, and you have to follow it 100% to allow the body to heal and to minimise the chance of major flares occurring again.
If you think your mum is up to this we can provide you with guidance etc
Med wise, there are some non steroid options (OTC and Script) that can reduce poop speed, that will make life a bit easier. mindful that you are band-aiding some of the symptoms, and susceptible to flares
given your mums age, and depending on any other health issues, you might want to ponder these options.
whether you decide on diet only, diet and some OTC/Script meds, or OTC/Script meds, improvement will take time, anything from 1 month to 6 months (and for 5-10% longer). the sad reality of MC is that for most, there is no quick fix.
Where about in Aus are you? if you want to have a chat on the phone, send me a PM and I can give you a call.
I am 44, had MC for four years. I used some OTC/Script meds for 3 months while I implemented my diet plan, i have followed a Gluten Free, Dairy Free, Yeast Free, Soy Free, low fibre, low inflammation eating plan for the four years.
My mother, similar age to your mum was diagnosed with Crohns in her late 50's and now has a stoma.
Reading some of the posts here, you may get a bit overwhelmed by all the elements that is life with MC, (it can feel like you have arrived in a foreign country and you are struggling to understand what people are saying) take your time, it will get easier, as I said if you want to have chat let me know
take care
healing hugs for your mum
I am sorry that your mum's MC journey has started so horribly.... MC is messy enough!
As tex said, many get good management of the symptoms with minimal to no medications. setting up and adhering to a strict eating plan is not easy, and you have to follow it 100% to allow the body to heal and to minimise the chance of major flares occurring again.
If you think your mum is up to this we can provide you with guidance etc
Med wise, there are some non steroid options (OTC and Script) that can reduce poop speed, that will make life a bit easier. mindful that you are band-aiding some of the symptoms, and susceptible to flares
given your mums age, and depending on any other health issues, you might want to ponder these options.
whether you decide on diet only, diet and some OTC/Script meds, or OTC/Script meds, improvement will take time, anything from 1 month to 6 months (and for 5-10% longer). the sad reality of MC is that for most, there is no quick fix.
Where about in Aus are you? if you want to have a chat on the phone, send me a PM and I can give you a call.
I am 44, had MC for four years. I used some OTC/Script meds for 3 months while I implemented my diet plan, i have followed a Gluten Free, Dairy Free, Yeast Free, Soy Free, low fibre, low inflammation eating plan for the four years.
My mother, similar age to your mum was diagnosed with Crohns in her late 50's and now has a stoma.
Reading some of the posts here, you may get a bit overwhelmed by all the elements that is life with MC, (it can feel like you have arrived in a foreign country and you are struggling to understand what people are saying) take your time, it will get easier, as I said if you want to have chat let me know
take care
healing hugs for your mum
Gabes Ryan
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama