there is no such thing as gross in this family.
again our lives sound like an episode of the amazing race, you have to think outside the square to win
sore rear end!
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
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MaggieRedwings
- King Penguin
- Posts: 3865
- Joined: Tue May 31, 2005 3:16 am
- Location: SE Pennsylvania
I wanted to add that I had what I consider to be very bad symptoms of burning and itching for YEARS as result of MC-really unpleasant. I also have lichens sclerosis, which is an auto-immune condition that affects that area of the body. The only thing that worked was a prescription steroid cream that, over time, thins the skin. As soon as I stopped using it, the symptoms came back. I finally have my MC symptoms under control and wanted to tackle the skin problems.
A friend recommended going to see her dermatologist who had helped her with a skin condition in the genital area. Am I glad I did! She was extremely thorough and had many great recommendations. One is to take baths with vinegar or bleach (like swimming in a chlorine pool.) Another is to use Theraflex which helps to keep the skin hydrated and protected. She took biopsies and learned that I had really bad bacterial infections in that area (not surprising with 20 years of D several times a day). She recommended some bacterial cream and washing with a surgical scrub for several days, changing sheets and towels until the infection was gone. In sum, if you are having continuing bad problems with your skin, consider going to a dermatologist. I was so grateful I cried during the visit....... Good luck,
Alice
A friend recommended going to see her dermatologist who had helped her with a skin condition in the genital area. Am I glad I did! She was extremely thorough and had many great recommendations. One is to take baths with vinegar or bleach (like swimming in a chlorine pool.) Another is to use Theraflex which helps to keep the skin hydrated and protected. She took biopsies and learned that I had really bad bacterial infections in that area (not surprising with 20 years of D several times a day). She recommended some bacterial cream and washing with a surgical scrub for several days, changing sheets and towels until the infection was gone. In sum, if you are having continuing bad problems with your skin, consider going to a dermatologist. I was so grateful I cried during the visit....... Good luck,
Alice
Got my life back after following gluten free diet (and other modifications) for one year.
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Gabes-Apg
- Emperor Penguin
- Posts: 8332
- Joined: Mon Dec 21, 2009 3:12 pm
- Location: Hunter Valley NSW Australia
Alice, I too have lichen sclerosis, and a couple of months ago got anal fissures at the same time as the sclerosis was flaring....
(Not the ideal in a hot humid Aussie summer)
I did salt washes/baths 3-4 times a day.
I think the commercial flush able wipes have too much soy for me, so have been buying kitchen wipes in bulk, cutting them into 3rds and using them, and throwing them away after use.
I used coconut oil which helped the skin to heal.
It has taken me 3 months, and things are all calm again...
(Not the ideal in a hot humid Aussie summer)
I did salt washes/baths 3-4 times a day.
I think the commercial flush able wipes have too much soy for me, so have been buying kitchen wipes in bulk, cutting them into 3rds and using them, and throwing them away after use.
I used coconut oil which helped the skin to heal.
It has taken me 3 months, and things are all calm again...
Gabes Ryan
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
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rachdemots
- Little Blue Penguin
- Posts: 27
- Joined: Wed Oct 16, 2013 7:20 pm
enterolabs question
I have decided I will do the enterolab testing..just wondering how not eating gluten for a while will affect my results. Do I have to been eating gluten/dairy for it to test properly??
NewdiagnosedinSD
The EnteroLab tests are sensitive enough to reliably detect anti-gliadin (gluten) antibodies for at least a full year after gluten is withdrawn from the diet, and in many cases their tests will still detect anti-gliadin antibodies up to 2 years after gluten has been withdrawn from the diet. The other foods are a different matter, though. The reason why gluten antibodies can be detected for so long in stool samples, is because their half-life is 122 days. As a result, gluten antibody levels decay very slowly after gluten is withdrawn from the diet.
By contrast, the half-life of most other food antigen antibodies is approximately 6 days. Therefore, these antibody levels decay much faster, after the foods have been withdrawn from the diet. Because of this, the length of time after dairy has been withdrawn from the diet, during which antibodies can still be reliably detected, will depend on how long you have been reacting to dairy (if you are producing antibodies to casein). The longer we react, the higher our antibody level will climb. For most people, the EnteroLab test will reliably detect casein antibodies for approximately several months after all casein has been withdrawn from the diet. In some cases detection is still possible up to about 6 months afterward.
The biggest caveat here is whether or not you have been using Entocort, because if you have been using it for at least several months (or if you have been using it, but only stopped using it a month or so ago), then your ability to produce IgA antibodies may be sufficiently compromised that your antibodies may be suppressed to undetectable levels, so that the tests might yield false negative results.
I hope this is helpful.
Tex
By contrast, the half-life of most other food antigen antibodies is approximately 6 days. Therefore, these antibody levels decay much faster, after the foods have been withdrawn from the diet. Because of this, the length of time after dairy has been withdrawn from the diet, during which antibodies can still be reliably detected, will depend on how long you have been reacting to dairy (if you are producing antibodies to casein). The longer we react, the higher our antibody level will climb. For most people, the EnteroLab test will reliably detect casein antibodies for approximately several months after all casein has been withdrawn from the diet. In some cases detection is still possible up to about 6 months afterward.
The biggest caveat here is whether or not you have been using Entocort, because if you have been using it for at least several months (or if you have been using it, but only stopped using it a month or so ago), then your ability to produce IgA antibodies may be sufficiently compromised that your antibodies may be suppressed to undetectable levels, so that the tests might yield false negative results.
I hope this is helpful.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.