Whipworms have given me first good days in 6 years

[tex]

Hi chaflores,

I'm not aware of any legal (or even practical) way to obtain helminth ova from any source within the U. S. You would have to either go to Canada, Autoimmune Therapies, or cross the border into Mexico for treatment, Worm Therapy..

You might be able to order the ova from a German company Ovamed GmbH, but I'm not absolutely sure that they provide this service. I've never given much thought to their option, since I've read that they charge $10,000 per year for treatment. A few years ago, it was possible to order the ova at a very reasonable cost from a lab in Thailand. Apparently this lab was affiliated with the German company, but I've lost the link to the site where they could be ordered, unfortunately.

The only current source where Trichuris suis ova can be ordered at a more reasonable cost, that I'm aware of, is here, (this source is located in Thailand).

Please be aware that you are strictly on your own, if you undertake this project, because there is no support available from the FDA, the medical community, or anyone else in this country. And while I am responding to your request for information, I am in no way recommending that you try this treatment.

Just for the record, most of us here control our symptoms by eliminating all traces of food sensitivities from our diet, primarily gluten, dairy, and soy.

If you try this, good luck with your treatment, and please keep us informed of your progress.

Tex

[coryhub]

Thanks for the information Tex. It's a radical treatment and I would not risk it unless I was desperate and had nothing to lose. It is a fascinating treatment idea. I am hoping that anyone who tries it will share their experience on this site.
Here is what the Canada site said,

Ulcerative Colitis results with helminthic therapy have been mixed to date. Ulcerative Colitis does not respond as well as other diseases treated using this approach when the organism used is hookworm. However, whipworm has provided excellent results in a small number of clients who have tried it, resulting in full remission so long as they continue to use the probiotic helminth, which lives on average for 18-30 months. Autoimmune Therapies guarantees a live infection, although not any particular outcome, for 18 months. Treatment with whipworm costs $2,900.00.

[tex]

Hi Cory,

In theory, the idea sounds promising, but the reality is that living with parasitic worms is not always a walk in the park. They do have side effects. What bothers me the most is that we have had several people who signed up to inform us that they were either using the treatment, or they were planning to use it, but so far, no one has updated their status with a progress report after using the treatment for any reasonable length of time. I'd like to see some evidence of long-term success. Short-term success is easy - corticosteroids will do that. It's long-term success that matters. And so far, only diet changes have been able to accomplish that.

Tex

[coryhub]

Hi Tex,
I agree. What good is a short term remedy if we have to continue it endlessly at your own expense? What we need is a cure. Like Interferon for people with Hep C. I don't know if that is possible for us. If the NYTimes article is correct then our villi are atrophied and I don't think the villi can recover from that:

The primary proteins in wheat gluten are glutenin and gliadin, and gliadin contains repeating patterns of amino acids that the human digestive system cannot break down. (Gluten is the only substance that contains these proteins.) When pieces of gliadin course through the gut, cause the immune system to attack the walls of the intestine in a case of mistaken identity. That, in turn, causes fingerlike structures called villi that absorb nutrients on the inside of the intestines to atrophy, and the intestines can become leaky, wreaking havoc. Symptoms, which vary widely among people with the disease, can include vomiting, chronic diarrhea or constipation and diminished growth rates in children.

[Leah]

Chaflores, have you tried all the diet advise on this forum? Diet is ket to getting better. Have you tried the Pepto Bismol treatment or Entocort ( budesonide) ?

Leah

[Gabes-Apg]

mmmm
an article from today
looks like big pharma is getting involved in whipworm therapy


http://medcitynews.com/2013/02/pig-whip ... onditions/

Washington U. is one of 50 centers nationwide participating in the Phase II trial, sponsored by Coronado Biosciences, a biopharmaceutical company in Burlington, Mass. If the pigworm eggs are proven to be safe and effective and the proper dosage is determined, Coronado Biosciences will sponsor a larger Phase III study.

A financial analyst in New York is the first known person to ingest pig whipworms to treat Crohn's disease. He did it about eight years ago after learning from medical literature that parasites might be useful in treating some inflammatory bowel disorders.

He ordered the worm eggs from laboratories in Europe and swallowed 2,500 of them in saline solution every two weeks for three months, he told ABC News in September. The symptoms of his Crohn's disappeared, and markers of inflammation in blood tests also plummeted

[tex]

Hmmmmmmmmm. That's interesting, isn't it.

I'm sure they're getting into it in order to lower the cost for patients, so that they won't be required to take all those dangerous, expensive drugs.

Thanks for the link.

Tex

[Gabes-Apg]

I too am very curious about their involvement.... is it to see if there is any thing that can be patented? to make sure it fails?
interesting that the report only has 1 patient that has had success??


my other thought- do the pig whipworm therapy and then fecal implant from aborigines - then the gut would be A1 perfect!!!
then it is just a case of fixing the rest of my body!

[Zizzle]

Here's an 8 month report from a woman in my area using hookworms to treat her multiple autoimmune diseases (MCTD/lupus, Fibromyalgia, Raynauds, and Autoimmune hepatitis)

http://potomacfallsmama.blogspot.com/20 ... pdate.html

[tex]

Hmmmmmm. I dunno. After reading that, I think I'll just stick with diet changes.

I'm guessing that she is one of the many people in the world who would rather live with worms, than to consider drastically changing her diet (even though she apparently has to change her diet in order to accommodate the worms).

The history she mentions sort of suggests that as time goes on, the flares tend to become worse. That makes me wonder if the day will arrive when the treatment is worse than the "cure", and/or they even may stop helping altogether.

Thanks for the link.

Tex

[Zizzle]

Yes, her flares are concerning. I know from other posts that she's gluten free and trying to be on some sort of paleo diet.

[tex]

Hmmmmm. Sometimes it's hard to win. I wonder if it's possible that she didn't give the diet enough time before deciding to try a parasite treatment.

Tex

[wmonique2]

Tex and Z.


I am so confused by this thread! Why are you two answering a post that's more than a year old? Please enlighten me...


Monique

[Zizzle]

Monique,
I knew there was a thread here about parasite treatment, so I thought I would find it and add to it, instead of starting a new thread. Gives it some context? It's a habit mine. Otherwise lots of good old knowledge and experience gets lost here.

[mzh]

I don't understand it. We battle to get rid of worms in our pets but we give them to people? Amazing that whips and hooks in particular are good for anything except weight loss and bloody poops b/c that's what happens when our pets pick them up.