Can you ever take NSAIDS?

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rachdemots
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Can you ever take NSAIDS?

Post by rachdemots »

I am having a hard time with aches and pains still. I am 38 and have some arthritis in my knees and suspect I may eventually get a RA diagnosis. Anyhow, I do believe that NSAID use brought about such a bad flare that I finally went to the doctor about all this. That was back in August 2013, I was taking naproxen daily for aching. I know that I cannot take daily NSAIDS anymore, but what about once every two weeks or something when I am having a real bad achy day? My only other option is hydrocodone or codeine but they both make me loopy..which not OK when you have a 6 year old and 4 year old to take care of. Just wondering how badly the NSAIDS affect the intestines on a once in a while basis...thanks
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tex
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Post by tex »

Hi,

We can only guess of course, because drug sensitivities (like food sensitivities) vary by the individual, but if NSAIDs caused the development of your MC in the first place, then the odds of them not continuing to be a trigger for the disease would be slightly below your odds of winning the lottery. IOW, they will surely be a problem for the rest of your life.

Have you tried tramadol? It's generally safe for most of us.

About 12 to 15 years ago, I had major problems with arthritis in my knees and my right hand. After severely restricting my diet, the problem slowly went away, though it took a year or 2. I also took flax seed oil and glucosamine sulfate with choldroitin to help my knees, because I was doing a lot of weight-bearing physical labor (stacking bags of corn on pallets) at the time. My knees and hands are fine now (of course the fingers that were growing crooked back then are still crooked, but no more damage or pain has occurred since then).

Gluten and other food sensitivities are primary causes of autoimmune-based diseases, IMO.

Tex
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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
rachdemots
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Post by rachdemots »

Originally, I was attempting to be GF/DF/ egg and soy free but couldn't maintain it over the holidays..started back up a few weeks ago focusing on trying to maintain the GF and DF parts of the first the most..still having more diarhhea and nausea/bloating than I would like and that is being on 9 mg of endocort a day too. I realize I may have other food sensitivities but am having a really hard time identifying it..I work full time and have two small children...I am at my wits end...the more I read ..the more I am overwhelmed..salicitates, phytic acid, histamines..more and more of what I eat reluctantly isbeing taken away...and with the aches and pains I have too..I just want to crawl in bed and die...I have rambled on here but just needed to vent....
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rachdemots
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Post by rachdemots »

How else did you restrict your diet TeX?
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Post by tex »

Yes, it can definitely seem overwhelming, but we have to tackle it the same way we would tackle any big, complex problem, by breaking it up into smaller issues and learning how to deal with each one. We have to start on the major issues and get them right, and then we can branch out to the other (secondary) issues. Approaching life one day at a time, makes it doable.

The primary cause of arthritis symptoms in joints is increased gut permeability (leaky gut), and leaky gut can be caused by several major triggers, namely alcohol, gluten, and sugar. Once leaky gut develops, then any of the other food sensitivities (such as dairy or soy, or eggs) can also cause arthritis symptoms. But the main offender is gluten, so that one has to be eliminated from our diet 100 %, at all times. The second most serious food sensitivity for most of us is casein (the main protein in all dairy products), and soy is usually the third (for those who are sensitive to it). It takes a long time to heal a leaky gut, so please don't expect a miraculous recovery practically overnight. But attention to details in your diet, and perseverance, will allow you to get your life back.

I cut gluten out of my diet (permanently) and I kept a food diary for a couple of years afterward. At first I experimented with avoiding various other foods, but I finally decided that if I was ever going to stop the reactions I was going to have to do something drastic, so I cut out everything that seemed to cause problems according to my journal, and since I had been avoiding gluten for a year and a half by then, within a couple of weeks, I was in remission. I stayed on a very restrictive diet for about 2 years, and after that I was able to add some things back into my diet (such as corn, and most fruits and vegetables). The diet I followed was basically pork and safe (non-injected) chicken, potatoes, rice, and occasionally a little broccoli or green beans. I drank only water, unsweetened tea, and an occasional Virgil's Root Beer (everything else contained high-fructose corn syrup or artificial sweeteners).

Sugar was a major problem for me, and it was probably the reason why I developed leaky gut in the first place (because I had always eaten a lot of sweets). After I started the diet, I ordered some EnteroLab tests which showed that I could safely eat eggs, soy, and yeast, so I started eating eggs and bacon for breakfast. After the negative soy test result, I still mostly avoided soy, but I didn't worry about trace amounts.

So that's basically how I went about it. I still have to avoid the foods listed under my avatar.

Tex
:cowboy:

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Post by DJ »

I am having a hard time with aches and pains still. I am 38 and have some arthritis in my knees and suspect I may eventually get a RA diagnosis. Anyhow, I do believe that NSAID use brought about such a bad flare that I finally went to the doctor about all this.


I knew for about three years prior to "The Great Flood of MC" that I had problems with gluten, dairy, soy, eggs, and nuts but I only avoided them rather than eliminating them. Last March when I became ill with MC, I was taking NSAIDS and PPIs daily. I was having such neck, knee, and body pain that I was damaging my teeth from clenching every time I turned over in bed. Since ELIMINATING my offenders, my pain is drastically reduced. I still brace myself for pain and instability every time I stand at the top of a flight of stairs and every time, I get a pleasant surprise. I'm much better than I used to be. The same applies when I turn over in bed. I am currently on a micro-dose of Entocort (.75 mg) and I expect to be off by the end of March.

I've had gut problems for a long time. I found my sensitivities several years ago when I did a caveman-type diet where I ate only four or five foods that usually don't cause problems for people and added one new low-sensitivity food every few days. If the new food went well, I added it to the good list. If it went poorly, I eliminated the food and added it to the negative list. The process took a long time but I learned a lot. The problem is that I didn't understand at the time how much I would benefit from getting rid of those foods all together.

The reduction in my body pain has been present and ongoing for several months.
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Post by Leah »

I ate mostly meats,eggs, white rice,avocados, and cooked carrots, squash, sweet potato, and green beans. I also had rice products like rice cakes with almond butter and Rice/corn Chex with almond milk. I sometimes treated myself and had applesauce. Sometimes a few corn chips that were fried in safflower oil. I only used either coconut or olive oil for cooking.. After six months, I added white potato. The more restrictive you are now, the faster you will feel better. After two years, I have had enough healing to have added back raw veggies and small salads, white and black beans, sugar, and even some slightly spicy food :). I also take antihistamines.

to feel better, you have to take control of what you are eating. It takes a while, but keep telling yourself that you will feel so much better and maybe be able to add things back in later.

Good luck
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Post by hazel »

My MC was caused by NSAIDS. I'd been taking way too many because of knee pain. That was 2003. I got the MC under control with Entocort and got a new knee. (I'm older than you!) Recently the other knee has been hurting so I take an NSAID occasionally and have had no problem. I certainly am more judicious in their use than the first time. :-)
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Post by Leah »

I can take them for a couple days without problems, but then I get more "acidy" in upper intestine
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Post by JenniferS »

This may have been mentioned, but when I'm in pain and Tylenol won't cut it, I take Tramadol. My GI gave me a list of meds that were colitis safe, and this was one of them. It's prescription, but I doubt your PCP would have a problem prescribing it.
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Post by brandy »

I am scared to death to take an nsaid. It took me 24 months to get remission with this disease and I flat out don't want to want go backwards.

Mom had extreme knee joint pain for the 10 years before she was diagnosed with celiac disease. She kept going to knee surgeons every couple of years to talk about knee replacement surgeries. When she was diagnosed with celiac disease and went gluten free her knee pain went away although it took awhile for the knee pain to go away. Now when she gets gluttened the need pain pops up again.
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Post by Pat »

Going GF definitely made my muscle aches go away. Can't cheat.

Way before MC I had repetitive motion pain in my wrists, probably carpal tunnel syndrome. I looked on the internet and found exercises to stretch my wrists and I also started yoga. No more pain or problems with my wrists. I am a dental hygienist so I also went to some courses on how to position my patients and myself to minimize problems. It all helped.

Pat
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