Like others said, mornings can be dicey for me, and since starting anti-histamines I notice, like Leah, that I'm often a bit gassy in the AM. Like Cory, I have to say I feel pretty damn good most days, and I am thankful for the help that got me there.
Carol, I too was prone to queasiness in the AM for a long time, and I still don't seem to be hungry for a while after I wake up. I take an anti-histamine in the AM, not at bedtime, and since starting that, the nausea has lessened.
Why do I feel worse in the mornings?
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wmonique2
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why do I feel worse in the morning?
Hey Carol,
Well, I am no different. Since diagnosed I am worthless in the morning and it is NOT because of elavil. I was that way before I started elavil (I've been on it for a few months). Actually elavil cut the morning nausea off. BTW, I take my 10mg at dinner time, between 6-7pm. If I wait too long past that, I know that the following morning I'll have to add grogginess to my list of symptoms.
There was a time when I had added another half pill (5mg) but boy within one week I was seriously depressed and suicidal.
I used to start writing at 10 in the morning. Now I am lucky if my brain fog dissipates my noon or after lunch. Most of the time I am achy, sore and what I really want to do is go back to bed.
Regards,
Monique
Well, I am no different. Since diagnosed I am worthless in the morning and it is NOT because of elavil. I was that way before I started elavil (I've been on it for a few months). Actually elavil cut the morning nausea off. BTW, I take my 10mg at dinner time, between 6-7pm. If I wait too long past that, I know that the following morning I'll have to add grogginess to my list of symptoms.
There was a time when I had added another half pill (5mg) but boy within one week I was seriously depressed and suicidal.
I used to start writing at 10 in the morning. Now I am lucky if my brain fog dissipates my noon or after lunch. Most of the time I am achy, sore and what I really want to do is go back to bed.
Regards,
Monique
Diagnosed 2011 with LC. Currently on Low Dose Naltrexone (LDN)
I started with Benadryl tonight. We'll see what happens. I am at least encouraged after the advice and support here. I had times I've felt pretty darn good too, but in the last month I feel that I'm getting progressively more achy and just 'off' from where I was.
Thanks to everyone for their comments. I'll report back.
Carol
Thanks to everyone for their comments. I'll report back.
Carol
“.... people will forget what you said, people will forget what you did, but people will never forget how you made them feel.” Maya Angelou
Hi Carol,
I will be interested to see what you notice after taking the Benadryl tonight. Sounds like a good plan. Yes, I was thinking of allergy/mast cell involvement.
I hadn't realized that you were still on the amitriptyline. As Tex noted, any med can have side effects, and this could certainly be the problem. Also, did you check to make sure that your prep does not contain any of your sensitivities? As you say, it might be time to try a trial off of the med (or a lower dose), especially if your intuition is telling you that.
Can you tell us a little more about the morning issue. You said "queasiness".....do you mean nausea? Does it seem to be mainly your stomach, or is it further down in the gut?
I'll stay tuned......
Polly
I will be interested to see what you notice after taking the Benadryl tonight. Sounds like a good plan. Yes, I was thinking of allergy/mast cell involvement.
I hadn't realized that you were still on the amitriptyline. As Tex noted, any med can have side effects, and this could certainly be the problem. Also, did you check to make sure that your prep does not contain any of your sensitivities? As you say, it might be time to try a trial off of the med (or a lower dose), especially if your intuition is telling you that.
Can you tell us a little more about the morning issue. You said "queasiness".....do you mean nausea? Does it seem to be mainly your stomach, or is it further down in the gut?
I'll stay tuned......
Polly
Blessed are they who can laugh at themselves, for they shall never cease to be amused.
Polly,
Here's the progression of things in the last 4 months. Started out feeling good, with daily Normans. No morning nausea and really no complaints.
Then, of all the crazy symptoms to have-- my heels hurt and it matched a criteria of plantar fasciitis, but it's not like I'd been doing anything out of the ordinary. And they both hurt not just one or the other.
This has progressed to aching all over-- I'd say mildly-- enough to bother me and tire me but not enough to keep me from going to work, etc. I'd say it subsided by late morning. Also have had abdominal cramping, at anytime during the day. Last Friday I had a morning where my gut decided to empty itself (9 bm's in 2 hours) and I felt horrid. I think that was triggered by stress. We'd had 2 evening events at school and I hadn't paced myself like usual nor had I gotten adequate sleep. I haven't had a morning like that in a year. It was incidents like this that the Amitriptyline helped to regulate.
Yesterday I ached all over all day. So I'm really not headed down a good path here.
In the last 2 weeks I seem to be sliding back to things being less predictable. Not sure how I'll feel when I get up and if I'll feel better in an hour or not. My gut seems to be churning and struggling, like I'm back to being out of sync.
My definition of queasiness is a mild form of nausea that's fleeting. However over the weekend I had to dig out the meds i used to take weekly-- hyoscamine, Zofran, and meclizine just to keep going and treat the symptoms. Most of the time by 11:00 I was getting hungry and could eat, but I rarely eat before 10:00am any more.
I took 50mg of Benadryl last night one hour after I took my 10mg of Amitriptyline, and I do believe I am less achy today (although foggy so I'll need to take it earlier).
I hope this helps. It's easy for me to see the progressions of things, but I don't know why it's going in this direction.
thanks very much,
Carol
Here's the progression of things in the last 4 months. Started out feeling good, with daily Normans. No morning nausea and really no complaints.
Then, of all the crazy symptoms to have-- my heels hurt and it matched a criteria of plantar fasciitis, but it's not like I'd been doing anything out of the ordinary. And they both hurt not just one or the other.
This has progressed to aching all over-- I'd say mildly-- enough to bother me and tire me but not enough to keep me from going to work, etc. I'd say it subsided by late morning. Also have had abdominal cramping, at anytime during the day. Last Friday I had a morning where my gut decided to empty itself (9 bm's in 2 hours) and I felt horrid. I think that was triggered by stress. We'd had 2 evening events at school and I hadn't paced myself like usual nor had I gotten adequate sleep. I haven't had a morning like that in a year. It was incidents like this that the Amitriptyline helped to regulate.
Yesterday I ached all over all day. So I'm really not headed down a good path here.
In the last 2 weeks I seem to be sliding back to things being less predictable. Not sure how I'll feel when I get up and if I'll feel better in an hour or not. My gut seems to be churning and struggling, like I'm back to being out of sync.
My definition of queasiness is a mild form of nausea that's fleeting. However over the weekend I had to dig out the meds i used to take weekly-- hyoscamine, Zofran, and meclizine just to keep going and treat the symptoms. Most of the time by 11:00 I was getting hungry and could eat, but I rarely eat before 10:00am any more.
I took 50mg of Benadryl last night one hour after I took my 10mg of Amitriptyline, and I do believe I am less achy today (although foggy so I'll need to take it earlier).
I hope this helps. It's easy for me to see the progressions of things, but I don't know why it's going in this direction.
thanks very much,
Carol
“.... people will forget what you said, people will forget what you did, but people will never forget how you made them feel.” Maya Angelou
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How frustrating, Carol. I wish I had some advice to offer but unfortunately I don't. I used to be nauseous on a daily basis. I think it was gastroparesis but I am not sure. It almost never happens now but I have no magic answer, only all the dietary changes I have made, but I know you know all about making dietary changes and sticking to them. I hope you figure this out soon.
Jean
Jean
Hmmmm,
What you describe sounds suspiciously like a food sensitivity to me....at least until proven otherwise. And of course, the added stress of feeling worse again and wondering what's going on is not helping.
Have you double-checked everything you have been eating and using? Sometimes manufacturers change ingredients without notice, and unless you read labels all of the time, you miss it. That has happened to me. What exactly are you eating nowadays? What does a typical day's menu include?
You might want to consider MRT (I don't recall that you have done it). It is especially valuable in this kind of situation, IMHO. I had been in fairly good remission for more than 10 years before I did the MRT, and it really helped to tweak my diet. As you have heard me say, I never would have figured out some of my more "minor" sensitivities without MRT. And it is a valid test - with 94.5% sensitivity and 91.8% specificity in a blinded, peer-reviewed scientific study. I have found, two years after taking the test, that I am still reacting the same way to the foods as determined by the test. There have been no changes. You would not need the nutritionist (dietary /menu planning part of the MRT) but I think you still have to pay for the whole package.
What has been so helpful to me is knowing my safest foods.....whenever I feel a little flare coming on, I jump back to my lowest green (safest) foods, which seems to nip things in the bud.
Sometimes I find that calcium carbonate helps nausea immediately - I use the pure powder (from Freeda) and mix a teaspoon in a small amount of applesauce.
Maybe you need to try acupuncture again?
Glad to hear that you feel a little better today.
Love,
Polly
What you describe sounds suspiciously like a food sensitivity to me....at least until proven otherwise. And of course, the added stress of feeling worse again and wondering what's going on is not helping.
Have you double-checked everything you have been eating and using? Sometimes manufacturers change ingredients without notice, and unless you read labels all of the time, you miss it. That has happened to me. What exactly are you eating nowadays? What does a typical day's menu include?
You might want to consider MRT (I don't recall that you have done it). It is especially valuable in this kind of situation, IMHO. I had been in fairly good remission for more than 10 years before I did the MRT, and it really helped to tweak my diet. As you have heard me say, I never would have figured out some of my more "minor" sensitivities without MRT. And it is a valid test - with 94.5% sensitivity and 91.8% specificity in a blinded, peer-reviewed scientific study. I have found, two years after taking the test, that I am still reacting the same way to the foods as determined by the test. There have been no changes. You would not need the nutritionist (dietary /menu planning part of the MRT) but I think you still have to pay for the whole package.
What has been so helpful to me is knowing my safest foods.....whenever I feel a little flare coming on, I jump back to my lowest green (safest) foods, which seems to nip things in the bud.
Sometimes I find that calcium carbonate helps nausea immediately - I use the pure powder (from Freeda) and mix a teaspoon in a small amount of applesauce.
Maybe you need to try acupuncture again?
Glad to hear that you feel a little better today.
Love,
Polly
Blessed are they who can laugh at themselves, for they shall never cease to be amused.
Polly, I KNOW-- doesn't it sound like I am getting glutened or something? I eliminated potatoes because twice after I ate them I ached noticeably more the next day. Otherwise my diet has been the same. I did do MRT testing and it has been helpful. I eat cleanly. The only processed things in my diet are rice cakes and Oscar Mayer Smoked Turkey. I've even stopped eating Chex, because I wanted to go closer to Paleo.
A typical day will be a few slices of turkey about mid morning when I finally get hungry, with a rice cake. Lunch will be something I made usually the night before, like today it's a roast and carrots I made in the crockpot. Dinner will be a chicken salad I make out of chicken, white grapes, pecans and a dressing which is dijon mustard and olive oil. I lived on this last summer and I'd be surprised if it's a problem. I challenged the grapes and pecans first.
Snacks usually are a handful of almonds and Enjoy Life chocolate chips. And if I'm up to it I'll have a cup of coffee sometime during the day.
Other foods I eat on a regular basis are green beans, dried apricots, almond butter, cauliflower and ground turkey. Unless the preservatives in the Oscar Mayer turkey are a problem or the rice cakes are cross contaminated, I'm really at a loss.
Vitamins- I did start a liquid B complex supplement a few months ago. I've routinely taken Vita-Fusion vitamins. They say they are free of the big 4 and they are gummies. I take them in D3, multivitamin and calcium. The only other thing I take is an Omega 3 supplement in a liquid form made by the Melaleuca company. I started it about the same time I started the B complex.
Maybe it's one of them. I feel like I have something building up in my system that I am reacting to. It would be easy to stop the vitamins. I'm not weak any more and am eating enough calories that I wouldn't miss the vitamins.
I welcome any other thoughts.
thanks
Carol
A typical day will be a few slices of turkey about mid morning when I finally get hungry, with a rice cake. Lunch will be something I made usually the night before, like today it's a roast and carrots I made in the crockpot. Dinner will be a chicken salad I make out of chicken, white grapes, pecans and a dressing which is dijon mustard and olive oil. I lived on this last summer and I'd be surprised if it's a problem. I challenged the grapes and pecans first.
Snacks usually are a handful of almonds and Enjoy Life chocolate chips. And if I'm up to it I'll have a cup of coffee sometime during the day.
Other foods I eat on a regular basis are green beans, dried apricots, almond butter, cauliflower and ground turkey. Unless the preservatives in the Oscar Mayer turkey are a problem or the rice cakes are cross contaminated, I'm really at a loss.
Vitamins- I did start a liquid B complex supplement a few months ago. I've routinely taken Vita-Fusion vitamins. They say they are free of the big 4 and they are gummies. I take them in D3, multivitamin and calcium. The only other thing I take is an Omega 3 supplement in a liquid form made by the Melaleuca company. I started it about the same time I started the B complex.
Maybe it's one of them. I feel like I have something building up in my system that I am reacting to. It would be easy to stop the vitamins. I'm not weak any more and am eating enough calories that I wouldn't miss the vitamins.
I welcome any other thoughts.
thanks
Carol
“.... people will forget what you said, people will forget what you did, but people will never forget how you made them feel.” Maya Angelou
Oh, good news that you had the MRT. So you know for sure that you are avoiding all of your sensitivities. Were you sensitive to only those 5 foods listed under your avatar? If so, you are quite lucky! (That's why I didn't go back and search to see if you had done MRT - I saw only the 5 sensitivities and assumed that you hadn't done it yet).
I think it's wise that you are avoiding processed foods. Boar's Head low-sodium turkey is the only turkey I have found that is safe for me. I think it was smart to stop eating the Chex. I know that some of the GF cereals use tochopherols (usually containing soy) when they add their vitamin supplements.
You may want to cut back on the pecans and almonds (because of high fiber) for now while your gut is inflamed - or else try the nut butters. Did you check the ingredients in the rice cakes?
I am now thinking, like you, that the culprits might be the new liquid vitamins or even the omega 3 supplement. The timing is certainly suspect. Do you know what kind of fish the omega 3 is extracted from? Were you sensitive to any fish on the MRT? Have you checked with the "gummies" company to make sure there are none of your more minor sensitivities in those vitamins?
As you know, I have always tried to take either no (or minimal) supplements. It just seems that, so many times here on the Board, they have been the offenders once diet has stabilized the MC. Here is what I would do if I were you......stop the vitamins and omega 3 oil for now and see what happens. Then, in several weeks, if no improvement, try halving the amitriptyline and see what happens. BTW, are you taking any prescription meds, probiotics, or herbs? Just checking..... LOL.
Good luck and keep us posted.
Love,
Polly
I think it's wise that you are avoiding processed foods. Boar's Head low-sodium turkey is the only turkey I have found that is safe for me. I think it was smart to stop eating the Chex. I know that some of the GF cereals use tochopherols (usually containing soy) when they add their vitamin supplements.
You may want to cut back on the pecans and almonds (because of high fiber) for now while your gut is inflamed - or else try the nut butters. Did you check the ingredients in the rice cakes?
I am now thinking, like you, that the culprits might be the new liquid vitamins or even the omega 3 supplement. The timing is certainly suspect. Do you know what kind of fish the omega 3 is extracted from? Were you sensitive to any fish on the MRT? Have you checked with the "gummies" company to make sure there are none of your more minor sensitivities in those vitamins?
As you know, I have always tried to take either no (or minimal) supplements. It just seems that, so many times here on the Board, they have been the offenders once diet has stabilized the MC. Here is what I would do if I were you......stop the vitamins and omega 3 oil for now and see what happens. Then, in several weeks, if no improvement, try halving the amitriptyline and see what happens. BTW, are you taking any prescription meds, probiotics, or herbs? Just checking..... LOL.
Good luck and keep us posted.
Love,
Polly
Blessed are they who can laugh at themselves, for they shall never cease to be amused.
Hi Carol, I noticed in your post that you ate potato's for supper and you felt achy the next morning. Did you ever read the book " Breaking the vicious cycle" The author mentions that "starch" feeds a bacteria that lives in the upper intestines. Since many of the g-f mixes are made from starches it helps feed this type of bacteria that is linked to arthtitis. Ingredients like potato and tapioca starch.The bacteria is called " Klebsiella bacteria ". We all have this type of bacteria and starches promote its overgrowth. Jon
Hi Carol,
Of course YMMV, but I can't do white grapes or dijon mustard. White grapes present a multitude of issues for many MCers, including sugar alcohol content, sulfites, and histamines.
You may recall that I had a similar retrograde in condition a couple of years ago. I tracked my problem down by ordering an EnteroLab test that confirmed the presence of anti-gliadin antibodies (62 units
). The source of the cross-contamination was wheat flour in the kitchen used by someone else. IMO, it's impossible to keep (and use) a bag of wheat flour in the house without cross-contaminating virtually all of the food prepared there, no matter how careful everyone might be. When cross-contaminated on a regular basis, all it takes is a miniscule amount of gluten to keep the reaction going. I didn't have D, only the aches and pains and related neurological issues.
Tex
Of course YMMV, but I can't do white grapes or dijon mustard. White grapes present a multitude of issues for many MCers, including sugar alcohol content, sulfites, and histamines.
You may recall that I had a similar retrograde in condition a couple of years ago. I tracked my problem down by ordering an EnteroLab test that confirmed the presence of anti-gliadin antibodies (62 units
). The source of the cross-contamination was wheat flour in the kitchen used by someone else. IMO, it's impossible to keep (and use) a bag of wheat flour in the house without cross-contaminating virtually all of the food prepared there, no matter how careful everyone might be. When cross-contaminated on a regular basis, all it takes is a miniscule amount of gluten to keep the reaction going. I didn't have D, only the aches and pains and related neurological issues.Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Linda,
The only yellow I have been able to add back in is tomato. And it was actually my "lowest" yellow - just on the other side of the green line. Oh, and I can do very small amounts of cucumber and carrot occasionally - like you might have in a small house salad. I don't give up hope though.......maybe one of these days..... sigh. In fact, I was thinking of testing chocolate again after Jean mentioned her daily square of dark chocolate.
How about you? I notice you are sensitive to acetaminophen. Just saw a recent article linking the use of acetaminophen during pregnancy with ASD (autism spectrum disorder) in the child. Scary.....but it could help to explain the huge increase in the condition (which I can't believe is due solely to better diagnostic methods).
Good point about the contamination, Tex.
Polly, who is now drooling over the thought of chocolate
The only yellow I have been able to add back in is tomato. And it was actually my "lowest" yellow - just on the other side of the green line. Oh, and I can do very small amounts of cucumber and carrot occasionally - like you might have in a small house salad. I don't give up hope though.......maybe one of these days..... sigh. In fact, I was thinking of testing chocolate again after Jean mentioned her daily square of dark chocolate.
How about you? I notice you are sensitive to acetaminophen. Just saw a recent article linking the use of acetaminophen during pregnancy with ASD (autism spectrum disorder) in the child. Scary.....but it could help to explain the huge increase in the condition (which I can't believe is due solely to better diagnostic methods).
Good point about the contamination, Tex.
Polly, who is now drooling over the thought of chocolate
Blessed are they who can laugh at themselves, for they shall never cease to be amused.
Tex, I do recall you getting a high count on the gluten Enterolab test. That was an eye opener. I threw out all flour ages ago for that reason. My husband does use wheat bread- maybe it needs to be in an air tight container. I appreciate what you said about white grapes-- I probably don't need the sugar right now. Those are easy to avoid. So is the dijon.
Polly, I ran home and am checking labels. Its a good thing you mentioned tocopherols because my Omega-3 supplement has them (d-alpha tocopherol). The oils sources are from anchovy, sardine and/or mackerel. My MRT testing did not test for those, but all other fish were in the low to mid-greens. It says 'gluten free' but says nothing either way about soy. To be safe I'll stop taking it. I will also stop the processed turkey and switch to making patties with ground turkey, if I can't find another brand. I need something portable to take with me.
I am not taking any other supplements, herbs, probiotics or any other prescription drugs beside the Amitriptyline. I take a Claritin Redi-tab and Zantac in the morning, but no other prescriptions.
I react to more than just those 5 foods I have listed-- I just havent' updated my list. At one point I avoided green beans but then food challenged them and came out okay (although they are a low yellow). Spinach, even though it was in the green, gave me D. So as always I have to challenge foods before I can add them in. I have not checked the gummies against my MRT list but I will. It could be the accumulation of a lot of little things I guess. It wouldn't take much soy to push me over the edge. I think my soy sensitivity is worse than my gluten sensitivity. I will happily take your advice and stop the vitamins but I think I'll continue the Benadryl (if that seems reasonable).
Jon, thanks for the book suggestion. I'll check into that.
Again, thank you all. Polly I hope I answered all your questions. I'll keep chipping away at this mystery.
Carol
Polly, I ran home and am checking labels. Its a good thing you mentioned tocopherols because my Omega-3 supplement has them (d-alpha tocopherol). The oils sources are from anchovy, sardine and/or mackerel. My MRT testing did not test for those, but all other fish were in the low to mid-greens. It says 'gluten free' but says nothing either way about soy. To be safe I'll stop taking it. I will also stop the processed turkey and switch to making patties with ground turkey, if I can't find another brand. I need something portable to take with me.
I am not taking any other supplements, herbs, probiotics or any other prescription drugs beside the Amitriptyline. I take a Claritin Redi-tab and Zantac in the morning, but no other prescriptions.
I react to more than just those 5 foods I have listed-- I just havent' updated my list. At one point I avoided green beans but then food challenged them and came out okay (although they are a low yellow). Spinach, even though it was in the green, gave me D. So as always I have to challenge foods before I can add them in. I have not checked the gummies against my MRT list but I will. It could be the accumulation of a lot of little things I guess. It wouldn't take much soy to push me over the edge. I think my soy sensitivity is worse than my gluten sensitivity. I will happily take your advice and stop the vitamins but I think I'll continue the Benadryl (if that seems reasonable).
Jon, thanks for the book suggestion. I'll check into that.
Again, thank you all. Polly I hope I answered all your questions. I'll keep chipping away at this mystery.
Carol
“.... people will forget what you said, people will forget what you did, but people will never forget how you made them feel.” Maya Angelou