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My MC exhaustion is bizarre. It doesn't happen during activity, it happens after. I just got back from a few business days on the road. I left my hotel for an active day of work involving walking and performing assessments that cause people much stress. I don't particularly like causing other people stress, so it's stressful for me too.
I went back to my hotel (with a kitchen) with a plan to eat then go out for supplies. Thankfully I had some things with me because I was too exhausted to drive. I took a nap, wrote reports, and went to bed. The next day, I drove to the same place and completed my work and drove back to my office. I got home that evening at 6 pm put my luggage on the kitchen floor and took a nap, got up for a few minutes, and went back to bed for the night. I was a zombie this morning yet needed to go to work. It's the new me and it's not working out very well. My luggage remains on the kitchen floor and I am picking things out one at a time. Some of us - Polly for one - improve considerably after about two years. I'd like that a lot. TGIF
Well, I'm glad I'm not the only one who has piles of stuff in the house. Sadly, this year I did not put up my Christmas village because the thought of taking every house out of the box, bringing them upstairs, and arranging them on the shelf above the kitchen cupboard made me tired just thinking about it. I love decorating my house for each holiday but getting the Christmas tree was an accomplishment in itself. I seriously considered not getting one this year but felt bad at the thought of my son not having a tree. I also had major thyroid issues at the time but continued fatigue is hard to deal with no matter the cause.
Prior to MC I would have never been able to leave things sit for a while until I had enough energy to get them done. We pack up stuff from our cabin up north at the end of fall and bring it home through winter. I just finished putting it all away not too long ago. I should have just waited a little longer and if spring ever comes I could have just taken it back.
I hope you find some energy soon!
Deb
"Do not follow where the path may lead. Go instead, where there is no path, and leave a trail.
-Ralph Waldo Emerson
2007 CC
2013 thyroid cancer- total thyroidectomy
2013 Hashimoto's - numbers always "normal"
2017 Lyme's Disease
I am giggling, my perfectionist mother is currently having to put up with my moving mess, and my low energy levels I have half unpacked boxes everywhere,
Gabes Ryan
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
Even though she is 82, she has more energy than me!!!!
As I am a kinda guest in her new home, the kitchen, linen cupboard etc are filled with her items.
it is me finding certain things from a particular box, (that's why there are so many open boxes.) so that I can minimise contamination in the kitchen and access the things I need to. 60% of my belongings will stay packed.
My gear got here 5 days before me, so the bed was built, and made, and the boxes of dirty washing done..
We have not shared space for 26 years, my slightly OCD approach to meal prep/ingredients for the MC is a bit overwhelming...
Gabes Ryan
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
DebE13 wrote:It's amazing how our routines are so easily disrupted.
Those are the words I was looking for, Deb. I can function at a particular - much lower - level these days and if I push harder, I lose my ability to function. My job requires a great deal of stamina and it's a problem. I am on call this week and I have not recovered from my planned work travel last week. The expectation is that I will do my usual office work this week and I will be available to travel at a moment's notice to an unplanned location for up to a week.
Gabes, your mother must be so happy to have your company! Keep us posted!
I hear you Gabes. Fatigue makes it difficult to plan things in advance. I never know when I'll be too bushed to set out. This disease messes with my social life in that way. I have to be spontaneous and sporadic. I call friends on a day I feel good and try to make last minute plans because I never can tell how I'll be feeling. I'm also in accord with everyone on getting housework done. I do everything on the work installment plan
CoryGut
Age 71
Diagnosed with Lymphocytic Colitis Sept. 2010
On and off Entocort(Currently Off)
Thanks my beautiful friends for the hugs and support.
After the good fortune of finding a good dentist (next week I will be having 1 x moler removal and replacement of 4 fillings in 3 other molers)
Tuesday just gone, I went to the available doctor in the practice where my sister and now mum goes, I didnt get the same dr as mum, the one I got had never heard of MC, and admitted he had not treated many patients with IBD's, and scoffed about me using Sub lingual Vit D and Vit B12, and that i should be having needles.
Today, I am off to another suburb/practice, see if the doctor there is better.
Alot of med centres/practices with multiple doctors are not taking on new patients at all, I am only getting a chance of being accepted as a new patient, because one of my siblings goes there.
Fingers crossed this one works out, as I only have one more sibling with a doctor left !
Gabes Ryan
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
Gabes wrote:the one I got had never heard of MC, and admitted he had not treated many patients with IBD's, and scoffed about me using Sub lingual Vit D and Vit B12, and that i should be having needles.
Good for you for searching for another doc. Sublingual treatments are just as good as injections. The main difference is that the doctor doesn't get paid each time you take a sublingual lozenge, whereas he does get paid for each injection. The last time I had an injection it seemed to be more painful than using lozenges, also. A lozenge is not as likely to cause an infection as a needle is, either.
Good luck with the next one.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Hope you find someone good Gabes. And that you get through the dental treatment with as little trauma as possible.
I had a short lived argument with a doctor who insisted that Vit B12 is only good via injection, and that sub lingual is BS. Wasn't worth arguing.
Was empathetic that having IBD means the body is a bit sensitive.
Was quick to ask how my Vit D3 levels have been, was ok about me using good quality sub lingual products....
He actually checked my bp, and gave me the request for bloods, to check the basics, the kidney, the liver, B12 and the Vit D (which I was kinda expecting)
Phew...... Am feeling better that we have doctor sorted....
Gabes Ryan
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
