New diagnosis on second colonoscopy

Feel free to discuss any topic of general interest, so long as nothing you post here is likely to be interpreted as insulting, and/or inflammatory, nor clearly designed to provoke any individual or group. Please be considerate of others feelings, and they will be considerate of yours.

Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh

Post Reply
Doug
Adélie Penguin
Adélie Penguin
Posts: 59
Joined: Sun Dec 30, 2012 12:49 pm
Location: Florida

New diagnosis on second colonoscopy

Post by Doug »

I was diagnose with MC lymphocytic Colitis Oct 2012. The diagnosis was that it was suspicious with MC, weather suspicious that means you have it or they cannot rule it out I not sure. I always questioned the diagnosis due to not have diarrhea (only seem to have it when I was on PPH). Maybe also because I never wanted to believe I could get something like that. I did the Entrolab tests and my results were very good compared to most. I only had Gluten level of 10, and minor reaction to rice. I gave up Gluten for a year and saw no real difference, of course I never had diarrhea, just stomach issues, like heartburn, acid reflux and stomach aches in various spots I associated (right or wrong) as some built up gas that was really difficult to get rid of. Non Gluten items of course can still trigger heartburn (worst for me peppermint, onions, BBQ sauce and of course red sauce) Since the proton prohibitors gave me diarrhea as did Zantac 150, I cannot seem to take any remedy except tums. Did not like my old doctor (many can relate) so I opted for a new one and he wanted to do new tests. I had an upper and lower scope. Lower revealed that I don’t not have MC after all, while the upper showed I have Hiatal Hernia. Well is it possible the first one colonoscopy I had which stated suspicious (not a 100% definitive yes), was incorrect, or could have it gone away with me not being on PPH or any time of Ibuprofen.
I am to meet my doctor in a few days, if anyone has a great question I could pose to him regarding my test or situation it would very much appreciated.
User avatar
tex
Site Admin
Site Admin
Posts: 35072
Joined: Tue May 24, 2005 9:00 am
Location: Central Texas

Post by tex »

Hi Doug,

Yes, drug-induced MC can sometimes be resolved simply by avoiding the drugs that trigger it, and remission should be permanent, as long as you avoid those drugs.

Lucky you.

Tex
:cowboy:

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
User avatar
Gabes-Apg
Emperor Penguin
Emperor Penguin
Posts: 8332
Joined: Mon Dec 21, 2009 3:12 pm
Location: Hunter Valley NSW Australia

Post by Gabes-Apg »

Doug
Do you have pathology results regarding the biopsies of the first colonscopy? that is the only way to confirm the situation.

Given most GI Specialists are a bit naive when it comes to the ins and outs of MC, I dont think there are many that could give you the answers you seek.
Generally, most specialists will not say that the previous specialist made a mistake, they will generalise their answers.

As Tex stated in his reply, if you had medication induced MC, stopping the medication will allow remission.

Does this mean that the MC may or may not come back, who knows, again there is no way anyone here or a GI Specialist can answer that question.
Gabes Ryan

"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
Doug
Adélie Penguin
Adélie Penguin
Posts: 59
Joined: Sun Dec 30, 2012 12:49 pm
Location: Florida

Post by Doug »

One thing I have realized over the past twenty four months, Doctors do not have all of the answers sometimes it seems they are guessing. Reminds me of the show House. He would pick an illness four or five times before he was finally right. Of course its TV so he always got it right in the end, we should be so lucky.
User avatar
Zizzle
King Penguin
King Penguin
Posts: 3492
Joined: Thu Jul 22, 2010 9:47 am

Post by Zizzle »

Lucky you is right!! I am envious! :smile:
1987 Mononucleosis (EBV)
2004 Hypomyopathic Dermatomyositis
2009 Lymphocytic Colitis
2010 GF/DF/SF Diet
2014 Low Dose Naltrexone
User avatar
tex
Site Admin
Site Admin
Posts: 35072
Joined: Tue May 24, 2005 9:00 am
Location: Central Texas

Post by tex »

Doug wrote:Reminds me of the show House. He would pick an illness four or five times before he was finally right. Of course its TV so he always got it right in the end, we should be so lucky.
You are so right. In the real world we never know for sure exactly where the episode (the guessing game) is supposed to end, because we have to write the script as we go. :lol: And unlike TV, usually we don't have perfect symptoms (or perfect responses to treatment), and sometimes we have too many (irrelevant or redundant) symptoms which add to the confusion. And even when we guess right, recovery can take a very long time, so we can't always be sure we're right, until months or even a year or 2 later.

Tex
:cowboy:

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Post Reply

Return to “Main Message Board”