Update, and starting LDN soon

Zizzle · Post by **Zizzle** » Wed Feb 26, 2014 11:11 pm

Weird, I thought I just replied to Gabes.

Mc and the gut are not the major issue for you, the skin, the rash and irritation is the main reason you are doing the LDN?
Prior to the skin issues, you had the MC /gut reasonably under control...

That's correct. I'm trying LDN to see if it can get my rash under control and prevent any muscle or lung involvement, or new AI diseases from starting. I had MC somewhat under control with higher dose prednisone, but was still having D with certain foods. I really got it under control when I started the water kefir and paleo diet, but my gut still seemed hypersensitive. Seeing the tremendous results LDN has with Crohn's makes me hopeful that it will truly control the MC, allow me to loosen up my diet a bit, allow me to taper off prednisone, and ultimately heal my rash.

Zizzle · Post by **Zizzle** » Thu Feb 27, 2014 7:56 am

Monique,
Someone asked about amitryptiline on one of the LDN FB groups, and several people relied that they take both...

wmonique2 · Post by **wmonique2** » Thu Feb 27, 2014 10:40 am

Thanks Tex, thanks Z.

I understand what you two are telling me. A. has not shown to decrease inflammation, it may work on endorphins and H1 and H2 receptors but it hasn't shown to decrease inflammation as far as I know.

As you said Tex, it is an entirely different kind of drug.

I went to see my doc this morning and I didn't have to twist his arm. I, myself, came armed with clinical trials studies by various doctors but he acquiesced immediately without reservations. In fact, he listened very carefully to everything I said (was stunned at my knowledge) then said, I'll write it. No harm in it. I am getting it in cream form since I am scared of intolerances (at least for now). I don't want to have to stop it because of my gut issues.
Z. I just talked to Skip Lenz the pharmacist and he said to just go for the 4.5mg in a cream form. I'll probably will half it (not sure yet). But he said that if I want to kick MC in the butt, I just need to go for the 4.5mg because it is the dose that has shown reduction in inflammation in the clinical trials. It's a small dose anyway.

Monique

Zizzle · Post by **Zizzle** » Thu Feb 27, 2014 10:52 am

Woohoo! Good job on your doctor! You might have noticed the discussion on FB about Amitryptiline -- seems many people take both, especially those with fibro, MS, etc.
Where are you supposed to apply the cream for quick absorption? And at what time if you need it in your system by sleep time?

wmonique2 · Post by **wmonique2** » Thu Feb 27, 2014 11:00 am

Z.

I haven't seen the discussion about A but I talked to Skip (BTW he is both a doctor and a pharmacist) and he told me that A is fine and so is mesalamine. but I'll look it up.

About absorption: I want to say that the belly area is probably the most receptive to absorption but I'll the pharmacy and ask when I get it or just ask the question on the FB boards.

Monique

Polly · Post by **Polly** » Thu Feb 27, 2014 11:15 am

Zizzle and Monique,

I will be following your progress with great interest!

Good luck,

Polly

Pat · Post by **Pat** » Thu Feb 27, 2014 11:22 am

Monique,

I use bioidentical hormone creams that I apply every night. They say best absorption areas are the inside of your arms to avoid it from having to go through much fat. There are lots of veins close to the surface of the skin inside the arms and it is best absorbed there.

I haven't picked up my LDN yet. Just started thyroid med. Good Luck!

Pat

wmonique2 · Post by **wmonique2** » Thu Feb 27, 2014 11:27 am

Polly,

Thanks! Will keep everyone posted on this journey.

Pat,

Thanks for the info. It makes sense.

Monique

Zizzle · Post by **Zizzle** » Thu Feb 27, 2014 2:40 pm

Then again, maybe we should just smoke pot instead...

http://blog.sfgate.com/smellthetruth/20 ... -conclude/

wmonique2 · Post by **wmonique2** » Thu Feb 27, 2014 3:01 pm

Z.

Actually Z., you may be on to something...when I tell my friends that I have horrific nausea if I don't take the 2 meds they all say that I should smoke pot. I have a friend in CO who is encouraging me to move there ;-) (the problem I have with pot is that it makes you hungry and fat--the last thing I need for either diabetes or colitis).

Monique

gluten · Post by **gluten** » Fri Feb 28, 2014 12:14 pm

Hi Monique, Just ad the pot to a g-f brownie mix, that will take care of the munchies. Jon

Zizzle · Post by **Zizzle** » Tue Mar 04, 2014 11:02 am

Good news! I doubled my LDN dose to the recommended 4.5 mgs a few days ago, and I'm not having any bothersome symptoms! At first I had some serious grogginess in the morning, but it cleared after 2 days and I feel great! The only noticeable symptoms are being a lighter sleeper (I never used to get up to pee), and mild small muscle twitching during the day, which I'm taking magnesium, calcium and b vitamins more regularly for.

My rash looks much lighter when I wake up in the mornings. Darkens again by midday but it is looking much better overall! Food sensitivities are still there, as I found out from having a half cup of coffee and pork.

Zizzle · Post by **Zizzle** » Tue Mar 04, 2014 11:05 am

MICROSCOPIC COLITIS SUPPORT

Update, and starting LDN soon

update and starting LDN soon

update and starting LDN soon

update and starting LDN soon

update and starting LDN soon