STOPPED ENTOCORT

janet · Post by **janet** » Mon Mar 17, 2014 7:14 pm

FRIENDS HELLO, AND HAPPY ST PATRICKS DAY.
I HAVE WEANED OFF ENTOCORT FOR A WEEK NOW.
HAD LOTS OF UNPLEASANT SIDE EFFECT, THE WORSE ONE BEING MY HAIR LOSS, I HAVE ALWAYS TAKEN A PRIDE IN MY HAIR.
WHAT DO THEY SAY PRIDE BEFORE A FALL.
SAW THE GASTRO DR FOR THE LAST TIME TODAY.
AND SO NOW I WILL TRY LIVING A RELAXING LIFE FREE OF STEROIDS, AND WILL TRY TO GO WITH WHAT I EAT AND
WHAT DISAGREES WITH MY BOWELS.MY QUESTION IS THIS, WILL MY HAIR GROW BACK AND WHEN CAN I EXPECT TO
SEE IMPROVEMENTS IN IT FALLING OUT?

ENTOCORT DID DIDDLY SQUAT FOR ME.

THANKYOU FOR LISTENING TO ME CRIBBING.

LOVE MARIE

Post by **tex** » Mon Mar 17, 2014 9:27 pm

Hi Marie,

Yes, unfortunately Entocort does not help everyone.

Regarding the side effects, your hair should stop falling out within a few weeks after you stop taking the drug. Of course it will take a while for your hair to grow back, but it should soon begin to grow thicker again.

I hope that you can fine-tune your diet so that it will control your MC symptoms.

Love,
Tex

JLH · Post by **JLH** » Tue Mar 18, 2014 10:23 am

Oh, NOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOO. I can't afford to have any more hair loss.

I stepped myself down to 2 pills a day on Feb. 10th.

I am going to try LDN if my GI will approve.

janet · Post by **janet** » Tue Mar 18, 2014 10:39 am

THANKYOU TEX, YOU HAVE PUT MY MIND AT REST.
I MOST CERTAINLY TRY THE BETTER APPROACH.

HOPE YOU DONT HAVE MY SIDE EFFECT OF HAIR LOSS JOAN, WE ARE ALL DIFERENT.
I.M HAVING A GOOD TRIM TODAY, MIGHT DO IT SOME GOOD.

THANKYOU AMD BLESS YOU MARIE

Leah · Post by **Leah** » Tue Mar 18, 2014 11:42 am

I didn't lose hair. I hope you find the right balance Marie

brookevale · Post by **brookevale** » Sat Mar 29, 2014 12:22 pm

I have lost my hair to shedding several times over the past few years due to childbirth, malnutrition from my sphincter of oddi dysfunction, and surgeries/procedures. I went to a hairdresser who recommended a protocol by Rene Furterer for Sudden Thinning Hair. It is all plant-based. Once a week, you rub the oil into your scalp, leave on for 20-30 minutes then wash with the shampoo then towel dry hair and rub contents of ampules into scalp. I swear by it. I had 1-2 inch hair growth (like short baby hairs) within the first month. They give you more than enough of the oil and shampoo that I'd put the oil in my scalp and sleep on it a few times a week then wash with the shampoo the next morning. Not sure what the policy is to post links to products, but here it is: http://www.beauty.com/rene-furterer-sud ... atid=13006. BTW I don't benefit from this, so maybe it's ok to post?

Pat · Post by **Pat** » Sat Mar 29, 2014 12:29 pm

Low thyroid makes your hair thin.

Pat

Post by **tex** » Sat Mar 29, 2014 1:57 pm

Hi Brooke,

Sure, as long as you're not selling snake oil, it's OK to post links to products that you personally find to be useful in dealing with issues associated with MC. Hair loss is a topic that comes up frequently.

Tex

Zizzle · Post by **Zizzle** » Sat Mar 29, 2014 2:02 pm

I was losing hair from my autoimmune disease affecting my scalp. Steroids actually helped it grow back. Lots of people with DM swear by biotin supplements to help the hairloss. I take a biotin pill a few times a week, but there is also some in my multi.

janet · Post by **janet** » Sun Mar 30, 2014 4:24 pm

THANKYOU THANKYOU I AM GOING TO TRY RENE FORTERER AND THANKYOU FOR THE TIP OFF.
TALK ABOUT VAIN, I LOOK AT MY OLD SCALP ABOUT EVERY HOUR OF THE DAY.
NOW YOU WOULD THINK AT MY AGE I WOULD ACT MY AGE.
NO I"M STILL INTERESTED IN LOOKING GOOD.

THANKYOU ONE AND ALL.
LOVE MARIE

Lesley · Post by **Lesley** » Sun Mar 30, 2014 5:39 pm

Marie - you answered my post about MY hair loss. I am also "getting on". I think I will be interested in looking as good as I can till the day I die.

Brooke - I am going to try some of that stuff.

Zizzle - biotin it is.

Joan - going on LDN WITHOUT my doc's approval because he wouldn't.

JLH · Post by **JLH** » Mon Apr 07, 2014 1:58 pm

Try the Good Hair Day from Joan Rivers. Do a PP search to make sure of the correct name. I noticed they make white now so I will mix with salt and pepper.

I've added biotin and selenium to my supplements. I feel like I'm going to be like Suzanne Sommers pretty soon. She takes many, many things.