LDN for MS, a personal story

Feel free to discuss any topic of general interest, so long as nothing you post here is likely to be interpreted as insulting, and/or inflammatory, nor clearly designed to provoke any individual or group. Please be considerate of others feelings, and they will be considerate of yours.

Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh

Post Reply
JLH
King Penguin
King Penguin
Posts: 4282
Joined: Tue Jun 17, 2008 9:34 pm

LDN for MS, a personal story

Post by JLH »

We met the author, Francie Stull, at a dog lure coursing event in north GA when we went to meet some Silken Windhounds. Francie started the breed and they are all DNA tested. They may be AKC recognized some day. We like them but decided we like Borzoi better.

http://www.ldn-for-ms.com/

I hope LDN is as good for MC as it is for MS.
DISCLAIMER: I am not a doctor and don't play one on TV.

LDN July 18, 2014

Joan
User avatar
tex
Site Admin
Site Admin
Posts: 35072
Joined: Tue May 24, 2005 9:00 am
Location: Central Texas

Post by tex »

Whoa! From the "What to Expect at First" link, that accompanies the article you cited:
As usual, I need to emphasize that seldom is LDN a stand-alone treatment, but accompanies other strategies their body needs, especially a healthy diet. No sugar, dairy or gluten.
http://www.ldn-for-ms.com/expect.html

If you're going to follow the same basic diet that we have found to work for MC, do you really need the LDN? Like Entocort, it apparently speeds up results, but it is probably the diet that is actually healing the gut, and controlling the symptoms.

Tex
:cowboy:

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
JLH
King Penguin
King Penguin
Posts: 4282
Joined: Tue Jun 17, 2008 9:34 pm

Verrrry interesting........

Post by JLH »

I never read that part, Tex.
DISCLAIMER: I am not a doctor and don't play one on TV.

LDN July 18, 2014

Joan
User avatar
tex
Site Admin
Site Admin
Posts: 35072
Joined: Tue May 24, 2005 9:00 am
Location: Central Texas

Post by tex »

I've never seen that before, either, associated with the treatment. That puts the treatment in an entirely different category.

Tex
:cowboy:

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
JLH
King Penguin
King Penguin
Posts: 4282
Joined: Tue Jun 17, 2008 9:34 pm

EnteroLab nurse from a previous post

Post by JLH »

"Just talked to the EnteroLab nurse about the 0603 and the probability for neurological symptoms. She talked so fast that I couldn't get them all. MEMORY was one that stuck out for me. Others were MS, peripheral neuropathy, headaches, migraines, seizures (don't remember the kind), ADD, bipolar and one I didn't get which I think starts with pl."

When I talked to the nurse she said the diet would help people with those problems and help possibly prevent them in people predisposed to them. That is what I think I remember.
DISCLAIMER: I am not a doctor and don't play one on TV.

LDN July 18, 2014

Joan
Stanz
Rockhopper Penguin
Rockhopper Penguin
Posts: 948
Joined: Fri Oct 16, 2009 2:35 pm
Location: Oregon

Post by Stanz »

Joan & Tex,

This is all very interesting.

It's not like MD's and ND's haven't known all along that our gut is the key to all illness, pretty frustrating.
Resolved MC symptoms successfully w/L-Glutamine, Probiotics and Vitamins, GF since 8/'09. DX w/MC 10/'09.
JLH
King Penguin
King Penguin
Posts: 4282
Joined: Tue Jun 17, 2008 9:34 pm

OLD THREAD LDN and MS

Post by JLH »

Francie's birthday message from a few weeks ago:


"I can't thank everybody enough for the wonderful Happy Birthday wishes. Normally I shrink from birthdays, once you have had a bunch, that is enough, BUT when you start having birthdays that you were told you would never have, they make a difference. I feel better this birthday, over two years from being turned over to hospice, with less than six months to live, than I have in years and years. So, Happy Birthday to myself as well."

I'm confused about the timeline though...........
DISCLAIMER: I am not a doctor and don't play one on TV.

LDN July 18, 2014

Joan
Post Reply

Return to “Main Message Board”