PP LDN Facebook page?

Feel free to discuss any topic of general interest, so long as nothing you post here is likely to be interpreted as insulting, and/or inflammatory, nor clearly designed to provoke any individual or group. Please be considerate of others feelings, and they will be considerate of yours.

Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh

mzh
Rockhopper Penguin
Rockhopper Penguin
Posts: 615
Joined: Fri Nov 12, 2010 8:03 pm
Location: Upstate South Carolina
Contact:

Post by mzh »

Well, I tried to create a group (PP LDN) but it choked when I pressed the create group button. Perhaps I need more members' names beside Joan's. :shock:

Please give me your Facebook names and I'll try again. I thought I'd make it secret for those who value their privacy.

Marcia
Also have sleep apnea
JLH
King Penguin
King Penguin
Posts: 4282
Joined: Tue Jun 17, 2008 9:34 pm

Post by JLH »

Sounds good. Thanks Marcia.
:smile:
DISCLAIMER: I am not a doctor and don't play one on TV.

LDN July 18, 2014

Joan
User avatar
LindyLou
Adélie Penguin
Adélie Penguin
Posts: 182
Joined: Tue May 31, 2011 5:20 pm
Location: New Baltimore, MI

Post by LindyLou »

Zizzle, I know I have some form of candida as I have battled toenail fungus for many years. Never did anything for it as the drugs used to treat it are pretty tough on the liver. Although I don't have any pain, I do suffer from a fatty liver (non alcoholic as I have a difficult time with even a glass of wine). But I want to give myself the best possible chance for success on this drug. If it can help modulate my immune system, it's possible it will cause a cascade of good things to happen. In addition to MC & Hashi's, my doctors now suspect some sort of connected tissue disease such as sjogrens. It's a little tough but I can wait until my doctor has any and all information needed for him to feel comfortable writing the script for it. I know he has one other patient who has MC and is looking for an alternative treatment other than steroids. I printed out some of the most current Peer reviewed info I could find and passed along the name of this website. Not sure if she or he has joined yet but hopefully I've pointed him/her in the right direction. Can anyone currently on LDN provide another update?
User avatar
LindyLou
Adélie Penguin
Adélie Penguin
Posts: 182
Joined: Tue May 31, 2011 5:20 pm
Location: New Baltimore, MI

Post by LindyLou »

MZH, I'm Linda LaGassa White. I have never created a facebook group before but if there is anything I can do to help, please message me. Can I help with writing a ground rules file?
mzh
Rockhopper Penguin
Rockhopper Penguin
Posts: 615
Joined: Fri Nov 12, 2010 8:03 pm
Location: Upstate South Carolina
Contact:

Post by mzh »

Thank you Linda. I don't even know if we need a general rules file. It's just for us Potty People anyway. :cool:
Also have sleep apnea
User avatar
kayare
Adélie Penguin
Adélie Penguin
Posts: 148
Joined: Sun Oct 23, 2011 2:27 pm
Location: Florida

Post by kayare »

I'm interested. Thanks! Kathy
User avatar
LindyLou
Adélie Penguin
Adélie Penguin
Posts: 182
Joined: Tue May 31, 2011 5:20 pm
Location: New Baltimore, MI

Post by LindyLou »

I agree at this time but you might be surprised how quickly the group could grow unless it is kept secret. But like I said, I'm now working at this point and do have free time. If I can help, please let me know.
mzh
Rockhopper Penguin
Rockhopper Penguin
Posts: 615
Joined: Fri Nov 12, 2010 8:03 pm
Location: Upstate South Carolina
Contact:

Post by mzh »

As I said, it will be secret - just for us.
Also have sleep apnea
User avatar
LindyLou
Adélie Penguin
Adélie Penguin
Posts: 182
Joined: Tue May 31, 2011 5:20 pm
Location: New Baltimore, MI

Post by LindyLou »

Sorry, I didn't see your last sentence about keeping it secret.
CathyMe.
Rockhopper Penguin
Rockhopper Penguin
Posts: 641
Joined: Mon Feb 27, 2012 10:42 am

Post by CathyMe. »

Hi there,
I'm Catherine Kelso-doten on FB.
CathyMe.
Rockhopper Penguin
Rockhopper Penguin
Posts: 641
Joined: Mon Feb 27, 2012 10:42 am

Post by CathyMe. »

And thanks for doing this and for keeping it secret!
JLH
King Penguin
King Penguin
Posts: 4282
Joined: Tue Jun 17, 2008 9:34 pm

Post by JLH »

If you want to be private about your name, please private message Marcia (MZH) your Facebook name.
DISCLAIMER: I am not a doctor and don't play one on TV.

LDN July 18, 2014

Joan
Post Reply

Return to “Main Message Board”