Paula,
I will share a story to illustrate your comment: "So, what everyone is saying is that even though a restaurant promises GF and DF foods, that isn't necessarily the case? So sad. "
Some time ago when I was in a restaurant in NYC, I decided the safest item on the menu for me was Manhattan clam chowder (the red kind). I asked the waiter if it contained any of my individual unsafe foods, and he said no. So I ordered it. When it arrived, it looked a little "gloppier and shinier" than it should have. I asked the waiter if it had any flour or cornstarch in it, and he didn't appreciate that I was questioning him. He stormed off and brought me a looseleaf folder that listed each item on the menu, with every ingredient in it and how it was prepared. Sure enough, the soup looked OK. But I was still concerned, so I asked him if he would mind checking with the chef just in case. By this time, he was openly irritated with me! When he came back from the kitchen, he told me sheepishly that yes, the soup had flour in it. The chef thought the soup looked a little thin that day so decided to thicken it.
Polly
Feeling Horrible...
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
-
humbird753
- Rockhopper Penguin
- Posts: 1014
- Joined: Mon Nov 28, 2011 4:44 pm
- Location: Wisconsin
Polly, that is sad. Good thing you questioned it. The saddest part is that you repeatedly asked because of health needs, and the waiter became irritated as he felt you were wasting his time.
Paula
Paula
Paula
"You'll never know how strong you are until being strong is the only choice you have."
"Life is not about waiting for the storm to pass... It's learning to dance in the rain."
"You'll never know how strong you are until being strong is the only choice you have."
"Life is not about waiting for the storm to pass... It's learning to dance in the rain."
-
humbird753
- Rockhopper Penguin
- Posts: 1014
- Joined: Mon Nov 28, 2011 4:44 pm
- Location: Wisconsin
Well, my symptoms started last Sat. (6 days ago). I am thankful the extreme WD only lasted one day, the pain only a few days, but the fatigue still lingers on.
My husband mentioned last night he wasn't feeling well. I was rather excited about it, hoping I could blame this on a flu bug. But... today he says he's fine.
Well, at least I am on the mend again.
Paula
My husband mentioned last night he wasn't feeling well. I was rather excited about it, hoping I could blame this on a flu bug. But... today he says he's fine.
Well, at least I am on the mend again.
Paula
Paula
"You'll never know how strong you are until being strong is the only choice you have."
"Life is not about waiting for the storm to pass... It's learning to dance in the rain."
"You'll never know how strong you are until being strong is the only choice you have."
"Life is not about waiting for the storm to pass... It's learning to dance in the rain."
-
Gabes-Apg
- Emperor Penguin
- Posts: 8332
- Joined: Mon Dec 21, 2009 3:12 pm
- Location: Hunter Valley NSW Australia
Paula,
Glad to hear that you are on the mend.
The slightly unsettling part is the intensity of the reaction and the length of time that the fatigue has affected you
Hope the spring brings good weather and minimal contact with sick people.
Do you take Vit d3? It might be worthwhile increasing your dose to help the body reduce the inflammation.
Healing hugs
Glad to hear that you are on the mend.
The slightly unsettling part is the intensity of the reaction and the length of time that the fatigue has affected you
Hope the spring brings good weather and minimal contact with sick people.
Do you take Vit d3? It might be worthwhile increasing your dose to help the body reduce the inflammation.
Healing hugs
Gabes Ryan
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
-
humbird753
- Rockhopper Penguin
- Posts: 1014
- Joined: Mon Nov 28, 2011 4:44 pm
- Location: Wisconsin
Gabes,
Yes I take D3 (5,000 I.U.) every day. It surprised me also that the symptoms were so intense. This is the busiest time of year where I work. I did end up missing one afternoon of work.
Guess what - last night my husband said he had bumped into some friends of ours yesterday, and he mentioned to them that it would be nice to go out to eat with them sometime soon
I guess even though people in our lives "see" us and "hear" us saying we are not well, it must be so much different than our actually experiencing it.
I said, "You've got to be kidding! You think I want to go out to dinner after what I've just been through?" He said, "I don't mean right now. Not until Saturday!" I said, "Saturday is only 2 days away, and I am still not feeling well. The last thing I want to do is go out to dinner." I let it go, and just told him he can go, but of course I wouldn't.
Yes I take D3 (5,000 I.U.) every day. It surprised me also that the symptoms were so intense. This is the busiest time of year where I work. I did end up missing one afternoon of work.
Guess what - last night my husband said he had bumped into some friends of ours yesterday, and he mentioned to them that it would be nice to go out to eat with them sometime soon
I guess even though people in our lives "see" us and "hear" us saying we are not well, it must be so much different than our actually experiencing it. I said, "You've got to be kidding! You think I want to go out to dinner after what I've just been through?" He said, "I don't mean right now. Not until Saturday!" I said, "Saturday is only 2 days away, and I am still not feeling well. The last thing I want to do is go out to dinner." I let it go, and just told him he can go, but of course I wouldn't.
Paula
"You'll never know how strong you are until being strong is the only choice you have."
"Life is not about waiting for the storm to pass... It's learning to dance in the rain."
"You'll never know how strong you are until being strong is the only choice you have."
"Life is not about waiting for the storm to pass... It's learning to dance in the rain."
Paula,
Why don't you go and take your entire dinner with you? (assuming the D is under control now). As I said, I often do that. I refuse to be intimidated or embarrassed in a restaurant when I know best how I need to eat.
Polly
Why don't you go and take your entire dinner with you? (assuming the D is under control now). As I said, I often do that. I refuse to be intimidated or embarrassed in a restaurant when I know best how I need to eat.
Polly
Blessed are they who can laugh at themselves, for they shall never cease to be amused.
-
Sheila
- Rockhopper Penguin
- Posts: 1150
- Joined: Wed May 18, 2011 5:10 am
- Location: Palm Beach Gardens, Fl
Hi Paula, I understand what you mean about others not "getting it". Unless you are going through it yourself, it is very difficult for family members and friends to understand the misery of living with MC, celiac etc.
Lately I've been ordering a plain hamburger and sweet potato when I go out for dinner. Unless I'm going to a very "safe" restaurant, I order the most basic food item available. Since stopping budesinide even safe foods occasionally cause a reaction. I was sure rice was a problem, had rice for dinner last night and no reaction at all. In fact, I had less gas than usual. I don't understand what is happening in my colon
If MC were easy to figure out, this board wouldn't exist.
There was a segment on a news show recently where two men underwent artifically induced "labor pains". They were pretty arrogant going in and wiped out and apologetic when it was over. They had a lot more respect for what their wives went through after experiencing artifical labor. I wouldn't wish MC on family members but a few unsuccessful runs to the WC might give them a better perspective.
Sheila W
Lately I've been ordering a plain hamburger and sweet potato when I go out for dinner. Unless I'm going to a very "safe" restaurant, I order the most basic food item available. Since stopping budesinide even safe foods occasionally cause a reaction. I was sure rice was a problem, had rice for dinner last night and no reaction at all. In fact, I had less gas than usual. I don't understand what is happening in my colon
If MC were easy to figure out, this board wouldn't exist. There was a segment on a news show recently where two men underwent artifically induced "labor pains". They were pretty arrogant going in and wiped out and apologetic when it was over. They had a lot more respect for what their wives went through after experiencing artifical labor. I wouldn't wish MC on family members but a few unsuccessful runs to the WC might give them a better perspective.
Sheila W
To get something you never had, you have to do something you never did.
A person who never made a mistake never tried something new. Einstein
A person who never made a mistake never tried something new. Einstein
Polly,
Do you ask the restaurant to heat up your meal? That's what I'd be afraid of.....giving it to them, and some how it gets glutened! I guess if I knew the people who ran the restaurant, I'd feel more secure giving them my meal.
When I go shopping out of town, I take my meal. We eat at a big grocery store that has a cafe. They have microwave ovens where I can heat my food myself, and feel safe!
Oh, the things we have to do!!!
Do you ask the restaurant to heat up your meal? That's what I'd be afraid of.....giving it to them, and some how it gets glutened! I guess if I knew the people who ran the restaurant, I'd feel more secure giving them my meal.
When I go shopping out of town, I take my meal. We eat at a big grocery store that has a cafe. They have microwave ovens where I can heat my food myself, and feel safe!
Oh, the things we have to do!!!
Linda :)
LC Oct. 2012
MTHFR gene mutation and many more....
LC Oct. 2012
MTHFR gene mutation and many more....
Linda,
I'm like you — the last thing I would want would be for some stranger with gluten-contaminated meat hooks, messing with food that I've brought with me. Even if they have the best of intentions (and remember that a certain percentage of them may not, and they will resent the fact that we are bringing our own food into their facility, and expecting them to heat it up, free of charge), some kind souls will accidentally "kill us with kindness", by stirring soup, or mashed potatoes, or pudding , or whatever, with a gluten-contaminated spoon, or placing meat on a gluten-contaminated grill, or who-knows-what (since we won't be able to see what they are doing.
).
Call me paranoid, but frankly I would prefer to take my chances ordering the safest options they might have on the menu, with copious requests to keep it away from any source of gluten (and/or dairy, soy, etc.), because that should reduce (though not completely eliminate) their desire to seek revenge.
Tex
I'm like you — the last thing I would want would be for some stranger with gluten-contaminated meat hooks, messing with food that I've brought with me. Even if they have the best of intentions (and remember that a certain percentage of them may not, and they will resent the fact that we are bringing our own food into their facility, and expecting them to heat it up, free of charge), some kind souls will accidentally "kill us with kindness", by stirring soup, or mashed potatoes, or pudding , or whatever, with a gluten-contaminated spoon, or placing meat on a gluten-contaminated grill, or who-knows-what (since we won't be able to see what they are doing.
).Call me paranoid, but frankly I would prefer to take my chances ordering the safest options they might have on the menu, with copious requests to keep it away from any source of gluten (and/or dairy, soy, etc.), because that should reduce (though not completely eliminate) their desire to seek revenge.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
-
humbird753
- Rockhopper Penguin
- Posts: 1014
- Joined: Mon Nov 28, 2011 4:44 pm
- Location: Wisconsin
Polly, I didn't think I could bring my own dinner to a restaurant. When you do that, what type of responses do you get?
tks.
Paula
tks.
Paula
Paula
"You'll never know how strong you are until being strong is the only choice you have."
"Life is not about waiting for the storm to pass... It's learning to dance in the rain."
"You'll never know how strong you are until being strong is the only choice you have."
"Life is not about waiting for the storm to pass... It's learning to dance in the rain."
I've had a restaurant heat up my meal with explicit instructions from me and I've had a restaurant say that they couldn't do it, that it was
against the health code. I bought some small thermos type containers at Walmart and put really hot food in them and it stays pretty hot/warm for a few hours.
Pat
against the health code. I bought some small thermos type containers at Walmart and put really hot food in them and it stays pretty hot/warm for a few hours.
Pat
-
Gabes-Apg
- Emperor Penguin
- Posts: 8332
- Joined: Mon Dec 21, 2009 3:12 pm
- Location: Hunter Valley NSW Australia
If you ring ahead you can ascertain if they are willing to heat something up.
If they baulk at heating something up for you, due to health code, then I take a protein shake or other gabe safe snack with me.
(Or eat before I go and have small snack when others are eating)
Hope you feel better and feel good enough to brave socialising this weekend
If they baulk at heating something up for you, due to health code, then I take a protein shake or other gabe safe snack with me.
(Or eat before I go and have small snack when others are eating)
Hope you feel better and feel good enough to brave socialising this weekend
Gabes Ryan
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
-
humbird753
- Rockhopper Penguin
- Posts: 1014
- Joined: Mon Nov 28, 2011 4:44 pm
- Location: Wisconsin
Thank you everyone for ideas on how to eat out, or eat before going out and then snacking while others are eating.
A bit of good news for me - husband is sick. Started yesterday - same stomach pains, loss appetite and extreme fatigue - YAY!!! I am sorry he is under the weather now, but am glad that one meal did not contribute entirely to my feeling as bad as I did.
It has taught me, however, that when I do eat out, not to take it lightly and to do my best in making sure my foods are gluten and dairy free (per Enterolab results).
Paula
A bit of good news for me - husband is sick. Started yesterday - same stomach pains, loss appetite and extreme fatigue - YAY!!! I am sorry he is under the weather now, but am glad that one meal did not contribute entirely to my feeling as bad as I did.
It has taught me, however, that when I do eat out, not to take it lightly and to do my best in making sure my foods are gluten and dairy free (per Enterolab results).
Paula
Paula
"You'll never know how strong you are until being strong is the only choice you have."
"Life is not about waiting for the storm to pass... It's learning to dance in the rain."
"You'll never know how strong you are until being strong is the only choice you have."
"Life is not about waiting for the storm to pass... It's learning to dance in the rain."
I had a new restaurant experience yesterday....I went to Austin to visit my son and took him and his gf to lunch at a Chinese restaurant of his choice. I had brought my own food. The server said that I could not eat my food in the restaurant because if it made me sick then I could blame them. What???? His gf suggested that we leave and maybe we should have but it was late anyway and I didn't want to cause a scene so they ate and I ate in the car afterwards. 
Pat
Pat
-
wmonique2
- Rockhopper Penguin
- Posts: 1048
- Joined: Fri Aug 03, 2012 9:06 am
- Location: Georgia, U.S
- Contact:
feeling horrible...
Paula,
I'll chime in with something that we all should consider. Restaurants salads (or salad bars) have sulfites to keep them looking green and fresh.
Many people are sulfite-intolerant. I think we all should stay away from them. Many wines have sulfites too.
As for eating in oriental restaurants, here what I did once: I had my sister here who is addicted to Japanese restaurants so I obliged.
I asked the waiter to not put ANY soy sauce on my food but I had a bottle of coconut aminos with me so I used it and it was great. I had a great piece of grilled salmon with white rice and some sauteed greens.
I was able to enjoy the time with my sis and didn't feel deprived.
Monique
I'll chime in with something that we all should consider. Restaurants salads (or salad bars) have sulfites to keep them looking green and fresh.
Many people are sulfite-intolerant. I think we all should stay away from them. Many wines have sulfites too.
As for eating in oriental restaurants, here what I did once: I had my sister here who is addicted to Japanese restaurants so I obliged.
I asked the waiter to not put ANY soy sauce on my food but I had a bottle of coconut aminos with me so I used it and it was great. I had a great piece of grilled salmon with white rice and some sauteed greens.
I was able to enjoy the time with my sis and didn't feel deprived.
Monique
Diagnosed 2011 with LC. Currently on Low Dose Naltrexone (LDN)