Thanks for being such a wonderful forum. glad to know I'm not alone. Appreciate any advice, not sure what to do. mHaving a flare on one entocort
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Having a flare on one entocort
Not sure what to do? Seeing a new GI on the 23rd and don't want to be put on more entocort and would like to gain remission from diet but it seems that everything just goes straight through me. Waiting for my MRT blood test results and would like to do the entrolab test too. I am not eating grains and don't believe I'm consuming any gluten but know that stuff is tricky. Not eating eggs or dairy. Scared to eat anything really and I'm way too thin. I just have to pray that this gets better. It all seems bleak and I'm a mess. I miss my salads I miss my energy my period and my hair and I'm scared which I know doesn't help anything. Thanks for being such a wonderful forum. glad to know I'm not alone. Appreciate any advice, not sure what to do. m
Thanks for being such a wonderful forum. glad to know I'm not alone. Appreciate any advice, not sure what to do. m
Hi Martha,
One of the most frustrating aspects of treating this disease is that after we work hard, and sacrifice to make all sorts of dietary changes, we usually can't tell if we are still months away from remission, or just a day away.
I don't recall your treatment history, but if the Entocort was controlling your symptoms until you reduced the dose down to a single capsule per day, then taking one or 2 antihistamines each day might bring control. That trick often works if we are close to remission, but mast cells/histamine are preventing remission. And it will tell you whether mast cells/histamine are part of your problem (if antihistamines help).
If antihistamines don't help, Imodium can sometimes help to slow things down so that you can absorb more of the nutrients in your food.
Tex
One of the most frustrating aspects of treating this disease is that after we work hard, and sacrifice to make all sorts of dietary changes, we usually can't tell if we are still months away from remission, or just a day away.
I don't recall your treatment history, but if the Entocort was controlling your symptoms until you reduced the dose down to a single capsule per day, then taking one or 2 antihistamines each day might bring control. That trick often works if we are close to remission, but mast cells/histamine are preventing remission. And it will tell you whether mast cells/histamine are part of your problem (if antihistamines help).
If antihistamines don't help, Imodium can sometimes help to slow things down so that you can absorb more of the nutrients in your food.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Thanks much Tex been flaring for almost three weeks on one entocort and just want off the steroids what type of antihistamine should i try, if allegra or claratin should it be D? i thought they can cause mc? wonder if LDN might help, i fight with being on meds so much esp with already having bone loss and always want to go the natural route but feel this is beyond me. Just read your book today, will give to my herbalist and perhaps new GI. Thanks for all your wonderful kind efforts
Antihistamines definitely have never been shown to cause MC. You're probably thinking of antibiotics or NSAIDs, or one of the many other medications that can cause MC.
If you choose to take Claritin, use the Claritin Redi-Tabs, because the regular formulation contains lactose. I use 24-hour Allegra. Quite a few members here also take Benadryl before bedtime, in addition to Allegra, or Zyrtec, or a Claritin Redi-Tab in the morning. It's best to not take Benadryl at other times of the day, because it causes drowsiness.
Several members here are currently experimenting with LDN. Some feel that it is very helpful, others not so much. It's a bit too soon to decide how the final statistics will actually turn out. Similar to a lot of treatments outside of mainstream medicine, some see LDN as a miracle drug, while many others wonder why it hasn't helped them.
You're most welcome,
Tex
If you choose to take Claritin, use the Claritin Redi-Tabs, because the regular formulation contains lactose. I use 24-hour Allegra. Quite a few members here also take Benadryl before bedtime, in addition to Allegra, or Zyrtec, or a Claritin Redi-Tab in the morning. It's best to not take Benadryl at other times of the day, because it causes drowsiness.
Several members here are currently experimenting with LDN. Some feel that it is very helpful, others not so much. It's a bit too soon to decide how the final statistics will actually turn out. Similar to a lot of treatments outside of mainstream medicine, some see LDN as a miracle drug, while many others wonder why it hasn't helped them.
You're most welcome,
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Martha,
My last bout with this was a tough one. I felt the same way about Endocort. My internist said to try 10mg of Elavil at night along with Questran during the day. It worked for me. I have stopped the Elavil and now take a half of a packet of Questran every 3 days or so depending on my stool consistency. I still watch my diet carefully of course. It has been about a month and a half now and I am grateful for the relief. Good luck finding something that works for you.
Jean
My last bout with this was a tough one. I felt the same way about Endocort. My internist said to try 10mg of Elavil at night along with Questran during the day. It worked for me. I have stopped the Elavil and now take a half of a packet of Questran every 3 days or so depending on my stool consistency. I still watch my diet carefully of course. It has been about a month and a half now and I am grateful for the relief. Good luck finding something that works for you.
Jean
Everything will be ok in the end, if it's not ok, it's not the end.