What the hell do I do?

Lesley · Post by **Lesley** » Sat Apr 19, 2014 1:45 pm

Taking LDN, and upped the dose slightly. Still sticking to my restricted diet, though I have added a couple of foods.
This morning, I had my oatmeal and suddenly got a loud rumble from the stomach and an attack of cramps (snakes writhing in the belly kind, Tex) worse than labor pains. I had to pull off all my clothes - couldn't stand them touching me. Pouring with sweat and writhing on the bathroom floor. Eventually (Licorice in the closet, trembling with fear), I had several WD BMs. I haven't had that for years.
It passed, but has left me wrung out. I called my neighbor to ask to take L for a walk. She needed her toileting. L is so attached to me she won't go with anyone else. And she was terrified by my attack this morning.
I managed to get her out and have a little, slow walk, but I feel pretty washed out right now.

I think I need to go to lamb bone soup (made some yesterday) and lamb. Maybe potatoes. And keep going to see what happens.
I don't know if I can take those cramps again. No idea what to do.
Cross posting to an LDN forum, to see if anyone has had this, or has ideas about what to do.

JLH · Post by **JLH** » Sat Apr 19, 2014 6:21 pm

I wish I knew and could help you, Lesley. BIG HUG

I got a new touch screen computer and it is driving me nuts. OK, more nuts. I tried to post the hug emoticon but no dice getting back to my post. UGH.

Lesley · Post by **Lesley** » Sat Apr 19, 2014 7:38 pm

A desktop? I wouldn't use a desktop, or a touch screen laptop. I am way too clumsy. Even a tablet is hard for me. If I couldn't dictate I would never use my iphone or tablet for communicating.

I haven't had another attack but the rumblings are still there. Another attack would about kill me. I have a very high pain threshold, but what I went through this morning was as bad as labor, if not worse, and about the same level as a burst cyst on an ovary, a terrible pelvic infection and stuff like that. I don't want it to happen again, but I don't know how to stop it.

Pat · Post by **Pat** » Sat Apr 19, 2014 8:18 pm

I'm struggling too, Lesley. Feeling for you. Praying for you. Hope things get better. The Uceris is beginning to take effect, I think. I'm only having one BM per day. Not normal yet but maybe going in the right direction. Still taking LDN and Pentasa too.

Pat

Heady · Post by **Heady** » Sat Apr 19, 2014 10:40 pm

OMG... That's was a big reaction! Exactly what foods have you added in? Has oatmeal always been safe for you? So back to basics. I would go back to plain basics for a bit till your gut settles. If it were me I would stick to the basic foods while I figure out the LDN. I wouldn't add anything in till I am stable on the LDN for a bit. I know it is hard to stick to the basics. I get it... I too am tired of eating a very limited diet. My heart goes out to you. It's hard to be patient while eating such a limited diet. It's also hard that MC is so unpredictable. Hang in there. Hoppy Easter!

Lesley · Post by **Lesley** » Sat Apr 19, 2014 10:58 pm

Lamb, lamb bone broth, and potato. That's all. I have no idea to what I reacted. I am still having grumblings and rumblings, though no more BMs today, and am dead scared of another attack like the last one.
I don't know what else to do.

Sorry Pat. I know how it feels.

Chrisdat · Post by **Chrisdat** » Sun Apr 20, 2014 6:37 am

Newbie here. What is WD? I checked the abbreviations post in the newbies section and it is not listed.

So sorry about your attack. I hope you have a restful Easter and it doesn't happen again.

Chris

Martha · Post by **Martha** » Sun Apr 20, 2014 7:29 am

WD is watery diarrhea.

Chrisdat · Post by **Chrisdat** » Sun Apr 20, 2014 7:52 am

Thanks - I have complete familiarity with WD unfortunately. That and ED (explosive diarrhea). I'd rather type WD and ED - it seems so much nicer:)

Heady · Post by **Heady** » Sun Apr 20, 2014 10:43 am

Happy Easter Lesley,
Are you feeling a little better this morning? If your muscles are still sore from your gut wrenching episode try having warm bathes with Epsom salts in H2O. It works well for me.

carolm · Post by **carolm** » Sun Apr 20, 2014 4:49 pm

Lesley, is it possible that you have a virus?

Just a thought.

Carol

Jeanemcl · Post by **Jeanemcl** » Sun Apr 20, 2014 4:53 pm

Good thought....let's hope it's a miserable 24 hr bug. Tomorrow WILL be better.

Post by **tex** » Sun Apr 20, 2014 5:33 pm

Carol wrote:Lesley, is it possible that you have a virus?

In looking for a reason, I was wondering if there were some way that the reaction could have been connected with the increased LDN dose, but I have a hunch that Carol's observation is much more likely to be on target.

Tex

MarthaE · Post by **MarthaE** » Sun Apr 20, 2014 7:23 pm

Goodness! Sorry about your painful morning Leslie. Please keep us posted how your feeling, Hope you are feeling better soon!!! Sending you love light and prayers m

Lesley · Post by **Lesley** » Sun Apr 20, 2014 8:34 pm

I don't know about nicer. This forum isn't about nice. It's about telling it as it is to get help and feedback. Everyone who comes here is going through the same misery, and all those here are ready to help. Along the way people get their lives back and drop off the board, sometimes coming back for a moment to give a progress update.
Tex, Polly, Gabes, Martha and a few other stalwarts are always ready to educate, help, cheer, pick up, hug, dust off and send you on your way feeling better.

Carol - it didn't feel like it. It was an episode that passed as soon as I managed to get rid of the D roiling inside. It didn't happen again today, although I have been super tired. I have been eating ground lamb cooked in lamb stock, and potatoes. Driving me nuts! I will stick to this for a couple of days and start adding again. See if I can isolate anything.
Why am I hungry? Dunno. It's more mouth hunger than stomach hunger most of the time. I want something else.

Thanks Heady. No sore muscles today.