New to CC and needing help

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Gary
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Post by Gary »

Jean,
What a kind person you are to offer that. I tried to PM you, but being new here I have to have 5 posts before I can. If you don't mind would you email me so we can try to arrange something? Thanks again!

Gary
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humbird753
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Post by humbird753 »

Gary wrote:... I will give that a try with eating nothing but GF and DF foods and see if there is any improvement.


I wondered if your statement above meant you are going to eat gluten and dairy foods only? Or, did you mean that you are going to eliminate gluten and dairy from your diet? I just wanted to make sure it was eliminating those from your diet.

I went GF/DF/SF about 2 years ago. It took me several weeks before I started noticing any improvement on my D. We are each different, and it sounds like you have gotten a fairly quick diagnosis. From my time of diagnosis to the date I was told I had to go gluten free (and found this forum) it was 2-1/2 years. I believe I've read that it may take longer to get things settled down based on how long you are symptomatic. I am doing extremely well from where I was. I was going to the bathroom 25-30 times a day, and now only go once.

Glad to meet you.


:wave:

Paula
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Gary
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Post by Gary »

Paula,
Hi! I did mean I was eliminating all Gluten and Dairy from my diet with the hopes things will get better. I feel very fortunate that a bad day for me is only about 5 or 6 trips to the bathroom. Before I tried the bread again I was only going once with no D, so hopefully I can get things under control quickly. Glad you are doing better!

Gary
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JFR
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Post by JFR »

Gary,

I sent you an email.

Jean
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Gabes-Apg
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Post by Gabes-Apg »

Welcome Gary,

If you eliminate all gluten and dairy,
eat bland, (no spices etc) well cooked meals,
low fibre (no fruit or salads)

This will help the gut settle down.

For you and your wife it is probably a shock that you ended up in 'mc world', where there is no quick fix, no magic pill, no guaranteed solution.
take a few breathes, take your time, read the posts in the first section on the main page, including the success stories, this will help both you and your wife absorb the realities...

Like jeans offer to help with the testing, this family is a wonderful group of supportive sincere people.
And will help you get your life back.
Gabes Ryan

"Anything that contradicts experience and logic should be abandoned"
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ladyathome
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Post by ladyathome »

Hi Gary,
I was diagnosed with CC in Dec. 2010. It took a long time for me to fully get in my head that I couldn't have ANY gluten...and to really watch for hidden gluten in foods. I subscribed to only shopping on the outside walls of the grocery store, cooking and eating only fresh foods.
I'm glad you are considering doing Entrolab. Changed my life. I'm GF SF and can't have oats or tuna.
I wanted to address your chest pain...I had the same thing, and honesty didn't think it would ever go away. It did take a very long time with a strict diet eliminating the things I was re-acting to. I was convinced it was my heart...but every once in a while it would switch sides. I can honestly say it's been a long time since I've had that chest pain. I think some of us have more of a gut/chest connection. Just wanted to let you know that there doesn't seem to be too many on here with those symptoms, but every so often, one of us pops up. I got the GERD diagnosis from my doctor. I'm not saying I don't have GERD, but I think the normal treatment for GERD didn't seem to help me. Only strict diet changes made a real difference. I did do a cup of hot water with ACV and honey at night before bed...I think that helps some.
The pepto bismol protocol was also VERY helpful for me. I know not everyone has the luck I had with it, but I was one that it did really help. It seemed to calm my body down.
Wishing you the best!
Gary
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Joined: Sat May 03, 2014 5:33 pm

Post by Gary »

Thank you both for the advice. I tried to tell my GI Dr. and Cardiologist about the chest pain and they looked at me like I was crazy. Now I know it isn't just me. We went to the store today after doing additional research and are committed to sticking to the G and D free diet. Everyone here has been great. Jean is helping me get the testing done. What a wonderful person she is.

Gary
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tex
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Post by tex »

Gary,

This is just a quick note to let you know that your email address is already available to any member here. All they have to do is to click on the "email" button at the bottom of any of your posts, and the system will automatically open an email addressed to you.

And since Jean has already emailed you, I removed the email address that you listed in your post, so that spammers and spam bots can't harvest it. Only registered members (who have written at least 5 posts) can see those addresses and other contact information, so spammers can't get to them.

Tex
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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Post by Leah »

So nice of you Jean. … don't forget to take it easy on the raw fruits and veggies Gary.
What I would tell your wife is to cook a protein, an easy to digest veggies, and either rice, potato, or sweet potato and see how you do on that type of menu for a while.
Good luck
Leah
Gary
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Post by Gary »

Yes, staying away from the raw fruits and veggies. I sure miss my salads! Any other suggestions regarding getting additional protein? Any supplements that you are aware of that would be safe? Thanks!

Gary
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Heady
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Post by Heady »

Gary, hang in there, it gets easier. Necessity is the mother of invention! I eat protein at every meal. I have eaten all the meats & fish. Have yet to try seafood tho. Being a diabetic, I keep the meat very lean. No spices. I BBQ,broil,bake or steam everything. The only supplement I take is vit.D. Cooking for us on a limited diet takes some creativity. I have made foil dinners on the BBQ with meat,veg& sliced spuds. To flavor foods I have bundled herbs in with them & removed after cooking. I even tried steaming my carrots with a bundle of dill. Many minds here yield many creative cooking ideas.
Diabetic DX June 2012
Diverticulosis/ MC DX Feb.2014

I am thankful for my struggle because without it I wouldn't have stumbled across my strength.

What are you willing to let go of so you can live the life you know you deserve?
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Gabes-Apg
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Post by Gabes-Apg »

Gary
bang for your buck - taking a good quality Vit D3 is your best option
(lingual is 5 times better than liquid or tabs)

while the gut is inflamed, having meals with too many ingredients, and taking supplements with too many ingredients cause additional inflammation.

Vit D3 is crucial for so many things in our body, and can help reduce the inflammation levels.

for 8-12 weeks take 1000iu- 5000iu per day.
See if you can get your doctor to refer you for a Vit D3 level blood test.
then modify the dosage based on those results.

due to a few scientific reasons, spending additional time in the sun will not give your body the levels it needs. No matter where you live supplementation is required.
when you get time to do additional reading, you will see many discussions about the Importance of Vit D3, and why so many here take good dosage constantly.

Times of stress/fatigue/inflammation can deplete the levels very quickly. In a 3 month period of being made redundant, having inflammation, and moving interstate my level halved (116 to 56) and that was during the Aussie summer.
Gabes Ryan

"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
Gary
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Post by Gary »

The continued advice here is amazing. Thank you so much!
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JFR
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Post by JFR »

Gary,

A lot of us here in the US get our vitamin D levels checked here:

http://www.grassrootshealth.net/

You pay for it yourself but it involves no doctor visit.

Jean
Sheila
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Post by Sheila »

Hi Gary,
You said you live in Florida during the winter. If you are near Palm Beach county, my GI is pretty good. He's open-minded and is very familiar with MC. If you are in Northern Palm Beach County, I would recommend Dr. Bernie Stein in Jupiter.

In the event you decide to do MRT testing, the lab is located in Palm Beach Gardens. I went directly to the lab to have blood drawn. Doesn't save any money but it's convenient. MRT tests might be necessary to further define food sensitivities.

Sheila W
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A person who never made a mistake never tried something new. Einstein
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