Low Dose Naltrexone - Getting a lot of positive talk

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JLH
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Facebook PP LDN forum

Post by JLH »

If any PP want to join our private/secret Facebook LDN group send me a PP private message with your exact Facebook name. I will send a friend request. We have to be friends so you can join. We presently have 16 members. We have helpful links to information from compounding your own LDN on.........
DISCLAIMER: I am not a doctor and don't play one on TV.

LDN July 18, 2014

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Post by Deb »

I have been on LDN for nearly two months. I can't say I have experienced a real extreme reaction but I have had to cut my thyroid meds down which indicates it is helping my Hashimotos. My sleep has improved. My blood pressure was better (lower) but is up a bit again, perhaps because of the thyroid meds. All in all, I'm feeling pretty well and my energy level is probably better. Deb
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Zizzle
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Post by Zizzle »

Update: LDN has been an amazing drug for treating my dermatomyositis rash. I also have much improved mood and energy levels from it. I am happy-go-lucky nearly all the time. It's simply amazing. I have also tapered my prednisone and plaquenil meds with no exacerbations. Only problem is, it does not stop D for me. I was doing great for months on the autoimmune paleo diet and drinking water kefir. I stopped the WK a month ago to start a Nystatin regimen for Candida overgrowth, then had an accidental glutening (nibble of a wheat noodle that was supposed to be rice-based), and I've had D on and off ever since. I seem to be reacting to more foods...maybe it's the residual gluten antibodies, or the havoc the Nystatin and prescribed probiotic caused? But LDN is not enough to battle back these reactions. I'm going back to stricter AIP and starting water kefir again, hoping to reach gut homeostasis again :sad:
1987 Mononucleosis (EBV)
2004 Hypomyopathic Dermatomyositis
2009 Lymphocytic Colitis
2010 GF/DF/SF Diet
2014 Low Dose Naltrexone
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tex
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Post by tex »

Are you still taking that probiotic?

Tex
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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Lesley
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Post by Lesley »

I have been taking LDN for about a month now. I messed up on dosing initially, and also probably damaged my pills, but I am definitely feeling better. My gut was not getting any better (past tense because today seemed to be better, but I am NOT holding my breath), but I have more energy, and am doing way more. Aches and pains are better too. They are not gone, but they are way better. Even my back, which, for me is miraculous.
I am waiting for a new batch, that should be here any day now, and I will keep going because I am not having any side effects and am feeling better.
Unless you are Monique, and the improvement is dramatic, you have to watch and wait. Things happen over time. Actually, come to think of it, not so much in my case. A month isn't long if you take into account how long I have been ill, and how ill I have been.

You have nothing to lose by trying it, and much to gain.
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Zizzle
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Post by Zizzle »

Are you still taking that probiotic?

Tex, I only took one probiotic pill, and it was a disaster. It was on day 4 of the Nystatin. I should look at what strains are included, as it may help me figure out which "friendly" bacterium is causing my MC!! Same thing happened when I took Dr. Mercola's blessed multi-strain probiotic. Total.body.rejection.

And yet I tolerate the water kefir just fine. Hmm. My WK includes yeasts, supposedly friendly yeasts (like s.boulardi variety). Maybe they help crowd out the "friendly" bacterium I'm fighting as they are passing through?
1987 Mononucleosis (EBV)
2004 Hypomyopathic Dermatomyositis
2009 Lymphocytic Colitis
2010 GF/DF/SF Diet
2014 Low Dose Naltrexone
CathyMe.
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Post by CathyMe. »

Zizzle wrote:Update: LDN has been an amazing drug for treating my dermatomyositis rash. I also have much improved mood and energy levels from it. I am happy-go-lucky nearly all the time. It's simply amazing. I have also tapered my prednisone and plaquenil meds with no exacerbations. Only problem is, it does not stop D for me. I was doing great for months on the autoimmune paleo diet and drinking water kefir. I stopped the WK a month ago to start a Nystatin regimen for Candida overgrowth, then had an accidental glutening (nibble of a wheat noodle that was supposed to be rice-based), and I've had D on and off ever since. I seem to be reacting to more foods...maybe it's the residual gluten antibodies, or the havoc the Nystatin and prescribed probiotic caused? But LDN is not enough to battle back these reactions. I'm going back to stricter AIP and starting water kefir again, hoping to reach gut homeostasis again :sad:
Yahoo Zizzle! I too have gotten the energy boost from LDN. What dose are you at right now? I am still at 3ml (have been for 3 days) and am thinking of boosting it up to 4 on Monday.
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Zizzle
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Post by Zizzle »

I'm at 4.5 mg. I started at 2.25 in March, and only stayed at the half dose for 10 days. You get symptoms after each increase, so my doc recommends just going for it, instead of titrating up.
1987 Mononucleosis (EBV)
2004 Hypomyopathic Dermatomyositis
2009 Lymphocytic Colitis
2010 GF/DF/SF Diet
2014 Low Dose Naltrexone
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