Enterolab results

Sport · Post by **Sport** » Mon May 12, 2014 6:54 pm

Well, results are in and it is very discouraging.
Iga 567, casein 90, egg 43, soy 75

+1 none, +2 rice corn chicken beef pork walnut cashew white potato +3 almond tuna. Oat

My safe diet for a month and a half has been chicken , rice and potato.

Don't know what to do now. Feel defeated

How can have + 3 to tuna when I never ever eat it?

ldubois7 · Post by **ldubois7** » Mon May 12, 2014 7:23 pm

Sport,

Your results are almost as bad as mine. I reacted to all 11 foods on the Enterolab, but not as severely as you did. So, I had to start from scratch, too.

I tested (what I mean is I ate it for 3 days, all three meals, to see if I reacted to it) venison, turkey, and haddock, and did well with them, so those are my staple meats. I can eat pecan butter. I make sunflower seed butter cookies & coconut macaroons. I eat over cooked veggies. I have a bite of banana & blueberries sometimes. That's about it but it's working for me.

I had 3+ on beef and I hadn't eaten beef in 15 years! I had a 3+ for chicken and I ate it probably 6 X per week! It's odd how our bodies react to the foods.

So, don't despair...start slowly with maybe turkey, and an over cooked veggie for at least 3 days to see if you react to them, then try another meat....and so on. One small step at a time. You can do it!

Post by **tex** » Mon May 12, 2014 8:36 pm

Hi Sport,

Wow! Those are some high numbers. However, the high numbers don't necessarily mean that you are any more sensitive to those foods than anyone else. Instead, they typically mean that you have been reacting to them for a long time.

I notice that you didn't list the most important number from the test results for the 11 other antigenic foods, namely the overall score. The overall score is critical, because it determines the degree of significance (or lack of significance, in some cases) of the other test results for the individual foods.

Linda has had a lot of experience with numerous food sensitivities, and I agree with her suggestions. The overall score that I mentioned above may have an effect on some of this, though.

Also, do you mind if I add your results to our list here?

Tex

Gabes-Apg · Post by **Gabes-Apg** » Mon May 12, 2014 9:16 pm

knowledge is power!
you have the scientific information to figure out your eating plan, and get yourself on the road to healing.

deep breathe, shake your hands/fingers to release the heaviness

there are loads of us following similar eating plan.
dont focus on what you cant have, enjoy the journey of making the most of the food items you can have.

Sport · Post by **Sport** » Tue May 13, 2014 8:37 am

tex,

the number for the 11 foods was 60

and yes, you can post the numbers

thanks

Zizzle · Post by **Zizzle** » Tue May 13, 2014 9:35 am

Wow, I'm sorry about your results. I hope you like sweet potatoes and squashes, as they may become a sustaining food for you as they are for me. I've learned to love duck, lamb, bison, squid, and several other fish, as a way of avoiding the more common meats.

Post by **tex** » Tue May 13, 2014 11:26 am

Sport wrote:the number for the 11 foods was 60

Whoa! That's a strong result. Unfortunately it means that you may have to respect the results for the individual foods, or at least carefully test any of the 2+ foods that you might want to try to include in your diet.

Thanks, I'll add your results.

Tex

ldubois7 · Post by **ldubois7** » Tue May 13, 2014 12:07 pm

My advice (I had an antigenic mean value of 30, which is high, too) is to stay away from all the foods tested for a while.

I tried to test back potatoes (1+) a month ago, and I seemed fine initially, but had to give them up. My other 1+ foods were cashew & walnuts, and I haven't tested them back yet.

Be sure all gluten is out of your life! It is everywhere, and can contaminate you very easily. Can you make your home gluten free....meaning will others in your house go along with that?

Leah · Post by **Leah** » Tue May 13, 2014 12:53 pm

SO sorry to hear your results Sport, but once you get over the initial shock and disappointment, you can take this info and move on…. hopefully you feeling better will make it all worth while. Turkey , fish, and lamb will probably be your staples ( they are the easiest to find). You might want to try quinoa as a "grain". There are lots of good recipes using it. Like Zizzle said, sweet potato, yams, zucchini,and carrots are all pretty easy on the tummy.

You never know, maybe down the road, once your gut is healed, you may be able to eat small quantities of some of these foods.
Good luck and let us know how you are doing
Leah

Sport · Post by **Sport** » Tue May 13, 2014 2:07 pm

Thanks everyone. I'm on my second week of entocort and have felt so much better. how can i possibly know if these items or new foods such as turkey will cause a problem ? Don't I have to wait until I'm no longer taking the entocort? I'm so confused.

Hope that question makes sense.

Post by **tex** » Tue May 13, 2014 4:15 pm

Linda wrote:Be sure all gluten is out of your life! It is everywhere, and can contaminate you very easily. Can you make your home gluten free....meaning will others in your house go along with that?

Sport,

Linda's comment is very important, because any traces of gluten in our diet turbocharges our hypersensitivity so that our immune system may react more easily and more severely to other foods, also. IOW, if you can get all traces of gluten out of your diet for a couple of years, then you will be much more likely to be able to tolerate those other foods. I started to say, "for a year or so", but your anti-gliadin level is so high that it will take a long time for the level to decline to below the threshold at which the immune system will begin to settle down again.

You are correct — you can't be absolutely sure that you are not reacting to turkey or some other food as long as you are taking Entocort. However, don't worry about that now. You can fine tune your diet as you begin to taper down the Entocort dose as you wean off it.

There are exceptions, but most of us find that we continue to react to our main food sensitivities even while taking Entocort (at least we still react to significant exposures), but the Entocort can usually successfully mask the more minor food sensitivity problems. Your goal now is to stop the inflammation so that your gut can heal, and as long as you are free of most of the clinical symptoms, that's prima facie evidence that the inflammation is being suppressed sufficiently that your gut should be able to accomplish some healing. If the Entocort doesn't control your symptoms, then you may have to try some different "safe" foods, until you find a combination that works for you.

Tex

Deb · Post by **Deb** » Tue May 13, 2014 5:42 pm

Sport, my initial gluten score from Enterolab was over 500 too. In fact I called them because at the time their upper limit was 300. They said they needed to change that as more were coming in higher. Tex told me at the time that I was so high because I had been reacting so long. That proved to be the case. I, fortunately, went into remission about a month after eliminating gluten. I retested a year later and my gluten score was 31. Deb

Leah · Post by **Leah** » Tue May 13, 2014 7:10 pm

Hi Sport. I also took Entocort. At the same time, I took out every food I thought COULD give me problems ( I couldn't even use the Enterolab results because of my IgA deficiency) I even left eggs in because I relied on them so much. I got better and better and was able to slowly wean the dose down. When I was down to 3mg. ( i pill) a day, I started noticing that I was reacting a bit to peanut butter… which I had been eating all along. Then I noticed a slight reaction to GF soy sauce. Turns out that I was reacting to soy and it's relatives ( peanuts, lentils, and split peas), but I was still able to heal my gut significantly even while eating it for those 4 months. After i took those out or my diet, I was able to wean completely off the drug within another two months.So, don't worry about whether you could react to these other meats. You are already feeling better. yay! However, It's important to take the drug long enough ( at least 4 months it seems) and to SLOWLY wean off. Just remember that if you start to get constipated, that's when you want to lower the dose.

Good luck!
Leah

Sport · Post by **Sport** » Tue May 13, 2014 7:57 pm

Thanks everyone. I sincerely appreciate all your advice.

JFR · Post by **JFR** » Wed May 14, 2014 4:22 am

Sport, I am just repeating what others have said. Think of these results not as discouraging news but as useful information that will lead you to healing. I too had similar results from Enterolab. My go to proteins were lamb, venison, cod and turkey. I can eat pork as well. These are still my go to proteins. For a while I ate only lamb and a few well cooked greens with some bone broth made from lamb or turkey. Then I gradually increased the number of foods I ate. I still do not eat any grains and have no plans to add them back in. I also don't eat fruit or any sugar or artificial sweeteners. I also avoid all processed foods and make everything from scratch, as simply as possible. So much of this is attitude. Developing gratitude for the information that will allow you to heal rather than focusing on what you can no longer eat goes a long way in assuring success.

Jean