LDN

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Lesley
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LDN

Post by Lesley »

I am going the LDN route, and am definitely feeling better. This morning (dare I say it) I had a BM that didn't float. I couldn't really see it because for the first time in 3 years it actually more or less went down the drain on it's own. I am hesitant to say N, because I have not seen that for over 3 years. Still, I certainly have more energy, and a lot of my aches and pains, if not gone, are better. Even my back. I think the LDN is working as an anti inflammatory, which I haven't been able to use thanks to MC, and is making things feel better.

I have titrated Nortryptiline down to 50, will stay here for a bit,and start to titrate it down to ZERO over time. It's taken me 4 months to get down to 50. I am not in a hurry.
When Nortryptiline is gone I will be on minimal meds for my BP and pulse, and a little (very little) Zolpiderm for sleep when I need it. That's it.

Last tests - sugar was in the mid range, and cholesterol a bit high (HDL a bit low), but better than it was. I got an email (probably form) from the nurse, that I am prediabetic, must loose weight, eat a healthy diet, cut down sugar, and exercise.
I answered that I am NOT overweight (in fact I am trying not to loose any more, with poor success right now), my diet is prescribed by my MC, I eat almost NO sugar, (very proud of that!) and I exercise daily. My mom's cholesterol was off the charts. She died of emphysema at 82. Since I am not going to take drugs I am not worrying about it.
My D level is 35. I am taking 10,000 IUs a day, so I am going to up it to 15,000.
Everything else seems fine.

I am holding thumbs re: the LDN. People are getting terrific results. Maybe I will too!
Kari
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Post by Kari »

Lesley,

What a wonderful update from you!!! It's so good to hear that you're finally catching a break. :xfingers: that it continues.

Love,
Kari
"My mouth waters whenever I pass a bakery shop and sniff the aroma of fresh bread, but I am also grateful simply to be alive and sniffing." Dr. Bernstein
Polly
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Post by Polly »

Lesley,

Well, this is the best news I have heard in ages! WAHOO!!!! (Shhh, I'd better be quiet so I don't jinx you). I've got fingers and toes crossed that you continue to improve.

Love,

Polly
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dfpowell
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Post by dfpowell »

Great news Lesley!! Hope this continues for you!
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Gabes-Apg
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Post by Gabes-Apg »

wonderful news!!!
hang in there, and to quote ant, softly softly catchee monkey....
Gabes Ryan

"Anything that contradicts experience and logic should be abandoned"
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tex
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Post by tex »

Lesley,

Awesome update. :thumbsup:

And don't let your doctor (or his nurse) stampede you into doing something that you don't feel is right for you.

Did you happen to see the 60 Minutes program that was aired Sunday before last (on May 5)? Lesley Stahl had a segment on people who survived into their nineties and beyond. She (and the people she interviewed) explored the reasons why those individuals were different from their peers, and tried to determine why they were able to live so much longer. Some of the reasons were contrary to current medical recommendations. Here are the ones that stuck in my mind, after viewing her presentation, and I was already aware that these attributes are associated with longevity, from my previous research:

1. Either gaining weight, or maintaining an above-average weight increases the chances of living longer. Being thin is a disadvantage.

2. Moderate alcohol consumption (1 or 2 drinks daily) increases the odds of living longer by 10 – 15 %.

3. Drinking coffee is associated with living longer.

4. Neither vitamins A, C, nor E, nor calcium, made any difference in the study. Strangely, they apparently didn't consider vitamin D.

5. Being active, whether by exercise, socializing, or just being out and about, increases longevity.

6. Contrary to USDA recommendations, the survivors in this study generally didn't worry about whether what they ate was healthy or not — they pretty much ate what they wanted.


And though I don't recall this being mentioned in the presentation, we know from other research that once we get past our mid-sixties, higher cholesterol levels (well above the levels recommended by most doctors) increase the odds of living longer.

So there you have it — guidelines for living a long and happy life. :grin:

Tex
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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Post by Sheila »

Great news, Lesley!! I hope you continue to do well.


Sheila W
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A person who never made a mistake never tried something new. Einstein
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Great News!

Post by JLH »

:letspartyfrog:

So happy to hear your good news!
DISCLAIMER: I am not a doctor and don't play one on TV.

LDN July 18, 2014

Joan
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Post by Pat »

I've been wondering how you were doing! So good to hear that the news is good! YAY!

Pat
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Post by MarthaE »

YAY!!! Was thinking about you. So glad to hear that you are doing well. :grin:
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Post by nerdhume »

So happy your plan is finally working for you!
Theresa

MC and UC 2014
in remission since June 1, 2014

We must all suffer one of two things: the pain of discipline or the pain of regret. ~Jim Rohn
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JFR
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Post by JFR »

Great news Lesley!

Jean
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Post by CathyMe. »

I am SO HAPPY to read this Lesley as I was hoping it would help you! :grin:

Terrific news!
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Lesley
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Post by Lesley »

Tears in my eyes - thank you guys. You make me choke up. The support I get and have received over the years from you is so precious to me! Saved my life over and over again!

Gut - I have had BMs without taking anything for the last 3 days. Some beribboned floaty goat droppings, some that looked, well, closer to N than anything I have seen in years.
However, I am still constantly uncomfortable, with pressure, cramps and so forth,

I DO have way more energy, and am doing a lot more. I had steroid shots in my Right hand, so it's more comfortable. I will get them in my left hand and, hopefully, they will last for a reasonable amount of time. My back has improved a LOT!

Tex, I am loosing weight all the time although I am trying to eat plenty of calories. I go through so many potato chips I need shares in a company or 2. If carrying some extra weight will make me live longer and healthier I have to eat 3 times as much, it seems. I am not even hungry so it's hard!
I made our paleo muffins yesterday because I am sick of oatmeal, and it's too hot anyway. Hoping that the nuts put some meat on my bones.

I need to find some alcohol that agrees with me.

I am out every day, at the pool around people, walking with Licorice (around 2 miles a day), gardening on my balcony, which is gorgeous, so that's taken care of.

One cup of coffee daily.

Since what I want is cafe au lait, toast and cheese, or a croissant and butter I can't do that one.


:drinking: Here's to a long and happy life!
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